HIFU

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Tim UK
Posts: 71
Joined: Fri Jun 12, 2015 1:05 am

HIFU

Postby Tim UK » Sun Apr 15, 2018 10:18 am

Hi

Last week I had HIFU (focused ultrasound) treatment in Oxford, UK, on my two persistent mid-line scar mets. Each is about 25mm wide and embedded in muscle and scar tissue, about 5mm below the skin of my abdomen. I won't be able to update you all on results for a while but, in the meantime, if anyone has queries or comments on the procedure itself, I figured it could be useful to open up a topic. Still on the Barcelona trial after 18 months ...

Best wishes to all,
Tim
https://youtu.be/qoQbY4A5RNA
05/15 L hemi-colectomy - robotic, laparoscopic
05/15 Dx st 3 T4N2M0 @43
kids: 11,7
BRAFm mucinous - KRASw
06/15 2 liver mets
06/15 CEA 9, CA19-9 400+
06/15 - 09/15 6 x FOLFOXIRI+Avastin
09/15 markers 4/50
10/15 drain-site met
11/15 CRS+HIPEC
1-8/16 BRAF therapy (dabrafenib, panitumumab, trametinib)
CEA;CA19-9: 1/16 16;650 | 2/16 3;690 | 3/16 1;36 | 4/16 2;46 | 5/16 1;29 | 6/16 1;42 | 7/16 2;44 | 8/16 3;72 and 4;135
8/16 progression (PET)
10/16 Trial: NCT02650713

User avatar
HopeForJesse
Posts: 244
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: HIFU

Postby HopeForJesse » Sun Apr 15, 2018 4:25 pm

Thanks for the update and glad to hear about your success!
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS, mod dif adenocarcinoma, high grade dysplasia, TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
4/18 CEA 87 :( 5/18 5 days SBRT radiation to sternum CEA declining again 6/13/18 21.1
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

Sophia86
Posts: 1
Joined: Wed Apr 18, 2018 11:18 pm

Re: HIFU

Postby Sophia86 » Fri Apr 20, 2018 3:48 am

Hi Tim

Best of luck with this and with your clinical trial.

Looks like I’m similar to you in that I’m in london too at the marsden, only just arrived here though so I may have some questions for you in the future if you don’t mind?

All the best
Female
31
Dx dec 17
Right hemi colectomy
T4n2m1r0
Braf v600e
Mss mmr
Currently on folfoxiri and avastin


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