Thank you for doing this! I will wave at you tomorrow as I drive by NIH every day to get to my office. I say prayers each time I go past the staff entrance that the doctors are successful there.
Caregiver to DH, dx age 50, mets to liver/lungs, MSS, quad wild
10/16: descending hemicolectomy w/perm. colostomy, CEA 114
11/16: port in, FOLFOX + Avastin; CEA down to 11 by 4/17
6/17: CEA 15, OX discontinued for now due to neuropathy
11/17: CEA 38, changed to CAPOX+A; CEA down to 29 in 12/17
1/18: scan stable, CAPOX caused bilirubin of 4.5/bad hfs, back to FOLFOX+A
5/18: scan shows growth of liver tumors/lung nodes; 6.4 bilirubin too high for irinitican, started Vectibex