Stage IV - Off chemo two years

Please feel free to read, share your thoughts, your stories and connect with others!
crazylife
Posts: 255
Joined: Wed Dec 30, 2015 11:29 am

Stage IV - Off chemo two years

Postby crazylife » Mon Apr 30, 2018 4:45 pm

Wanted to share that DH is approaching two years off chemo as a stage IV patient. He did the initial 6 months of folfox as mop-up to his liver and colon resection. He then had 5 spots pop up in his lungs which were removed in November and January of this year.

Anyone else have similar experiences without chemo intervention at stage IV?
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 lung mets - March 2017
7 lung mets, May 2017
RFA to largest met, June 2017
Lung mets growing slowly, October 2017 (off treatment since June 2016)
Right lung surgery, November 2017
Left lung surgery, January 2018
NED - May 2018

stu
Posts: 1376
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage IV - Off chemo two years

Postby stu » Mon Apr 30, 2018 5:03 pm

Hi ,
Good to hear your husband is doing so well . My mum has not had chemo since 2010 . Surgery for one lung met two years ago but no chemo . Nine years as a stage 4 patient . She is awaiting her recent scan results .
Her oncologist decided to only use chemo on visible disease and so it continued .
I wish your husband every success.
Take care,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Canada777
Posts: 61
Joined: Mon Mar 28, 2016 6:24 pm

Re: Stage IV - Off chemo two years

Postby Canada777 » Fri May 04, 2018 10:21 am

Thank you for sharing this! I always love these stories. I hope for continued success for your DH.
DH dx. Stage 4 Colon cancer with Peri mets Dec '15 @ age 29
12 Rounds FOLFOX & then successful HIPEC in 2016.
Diagnosis changed to appendix cancer.
One small recurrence to pelvis 9 months later.
Resumed chemo and staying stable.

User avatar
dianetavegia
Posts: 2724
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: Stage IV - Off chemo two years

Postby dianetavegia » Fri May 04, 2018 3:47 pm

I don't know if I fit your question, but.....

I was Stage III in Jan. 2009 and had my colon resection and 6 months FOLFOX. In April 2012 I had a 1.5 cm liver met removed (80% of my liver) but NO FOLLOW UP CHEMO.

That's 6 years since my liver resection with no recurrences. Stats show that at 6 1/2 years, those without mets are CURED.

In the entire study population, the probability of being cured from CLM was 20 % (95 % confidence interval 16.5–23.5). After the first year, the mortality excess of resected patients, in comparison to the general population, starts to decline until it approaches zero 6 years after surgery. After 6.48 years, patients alive without tumor recurrence can be considered cured with 99 % certainty.
https://link.springer.com/article/10.12 ... 014-4234-0

Present study shows an 80% 3-year survival rate (and a 71% 5-year survival
rate) after HR and well-established data showing 10- and 20-year survivors
after HR of solitary and multiple metastases, even without adjuvant
chemotherapy.


Solitary Colorectal Liver Metastasis Resection Determines Outcome/ Article by:

Thomas A. Aloia, MD; Jean-Nicolas Vauthey, MD; Evelyne M. Loyer, MD; Dario
Ribero, MD; Timothy M. Pawlik, MD, MPH; Steven H. Wei, MS, PA-C; Steven A.
Curley, MD; Daria Zorzi, MD; Eddie K. Abdalla, MD, Researchers at M.D. Anderson Cancer Center at the University of Texas
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

11 years since dx and 7 3/4 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

crazylife
Posts: 255
Joined: Wed Dec 30, 2015 11:29 am

Re: Stage IV - Off chemo two years

Postby crazylife » Mon May 21, 2018 5:23 pm

Thanks! 4 month post surgery scan shows NED!
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 lung mets - March 2017
7 lung mets, May 2017
RFA to largest met, June 2017
Lung mets growing slowly, October 2017 (off treatment since June 2016)
Right lung surgery, November 2017
Left lung surgery, January 2018
NED - May 2018


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 2 guests