Postby boxhill » Thu May 10, 2018 6:47 am
I am a new member here, and just started FOLFOX last week (emergency surgery on 3/17 due to blockage resulting in stage IV diagnosis), so I have no real experience to share, except for the fact that it took me 3 weeks longer than I had hoped to get the consult at Dana Farber that my oncologist recommended before starting chemo. I got that appointment by saying, after over a week with no word, that I would see anyone, not just the woman my doctor chose (based on the fact that I generally prefer to see female doctors). The doctor I saw was fantastic. I think that at level they probably all are. I don't think you want to sit around patiently waiting for someone to see you. If I were in your shoes, I think I would demand that my local oncologist IMMEDIATELY refer me to all of the top 5+ cancer centers simultaneously, starting with MD Anderson, and I would go with whoever was able to see me first. It sounds as if your local people would be supportive.
Just sitting and waiting can drive you crazy, IME.
Best of luck to you, and a big hug and smooch to your little girl.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED