Hello! Well, got a lung nodule.
It wasn’t there on my scan at MD Anderson 4/17. It’s 7 mm.
Oncologist tomorrow. Our family actually moved from TX to S.C. to be near family. My husband unfortunately had two TIAs in January, and had an abnormal brain MRI. He’s going to see a neurologist soon. We have a son who has autism, and there’s no way we could get through all these super fun health issues in Texas.
We surrendered our home to the mortgage holder. Another fun moment.
Oddly they found the nodule in the ER. I had been losing weight and had altered bowel habits for a few weeks, I thought it was stress. The ER did an X-ray of my abdomen and told me I had a small bowel obstruction. I was so shocked, as my first diagnosis presented with a complete obstruction. Then they did a CT, and said it wasn’t an obstruction but upper small bowel loops that were inflamed from unspecified infection. They gave me cipro and flagyl and sent me home.
I saw oncologist and he didn’t seem to concerned. I demanded an emergency appt with GI doc and he put a child’s scope as far down as he could into my small bowel and found nothing. I still am having bowel issues.
Oddly my negative test for Lynch has now brought new significance. MDA geneticist said while the test itself was negative, my age at diagnosis and all the attributes of my tumor scream Lynch. It is possible it’s “atypical.” It’s possible the test was a false negative. It’s possible that Lynch has different variations they are not aware of yet, or are unable to detect with testing.
Of course I am just numb and resigned. Best wishes to all here. Cancer can F off. It’s terrible and I hate it and am so sorry we all have to experience it. It’s destroying our lives.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Colonoscopy 10/5/2017 clear