I am a new member here, and just started FOLFOX last week (emergency surgery on 3/17 due to blockage resulting in stage IV diagnosis), so I have no real experience to share, except for the fact that it took me 3 weeks longer than I had hoped to get the consult at Dana Farber that my oncologist recommended before starting chemo. I got that appointment by saying, after over a week with no word, that I would see anyone, not just the woman my doctor chose (based on the fact that I generally prefer to see female doctors). The doctor I saw was fantastic. I think that at level they probably all are. I don't think you want to sit around patiently waiting for someone to see you. If I were in your shoes, I think I would demand that my local oncologist IMMEDIATELY refer me to all of the top 5+ cancer centers simultaneously, starting with MD Anderson, and I would go with whoever was able to see me first. It sounds as if your local people would be supportive.
Just sitting and waiting can drive you crazy, IME.
Best of luck to you, and a big hug and smooch to your little girl.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemicolectomy
11 of 25 nodes,5 of 5 mesentery nodes
0.5 cm sub-capsular liver met removed
pT3 pN2b pM1
BRAF wild, KRAS G12D
7/9/18 CT no masses or enlarged nodes, 2mm indeterminate lung nodule
11/20/18 CT same, Lung nodule likely calcified granuloma. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met and 2 lymph nodes in porta hepatis, CT review shows progression of nodes on FOLFOX