Looking for Stage II Updates for Colon Cancer Peeps

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Looking for Stage II Updates for Colon Cancer Peeps

Postby Robino1 » Mon Apr 09, 2018 4:16 pm

Teddybear wrote:Good Luck on your CT Scan Wednesday Robin. Please let us know how it goes. Many prayers for you!

Will do and thank you :)
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

weisssoccermom
Posts: 5883
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: Looking for Stage II Updates for Colon Cancer Peeps

Postby weisssoccermom » Mon Apr 09, 2018 5:11 pm

I don't think that a surgeon would do a rectal resection ...any type....with the transanal approach BUT....I am not sure.
My surgery was an excision only.....only 1 or 2 nodes harvested that just happened to be next to the excised specimen.
I really have no idea about the approach you're talking about. I suppose it is possible but it is definitely not the same surgery
that I had.
Sorry I can't be of more help.
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
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Eleda
Posts: 197
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Looking for Stage II Updates for Colon Cancer Peeps

Postby Eleda » Mon Apr 09, 2018 5:36 pm

Thanks,
im not sure myself tbh, I must meet him.on the 20th, so wanted to have my questions ready, but can't find anyone who has had it done, I think its,because it shrunk so much makes it a,viable option, but I'm assuming ( only assuming!!!!!) Ill still need two separate proceedures for lymphs and temp colostomy all during the same surgery

ADELE
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Grace14
Posts: 417
Joined: Mon Oct 24, 2011 7:42 pm

Re: Looking for Stage II Updates for Colon Cancer Peeps

Postby Grace14 » Tue Apr 10, 2018 7:09 am

I was diagnosed with stage 2A Rectal cancer 8 years ago. I had a complete response to Cheng/radiation. I did 4 months of chemo after surgery. I have a permanent colostomy. I have been cancer free for 8 years. I have an appointment in May, and hopefully I’m still NED. Good luck with everything!
Diag Stage 2a R/C April 2010 at 38
Rad/chemo 6 weeks
Apr surgery July 2010
Folfox 4 months
Jan appendix removed
Feb diag papillary thyroid cancer no treatments stage1
Ned so far!!!
Mother of 4 boys 21 18 11 8

Eleda
Posts: 197
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Looking for Stage II Updates for Colon Cancer Peeps

Postby Eleda » Tue Apr 10, 2018 1:02 pm

Had my pre operative assessment today so caught the understudy,,, ( very handsome lol )
Anyways
Its a TaTME, still haven't spoken to the surgeon, but has anyone has this done???? seems to b slightly controversial!!!!! From what I read

On a technically challanged level
How do I upload a pic???
Had my file (holy grail) in my had today for a short while so took some pics
Seems positive bit would like conformation if anyone wants to volunteer confirming my histology

Thanks ADELE
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

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peanut_8
Posts: 2314
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: Looking for Stage II Updates for Colon Cancer Peeps

Postby peanut_8 » Tue Apr 10, 2018 1:23 pm

Still NED almost 4 and a half years post diagnosis.

:mrgreen: :mrgreen: :mrgreen:
peanut
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

Hey Daddy
Posts: 37
Joined: Wed Nov 30, 2016 8:42 am

Re: Looking for Stage II Updates for Colon Cancer Peeps

Postby Hey Daddy » Tue Apr 10, 2018 8:12 pm

My son was 2b with several risk factors (T4, LVI, PNI, obstruction, elevated CEA). He finished 6 months of FOLFOX a year ago and is still NED. Has another blood test and CT scan coming up this month. He had some difficulties with adhesions but surgery last December seems to have fixed that problem. Still has occasional abdominal pains that cause his anxiety to rise but overall is doing well.
DS dx CC Stage IIB (T4N0M0) 3Aug16, 21 yr old
poorly differentiated, lymphovascular and perineural invasion
CEA 29
Colon resection 4Aug16
CEA 2.5
Genetics testing negative
6 mo FOLFOX Sep16 - Mar17
CT Scan Mar17 clear
Colonoscopy Apr17 clear
CEA 1.8
NED
Emergency appendectomy Jun17
Adhesion surgery to clear small bowel obstruction Dec 17

Nicolouna
Posts: 30
Joined: Fri Nov 08, 2013 6:30 pm

Re: Looking for Stage II Updates for Colon Cancer Peeps

Postby Nicolouna » Thu Apr 12, 2018 1:54 am

I was diagnosed with a stage 2b or 2c colon cancer in August 2013, with poor prognostic factors (poorly differentiated, lots of invasion, T4 tumor). I opted for taking the chemo. 12 rounds of FOLFOX. Then I lived my life to the fullest - eloped, bought a condo, gave birth to a beautiful baby girl. A few months after giving birth, my scan showed a tiny new mass near my duodenum. PET was clear, CEA normal and I even had laparoscopic surgery to biopsy the mass. The result was it was fibrotic tissue. My onc followed me closely and this mass started to grow VERY slowly. Then everything kind of went wild from there. About a year after discovering this mass, they operated on me to remove a suspicious ovarian cyst which turned out to be cancerous. A few days postop, I developed jaundice which turned out to be unrelated to the ovarian tumor, but rather it was the duodenum mass that was growing into my pancreas. Had an ERCP to insert a stent and had the mass biopsied from another angle.... looked very much like a met from the colon so I started chemo right away (Folfiri) and a few months later, a Whipple’s surgery to remove the mass and rewire my entire GI tract. At the moment, I have been declared NED (have had 2 scans since my Whipple’s). I am almost at the finish line of my chemos. Sorry for the super long text. I’m not saying this will happen to you but I would probably do the chemo just in case there are errand cancer cells... I’m actually doing well despite all this and I don’t regret choosing to do the chemo. Would want to put all the chances on my side.
Diagnosed @ 27, female w colon cancer (T4N0M0)
Right hemicolectomy -Aug 2013
FOLFOX - Oct 2013 - April 2014
May 2016 - had a baby ❤️
June 2017 - L ovarian malignancy (L ovary and tube removed) - ?met unsure
July 2017 - ?met to duodenum/pancreas
Started FOLFIRI Aug 2017
Dec 2017 - Whipple’s surgery. 1/36 lymph nodes+, treating it as mCRC - pathology not quite the same as original tumor
Scans postop - declared NED
Continuing FOLFIRI (12 cycles total) until May 2018
What a journey....

Teddybear
Posts: 37
Joined: Sun Feb 11, 2018 3:23 pm

Re: Looking for Stage II Updates for Colon Cancer Peeps

Postby Teddybear » Tue Apr 17, 2018 5:27 pm

Started Xeloda today. Lots of anxiety yesterday, but glad to be getting this done. I received my Oncogene DX text results back today. Test reported 12% recurrence risk with no chemo, but 7%-5% recurrence risk with 5fu/ Xeloda for 6 months. By adding Oxaliplatin it only improves risk by 1%. Any others use this tests? Surprised my insurance paid for it! I think it was helpful because it showed Xeloda works on my gene type and Oxaliplatin is not going to make a difference.

Hope the stage ll peeps are staying strong and positive :D
DX CC Feb 2018
Feb 2018 Lap sigmoind resection
2A
T3N0M0/G2
0/14 nodes
no invasion
Margins clear
MSS
April-June 2018 Xeloda

Beckster
Posts: 289
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Looking for Stage II Updates for Colon Cancer Peeps

Postby Beckster » Tue Apr 17, 2018 6:22 pm

Teddybear wrote:Started Xeloda today. Lots of anxiety yesterday, but glad to be getting this done. I received my Oncogene DX text results back today. Test reported 12% recurrence risk with no chemo, but 7%-5% recurrence risk with 5fu/ Xeloda for 6 months. By adding Oxaliplatin it only improves risk by 1%. Any others use this tests? Surprised my insurance paid for it! I think it was helpful because it showed Xeloda works on my gene type and Oxaliplatin is not going to make a difference.

Hope the stage ll peeps are staying strong and positive :D



Teddybear,

It will go quicker than you think. Stay on top of hand/foot, drink plenty of water, take naps, and try to walk. Xeloda is doable and you will be ready to celebrate the holidays in no time! I wish I had the OncoDX, but my onc does not believe it is a reliable test for colon cancer. You have this!!!
57/Female
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size: 3.5 cm x 2.5 x 0.7 cm
Grade: G3 (surgical) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction to oxaliplatin on first infusion-discontinued
1/2/17 to 6/9/17- Xeloda monotherapy
6/26/17, 12/12/17, 6/18/18 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5
Clear Colonoscopy 10/17 :D

Teddybear
Posts: 37
Joined: Sun Feb 11, 2018 3:23 pm

Re: Looking for Stage II Updates for Colon Cancer Peeps

Postby Teddybear » Tue Apr 17, 2018 7:22 pm

Thanks Beckster. I appreciate the encouragement. My surgeon and first oncologist loved the test and the second oncologist I decided on doesn’t think it matters. Surprisingly the oncologist who likes the test didn’t change his recommendation for folfox and the second oncologist was in line with the report of no Oxaliplatin. Your stats are very similar to mine. I bet your results would be similar. I think it helps confirm the type of chemo.
DX CC Feb 2018
Feb 2018 Lap sigmoind resection
2A
T3N0M0/G2
0/14 nodes
no invasion
Margins clear
MSS
April-June 2018 Xeloda


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