Scanxiety: Anyone else having testing now?

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dianetavegia
Posts: 2710
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
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Re: Scanxiety: Anyone else having testing now?

Postby dianetavegia » Wed Apr 04, 2018 11:57 am

CT/ MRI Cancelled!

My CEA dropped over 50%, well into the normal range, and my cholesterol all dropped, too. My TSH had shown hypothyroidism and my scans 5 months ago were all clear. I've been on thyroid meds since the test in November and studies have shown that hypothyroidism is a well known cause of elevated CEA's. (Under 10)

Since all my blood work was so good, I didn't have to have the CT/ MRI. I am now 9 years 3 months post my original Stage III dx and 6 years post my hepatic resection for a 1.5 cm met which made me Stage IV.

Praising the LORD for this good news!
Praying for all of you!
Diane
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Nine years 10 months since dx and 6 1/2 years post liver resection.
NED Oct. 2018

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

orlar
Posts: 65
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: Scanxiety: Anyone else having testing now?

Postby orlar » Wed Apr 04, 2018 1:07 pm

WOOHOO! Just got a call from my ONC office about yesterday's PET Scan. My nurse advised it showed significant improvement. No particulars as I have an appointment with ONC Monday, but it's the first time one is better than the last! Hopefully the first step of many in the right direction.
56yo male DX 5/17, Right Hemi colectomy 6/17
Stage 3c 12 of 21 LN
7/17-12/17 Folfox(no Oxi round 9-12)
12/17 liver/lung mets-Stage 4 MSS KRAS G13D
2/18 liver doubled to 8.5cm+new met, lung mets to 1.4cm, multi peri/omen
2/18-7/18 Folfiri+Avastin(no 5FU after C2)
4/18 mets shrinking
7/18 liver/lung mets growing, Folfiri stopped
10/18 In Clinical Trial
CEA 5/17-16.2, 12/17-16.1, 02/18-43.0, 3/18-16.9, 4/18-9.0, 5/18-5.5, 6/18-6.9, 7/18-7.8, 9/18-56

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Scanxiety: Anyone else having testing now?

Postby Robino1 » Wed Apr 04, 2018 2:38 pm

Absolutely excellent news to you both!!!

:D
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Scanxiety: Anyone else having testing now?

Postby Shana » Wed Apr 04, 2018 5:27 pm

Thrilled for you Diane! Great news indeed!

Very happy for you too Orlar, sounds like they have you on the right chemo cocktail!

I hope you both can enjoy the rest of the week now that you have peace of mind! :D
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

heiders33
Posts: 314
Joined: Sat Nov 04, 2017 11:08 am

Re: Scanxiety: Anyone else having testing now?

Postby heiders33 » Wed Apr 04, 2018 6:10 pm

Great news! So happy for you both!
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, KRAS G12A
June-July 2017: 28 days of XEL/radiation
Sep 2017: laparoscopic LAR/loop ileostomy
Oct 2017 - February 2018: XELOX six rounds
Mar 2018: reversal
Apr 2018: CEA 2.1, normal blood counts
May 2018: CT liver spot
Aug 2018: Abnormal PET, CEA 2.4
Sep 2018: robotic and laparoscopic liver resection with HAI pump
Oct 2018: Clear CT and colonoscopy, CEA 1.7, begin six months FUDR and FOLFIRI

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dianetavegia
Posts: 2710
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
Contact:

Re: Scanxiety: Anyone else having testing now?

Postby dianetavegia » Thu Apr 05, 2018 8:40 am

Thanks and congrats on the good news!

Diane
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Nine years 10 months since dx and 6 1/2 years post liver resection.
NED Oct. 2018

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

stu
Posts: 901
Joined: Sat Aug 17, 2013 5:46 pm

Re: Scanxiety: Anyone else having testing now?

Postby stu » Thu Apr 05, 2018 3:10 pm

Brilliant news for you both ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Tdubz
Posts: 132
Joined: Sun May 07, 2017 11:01 am

Re: Scanxiety: Anyone else having testing now?

Postby Tdubz » Fri Apr 06, 2018 7:39 am

I just finished all the tests for the one year mark, colonoscopy/blood/ct scan and all were clear! I didn’t have scanxiety for this first year, but that was probably due to the fact that I was getting labs every 3 months and scans every 6. Now my onc said I’ll just do labs and scans every six months. That might make me a little more nervous lol, but hey, I’ve been NED for a year! Time to celebrate!

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susie0915
Posts: 872
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Scanxiety: Anyone else having testing now?

Postby susie0915 » Fri Apr 06, 2018 9:05 am

Congrats to all of you. Praying for the same results for me this spring.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change
11/18 CEA .6

DarknessEmbraced
Posts: 3186
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scanxiety: Anyone else having testing now?

Postby DarknessEmbraced » Mon Apr 09, 2018 8:27 am

Congratulations to everyone who got good news! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Scanxiety: Anyone else having testing now?

Postby Robino1 » Mon Apr 09, 2018 4:20 pm

Scan scheduled for this Wednesday the 11th of April.

Crossing fingers and toes. :) :lol:
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Scanxiety: Anyone else having testing now?

Postby Shana » Mon Apr 09, 2018 4:25 pm

Robino1 wrote:Scan scheduled for this Wednesday the 11th of April.

Crossing fingers and toes. :) :lol:


Crossing mine too and I'd cross my eyes as well if I knew how! :lol:
Will be thinking super positive thoughts for super good results!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

zephyr
Posts: 142
Joined: Thu Aug 18, 2016 7:31 am

Re: Scanxiety: Anyone else having testing now?

Postby zephyr » Wed Apr 11, 2018 2:24 pm

Just received my latest scan results. After 9 months of "bad" scans, I finally have a good one. All lung nodules have decreased by about 30% and there's no evidence of any new metastases! I'm thrilled but also overwhelmed by hope.
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Scanxiety: Anyone else having testing now?

Postby Robino1 » Wed Apr 11, 2018 5:51 pm

zephyr wrote:Just received my latest scan results. After 9 months of "bad" scans, I finally have a good one. All lung nodules have decreased by about 30% and there's no evidence of any new metastases! I'm thrilled but also overwhelmed by hope.


Absolutely fantastic!

:D
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

orlar
Posts: 65
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: Scanxiety: Anyone else having testing now?

Postby orlar » Wed Apr 11, 2018 7:29 pm

Zephyr, Excellent news! I just found out how it feels to finally have a better one too.

Robin, I know your scan was today so I hope you hear Great news soon!

Best to all with scans coming up!

Larry
56yo male DX 5/17, Right Hemi colectomy 6/17
Stage 3c 12 of 21 LN
7/17-12/17 Folfox(no Oxi round 9-12)
12/17 liver/lung mets-Stage 4 MSS KRAS G13D
2/18 liver doubled to 8.5cm+new met, lung mets to 1.4cm, multi peri/omen
2/18-7/18 Folfiri+Avastin(no 5FU after C2)
4/18 mets shrinking
7/18 liver/lung mets growing, Folfiri stopped
10/18 In Clinical Trial
CEA 5/17-16.2, 12/17-16.1, 02/18-43.0, 3/18-16.9, 4/18-9.0, 5/18-5.5, 6/18-6.9, 7/18-7.8, 9/18-56


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