My husband is a stage IIt4a survivor. His cancer was in his cecum. He had surgery to remove his cecum, 15 inches of his ascending colon, his terminal ilium, a couple inches of his small intestine, his appendix, which the tumor penetrated the orifice of and 24 lymph nodes. He did 6 months of folfox, last two treatments without oxy due to neurophy getting to bad. We had our treatments done locally, but everything else at MDA in Texas. We have been cut loose from everything now except colonoscopy's every three years. He is 7 1/2 years out from surgery. He was considered high risk for recurrence because of the t4 and positive LVI. With the exception of very slight neurophy lingering on the bottom of his feet, he, I would say is as good as he was before he got sick. It seemed like we would never get to this point, but we just took it one day at a time. It was very difficult for us because my husband was the bread maker in the house and he being a pilot, was unable to fly while undergoing chemo. Our income totally stopped and we had to go on cobra to continue his insurance, very expensive! We have two boys who were at the time 12 and 13 years old., also very difficult for them. Do I still worry about every little stomach ache, cold, back ache etc he gets, you bet. I don't think the fear every goes totally away, but it does get better.
Stage two is the controversial stage as far as treatment and follow ups go, which is how we ended up at MDA. What our local oncologist was suggesting just didn't sound correct. The major cancer centers seem to have a good understanding of stage two and who should be treated ect. The local hospitals just kind of "wing it". Stage II is tuns better than stage III and Iv, but still is very concerning, especially if you have high risk features like we did.
My husband was just 50 at diagnosis and has quite a bit of cancer history on his mothers side of the family. Hence, we had genetic testing done at MDA and he is MSS with no genetic abnormality. I was surprised by this because of his many family members have had cancer. Sometimes I think there is a genetic problem in him somewhere, and its one that they haven't learned about yet and don't test for. He has two brothers and a sister. All except his sister have had cancer. Prostate, lung and him with colon. He also has three of his 5 aunts who have had cancer of different kinds and cousins from the same side of the family and yet he tested neg for any genetic abnormality? I worry about my sons even though he was neg for everything.
At any rate, we are very grateful for our outcome and pray that his good health continues.
I truly wish all of you the best, hang in there!