HELP!!!!!!!!! PRE SURGERY QUESTIONS

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erins
Posts: 28
Joined: Sun May 27, 2018 12:41 pm

Re: HELP!!!!!!!!! PRE SURGERY QUESTIONS

Postby erins » Mon May 28, 2018 1:57 pm

Eleda wrote:Can anyone help with my pain, I'm 18days post op after 10.5 hour TATME, and have hourindous pressure pains I can't get on top of mainly because I'm opiate sensitive so can't take them so ATM taking
75mg lyrica ( reducing from 150)
Tramadol
Paracetamol
Ib profen, ...
Cipro and flagyl for infection,,, and UTI
Innohep injections for another 3weeks
I'm n agony,, I can't sit or sleep or rest!!!!!!
Discharge is also very random so I don't like leaving the house unless I've incontinence pants on
THANKS ADELE

I found that Tylenol (Acetaminophen) worked well for me, and it can be especially effective when paired with Tramadol. I'm also Opiate sensitive, so pain is always a tricky thing for me. I avoided ibuprofen because of unrelated kidney issues, so I don't know if switching them out (Acetaminophen for Ibuprofen) would make much difference. I also found that heating pads worked wonders, especially on my shoulders (the gas from laproscopic surgery can trigger this, but I don't know about TATME), but it also helped with some general soreness.
38 yr old female
Rectal bleeding for 1 month—>
5/4/18 colonoscopy found mass in sigmoid colon
5/21/18 LAR
stage 2a, 0/17 lymph, clean margins
T3N0M0 G1
LVI neg, PNI neg, MSS

Eleda
Posts: 183
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: HELP!!!!!!!!! PRE SURGERY QUESTIONS

Postby Eleda » Mon May 28, 2018 7:25 pm

Thanks darknesstolight, I know if b flying if the pressure pains would go
Adele x
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Eleda
Posts: 183
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: HELP!!!!!!!!! PRE SURGERY QUESTIONS

Postby Eleda » Mon May 28, 2018 7:30 pm

Erin's for the first time 2tramadol and 2 in profen together knocked out he pain yesterday,, ( also me lol ) but don't care as long as the pain is sorted, but yea I'd have concerns with side effects so will swap out the in profen today for paracetamol and check out hat combo out
Thanks Adele x
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: HELP!!!!!!!!! PRE SURGERY QUESTIONS

Postby Caat55 » Tue May 29, 2018 9:50 am

Neurontin covered my pain but it was minimal. I would go back to physician and see what's up. Just to be safe.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

Eleda
Posts: 183
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: HELP!!!!!!!!! PRE SURGERY QUESTIONS

Postby Eleda » Tue May 29, 2018 11:32 am

I do have an infection Susan and a UTI,
I seem to have control of the pain as of yesterday,,, not pain as such but terrible pressure from my rectum...
2tramadol
2ib profen together ( extremely extremely drowsey)
But willing to put up with that
I tried to swap out the in profen as Erin suggest,
But didn't work for me,,, how long and what colour should the discharge last?????!
Adele
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: HELP!!!!!!!!! PRE SURGERY QUESTIONS

Postby Caat55 » Tue May 29, 2018 2:48 pm

Eleda wrote:I do have an infection Susan and a UTI,
I seem to have control of the pain as of yesterday,,, not pain as such but terrible pressure from my rectum...
2tramadol
2ib profen together ( extremely extremely drowsey)
But willing to put up with that
I tried to swap out the in profen as Erin suggest,
But didn't work for me,,, how long and what colour should the discharge last?????!
Adele


I only had two bms post op. A down discharge again, felt like I had to go poo twice. Now four months out it's just whitish and irregular.
I an sorry to hear you have infection, hopefully treating that will ease pain. My surgery was just above anal verge.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

Eleda
Posts: 183
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: HELP!!!!!!!!! PRE SURGERY QUESTIONS

Postby Eleda » Wed May 30, 2018 2:42 pm

Thanks Susan, I had one uncontrollable large one in the hospital and 2 minor ones at home ( well out for lunch actually)
But now have green discharge, but I'm assuming that's the infection, as if u looked close enough u could see the stitches from the outside,,,,,,
I've now managed the pain and back on Friday for path report so will mention it then
Thanks Adele X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

lakeswim
Posts: 85
Joined: Sat Mar 31, 2018 9:37 am

Re: HELP!!!!!!!!! PRE SURGERY QUESTIONS

Postby lakeswim » Fri Jun 01, 2018 1:24 pm

I don't have any advice but hoping you found relief somehow. Sending hugs and encouragement....
49 - F
RC - dgns March '18 (colonoscopy aftr 6 mos blood in stool)
Adenocarcinoma
10-11 cm from anal verge
T4N0M0
Stage 2
Started FOLFOX May '18 (8 rounds total chemo - then 6 wks chemo/rad - then surgery)

Eleda
Posts: 183
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: HELP!!!!!!!!! PRE SURGERY QUESTIONS

Postby Eleda » Fri Jun 01, 2018 5:52 pm

Thanks lakeswim
, pain is easing and. Saw the surgeon today so all clear margins one lymph is still affected out of ,22 so deffo mop up chemo now but only 3,, months so that's good
Adele x
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th


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