We had 1st day and 1st week actions for an immediate
, strong counterattack with some of the best "luck". My wife's colon cancer was far worse than we knew but we made it work anyway.
I'll list important tools we've used and improved on, that you can do yourself, today.
1. Get a superchemistry blood test with extra cancer markers
Potentially a big hospital is fastest (report today possible) but will often bog down for days or longer. The other question is whether they accept patient requests/demands for uses (extra tests) when they don't understand about underutilized research. For you, these tests are especially important to spot problems and important opportunities, asap. Unfortunately the average medical team is not wired into your situation, might balk over $100-$300 of "unnecessary tests", and often bully/initimidate patients with obstruction and chuckles.
However, you can get a rush order yourself for a blood draw through a national blood lab on the phone, perhaps Life Extension
Until (if) you get extended information from surgical biopsies and (slow) genetic tests, these extra, initial blood tests can help fill many gaps, today and tomorrow. Already 8 years of tomorrow for us.
2. Immune boosts and hitting common targets
Metastatic colorectal patients typically have major immunosuppression, depleted lymphocytes, anemia, and some gross or extreme nutrient deficiencies/depletions, all interacting for the worse. Cancer crossing the blood brain barrier is likely a (rare) symptom with these problems.
a. Fastest (e.g. Walmart): 800-1600 mg cimetidine, megavitamin D3 (15,000-60,000 iu) and megavitamin C (4000 - 16,000 mg/day), 81mg - 100 mg aspirin - all these per day
The higher megavitamin D3 levels, especially at 50 -100,000 iu/day use extra magnesium and menatetrenone (MK-4 type of vitamin K2) with no explicit calcium supplements allowed (incidental calcium contained in supplements limited to 250-400 mg per day)
b. rest of what we used, initially: these
+ modified citrus pectin, usually in a health food store or online
My wife recruited a granulocyte army more than 10x larger than her lymphocyte stock and destroyed much of her cancer in the first few weeks. None of our doctors have tried or seen this before.
and a summary our first steps
Longer term, you have several major treatment possibilities.
1. If your biopsy is MSI(H), a small percentage of mCRC patients, then they might use a PD 1 inhibitor that can have dramatic effects, right off the bat.
2. Chemo Folfox (or Xelox) + Avastin has been the typical first mCRC treatment for some years now. Sometimes Folfiri is used instead.
3. Metronomic chemo and immunochemo. Developed in Japan for oral chemo+PSK+cimetidine, and in the US, for oral chemo + Celebrex (celecoxib). Thesse are what we chose with some therapeutic extras. Some of our stuff crosses the blood brain barrier.
4. Supportive or even therapeutic nutrition. For us, so far, with carefully selected molecules, tolerated maximums have been the most responsive.