New with Questions

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Cndlgrl
Posts: 2
Joined: Tue Apr 10, 2018 10:00 pm
Facebook Username: peggy.christopherson

New with Questions

Postby Cndlgrl » Wed Apr 11, 2018 5:28 pm

Hello all! I’ve been lurking for a few days and figured I might as well join and ask the questions that I have.
First of all I have NOT been dx.
I have an abdominal ultrasound scheduled for this Friday and my upper and lower endoscopies scheduled in 3 weeks.

Current symptoms: I started noticing mucus about 6 months ago. The last month or so I’ve had intermittent blood on my t.p. that is gradually increasing. Within the last week I had bloody mucus. Blood work showed low hemoglobin, % saturation, low MCH, high RDW (sd), high RDW (cv), low ferritin.
I am also having heart palpitations and easily out of breath. FATIGUE.

Longer symptoms/issues: bile acid diarrhea for 10 years treated with prevalite daily. GERD for the last 3 years. I have actually had rectal bleeding on and off for years that I assumed was hemorrhoids.
I’ve had surgery to remove my thyroid 10 years ago after a large goiter grew. I also had surgery to remove my gallbladder a month later.

I have type 1 diabetes along with some other autoimmune disease/s which is currently being looked at as mixed connective tissue disease.

I had an upper and lower endoscopy 6 years ago after having unexplained weight loss that had no indication of anything.

I do have a brother with ulcerative colitis.

Here are my current questions:
1. Has anyone that has been diagnosed with CRC had bloody mucus as a symptom before diagnosis?
2. What can an abdominal ultrasound diagnose? Will they even see anything in my gi track, or will they only be able to look at other organs?

I’m not freaking out about the possibilities as this point, I just want answers so I can start doing whatever I can to feel better. My internist thinks I have Crohn’s. The GI dr didn’t speculate at all. I know I won’t have any real answers until the scoping is done, I just want to learn what I can in the meantime.

Thanks!

stu
Posts: 644
Joined: Sat Aug 17, 2013 5:46 pm

Re: New with Questions

Postby stu » Sat Apr 14, 2018 12:54 pm

Hi ,
Welcome to the forum . Glad you are getting some investigations done . Have you had a colonoscopy or did I just miss that ? That’s certainly how my mum was picked up and a good investigative tool . There are many reasons as I am sure you are aware for mucus with blood but it has been a symptom that caused some people to get checked out . Getting thoroughly investigated is definitely a good plan and you sound as though you will pursue this .
All the very best ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

Cndlgrl
Posts: 2
Joined: Tue Apr 10, 2018 10:00 pm
Facebook Username: peggy.christopherson

Re: New with Questions

Postby Cndlgrl » Sat Apr 14, 2018 11:32 pm

Thanks for the reply Stu.
I had an abdominal ultrasound yesterday and have my colonoscopy scheduled for May 1st.

The waiting part is no fun. I wish the ultrasound tech would have told me what she saw. Not sure when the doctor will let me know the results.

Hoping for some answers soon.

User avatar
O Stoma Mia
Posts: 1202
Joined: Sat Jun 22, 2013 6:29 am
Location: Budapest

Re: New with Questions

Postby O Stoma Mia » Sat Apr 14, 2018 11:41 pm

Cndlgrl wrote:...
Here are my current questions:
1. Has anyone that has been diagnosed with CRC had bloody mucus as a symptom before diagnosis?
2. What can an abdominal ultrasound diagnose? Will they even see anything in my gi track, or will they only be able to look at other organs?

For your second question, there was an earlier thread here that discussed the issue:

How good is ultrasound at picking up anything?
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=29275

For questions about Ulcerative colitis and Crohn's disease, you can get some information here by searching past posts of MissMolly for keyword CROHN'S or keywords ULCERATIVE COLITIS. The instruction for how to do this search are found here:

MissMolly's Insightful Posts
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=58013&p=456986#p456986
Last edited by O Stoma Mia on Tue Apr 17, 2018 12:07 am, edited 2 times in total.

KElizabeth
Posts: 397
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: New with Questions

Postby KElizabeth » Sun Apr 15, 2018 10:23 am

I'm glad to read you scheduled your colonoscopy because it really is the best way to see all of what could be going on. Many tests lije ultrasounds just don't answer all the questions so you end up with test after test.
Your symptoms are definitely concerning and I am sorry you are going through this. I hope for you that your colonoscopy is clear and that you can find some relief from your symptoms. We'll be here for you either way. We all want to help you navigate this.

Hugs.
KE
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current

Capercrohnieileo
Posts: 3
Joined: Wed Apr 11, 2018 12:42 pm

Re: New with Questions

Postby Capercrohnieileo » Mon Apr 16, 2018 3:17 pm

O Stoma Mia wrote:
Cndlgrl wrote:...
Here are my current questions:
1. Has anyone that has been diagnosed with CRC had bloody mucus as a symptom before diagnosis?
2. What can an abdominal ultrasound diagnose? Will they even see anything in my gi track, or will they only be able to look at other organs?

For your second question, there was an earlier thread here that discussed the issue:

How good is ultrasound at picking up anything?
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=29275

For questions about Ulcerative colitis and Chron's disease, you can get some information here by searching past posts of MissMolly for keyword CHRON'S or keywords ULCERATIVE COLITIS. The instruction for how to do this search are found here:

MissMolly's Insightful Posts
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=58013&p=456986#p456986

Not to be a grammar nazi but it might make searching difficult but it's Crohn's not chron's.

I don't have CRC but I had a lot of bleeding for 6 months prior to getting a colonoscopy (really dumb but I was scared. Dr said I probably would have perforated if I had waited for even a week later. I was very severely ill when diagnosed, 34 day hospitalization, TPN, etc) and I was diagnosed with Crohn's colitis + perianal disease. I eas going 30+ times a day and the blood filled the entire toilet bowl. Hoping you get answers at your colonoscopy. Bleeding can be a lot of things not just CRC
Severe Crohn's colitis jan 2015
Developed fistulas feb 2015
Open total proctocolectomy with end ileostomy (bye bye colon and rectum hello barbie butt) because of fistulas, Crohn's and crc risk May 5, 2017
Gastroduodenal Crohn's Nov 1, 2017
Severe Gastroparesis (delayed gastric emptying) Nov 9, 2017 GES showed 70 % remaining in stomach at 4 hrs. Normal is <10%


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