Scan scheduled

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heiders33
Posts: 235
Joined: Sat Nov 04, 2017 11:08 am

Re: Scan scheduled

Postby heiders33 » Fri Jun 01, 2018 6:46 am

Thanks OSM. I am not prone to anxiety so I am hopeful that I can stay still. I have never had an MRI though. At the place I go to for scans they put me in a gown. But I'll definitely try to be as prepared as possible.
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, no genetic mutations
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: six rounds of mop-up XELOX
March 12, 2018: reversal
April 16, 2018: CEA 2.1, all blood counts within normal ranges
May 2018: CT scan showed liver spot, MRI scheduled

heiders33
Posts: 235
Joined: Sat Nov 04, 2017 11:08 am

Re: Scan scheduled

Postby heiders33 » Mon Jun 04, 2018 8:05 am

I showed up for my MRI this morning, but I couldn’t have it done because my insurance hasn’t approved it yet. :roll: Now I have to wait for the imaging place to call to reschedule. I’m trying to schedule summer travel, etc., and I’m just going to go ahead and do it because I am fed up.
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, no genetic mutations
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: six rounds of mop-up XELOX
March 12, 2018: reversal
April 16, 2018: CEA 2.1, all blood counts within normal ranges
May 2018: CT scan showed liver spot, MRI scheduled

User avatar
Atoq
Posts: 266
Joined: Wed Oct 25, 2017 9:31 am

Re: Scan scheduled

Postby Atoq » Mon Jun 04, 2018 9:10 am

This sounds really annoying! I think it is a very good idea to just plan the summer. A big hug.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery

Eleda
Posts: 114
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Scan scheduled

Postby Eleda » Mon Jun 04, 2018 12:50 pm

Oh no that's crap,,, the scan Isint going to change anything in a few weeks so go and have fun on Ur holiday
No news is good news enjoy
Adele x
SWF, 47
Mom to 3 sons 6/8/12
Dec4th colo for intermittent rectal bleeding over the Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV
JAN 3RD started 1650mg Zelda 2xday, concurrent with 28 radiation

heiders33
Posts: 235
Joined: Sat Nov 04, 2017 11:08 am

Re: Scan scheduled

Postby heiders33 » Mon Jun 04, 2018 7:27 pm

I redeemed the day by heading to Gilda’s Club NYC for a free yoga class. It was so nice, challenging, and refreshing. What a great institution.
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, no genetic mutations
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: six rounds of mop-up XELOX
March 12, 2018: reversal
April 16, 2018: CEA 2.1, all blood counts within normal ranges
May 2018: CT scan showed liver spot, MRI scheduled

User avatar
Shana
Posts: 380
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Scan scheduled

Postby Shana » Mon Jun 04, 2018 11:06 pm

It would have been nice if they had called you beforehand to let you know that insurance approval was still pending! Glad you had fun at yoga class and hopefully you can take your vacation and reschedule around it!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

heiders33
Posts: 235
Joined: Sat Nov 04, 2017 11:08 am

Re: Scan scheduled

Postby heiders33 » Wed Jun 06, 2018 1:45 pm

I got the MRI rescheduled for June 20 and just found out that I got insurance authorization. Glad to get that taken care of!
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, no genetic mutations
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: six rounds of mop-up XELOX
March 12, 2018: reversal
April 16, 2018: CEA 2.1, all blood counts within normal ranges
May 2018: CT scan showed liver spot, MRI scheduled

User avatar
Atoq
Posts: 266
Joined: Wed Oct 25, 2017 9:31 am

Re: Scan scheduled

Postby Atoq » Wed Jun 06, 2018 3:16 pm

That’s really good! I am happy you got it fixed.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery

Caat55
Posts: 435
Joined: Sat Dec 23, 2017 6:01 pm

Re: Scan scheduled

Postby Caat55 » Wed Jun 06, 2018 10:30 pm

Take that vacation, it was the best thing I could have done. New York was so busy and alive, there wasn't time to be sick. We stayed up late and slept it, don't do that at home. I am busy at home, walk, garden, work but it isn't the same thing. Enjoy your summer.

Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

heiders33
Posts: 235
Joined: Sat Nov 04, 2017 11:08 am

Re: Scan scheduled

Postby heiders33 » Thu Jun 07, 2018 6:13 am

Susan, so glad to hear you had such a good time in my town. :D It sounds like it was a restorative vacation for you. I am going out to the Black Hills to be with my extended family for a week in July. It's also my parents' 50th wedding anniversary, which we will celebrate. I can't wait!

Thank you all for your kind words. I will let you know the MRI results when I have them.
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, no genetic mutations
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: six rounds of mop-up XELOX
March 12, 2018: reversal
April 16, 2018: CEA 2.1, all blood counts within normal ranges
May 2018: CT scan showed liver spot, MRI scheduled

heiders33
Posts: 235
Joined: Sat Nov 04, 2017 11:08 am

Re: Scan scheduled

Postby heiders33 » Thu Jun 21, 2018 9:30 am

The MRI was still inconclusive, so I am going to get a PET scan. If the 1 CM spot lights up then it’s malignant and my oncologist said a surgeon can remove it. He is concerned because this didn’t show up a year ago when I had my first scan. Question: did anyone here develop benign liver spots during/after chemo? As in, they weren’t there when you were first diagnosed? Just wondering if that’s a possibility, or if it’s a bad sign if it developed during treatment. Seems like chemo could cause cysts, like it did in my ovaries. Also, what’s the point of doing an MRI if it can’t tell me what I need to know? Thanks, all!
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, no genetic mutations
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: six rounds of mop-up XELOX
March 12, 2018: reversal
April 16, 2018: CEA 2.1, all blood counts within normal ranges
May 2018: CT scan showed liver spot, MRI scheduled

Caat55
Posts: 435
Joined: Sat Dec 23, 2017 6:01 pm

Re: Scan scheduled

Postby Caat55 » Thu Jun 21, 2018 3:33 pm

Thats crappy. One would like to think that nothing could grow during chemo, seems like thats the point.
How frustrating for you.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

User avatar
Atoq
Posts: 266
Joined: Wed Oct 25, 2017 9:31 am

Re: Scan scheduled

Postby Atoq » Thu Jun 21, 2018 3:38 pm

I can imagine the frustration of not getting a conclusive result, but there is still a good chance that it is not a metastasis. When are having the PET scan?

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery

heiders33
Posts: 235
Joined: Sat Nov 04, 2017 11:08 am

Re: Scan scheduled

Postby heiders33 » Thu Jun 21, 2018 7:30 pm

Atoq wrote:I can imagine the frustration of not getting a conclusive result, but there is still a good chance that it is not a metastasis. When are having the PET scan?

Claudia


The PET scan is not scheduled yet, it still needs to be approved by my insurance. I hope it can be scheduled soon. I’m frustrated, but I think the spot is just too small for the MRI to identify.
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, no genetic mutations
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: six rounds of mop-up XELOX
March 12, 2018: reversal
April 16, 2018: CEA 2.1, all blood counts within normal ranges
May 2018: CT scan showed liver spot, MRI scheduled

tater
Posts: 56
Joined: Wed Jul 19, 2017 5:53 pm

Re: Scan scheduled

Postby tater » Mon Jun 25, 2018 5:22 pm

heiders33 wrote:The MRI was still inconclusive, so I am going to get a PET scan. If the 1 CM spot lights up then it’s malignant and my oncologist said a surgeon can remove it. He is concerned because this didn’t show up a year ago when I had my first scan. Question: did anyone here develop benign liver spots during/after chemo? As in, they weren’t there when you were first diagnosed? Just wondering if that’s a possibility, or if it’s a bad sign if it developed during treatment. Seems like chemo could cause cysts, like it did in my ovaries. Also, what’s the point of doing an MRI if it can’t tell me what I need to know? Thanks, all!



My wife had five spots show up on her liver right after she finished the continuous 5FU pump for six weeks with radiation. Everyone assumed they were cancer. They did not shrink or grow during her rounds of FOLFOX + Avistan so they decided to do her surgery to remove the primary and to also biopsy two of the spots that were on the lower right lobe. Both came back as benign hemangiomas they now assume the other three are the same as they are the same size and showed up at the same time. I hear that drastic changes in estrogen can cause them. Radiation sent her into early menopause so maybe it was from that.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 LAR, Hysterectomy & External Nodes Removed W/ileostomy
CEA 1.5 12/30/17, 2.1 2/5/18
Clear CT and MRI on 2/5/2018


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