NCI Facebook Live for CRC and rectal cancer treatment, research, and quality of life

Please feel free to read, share your thoughts, your stories and connect with others!
NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

NCI Facebook Live for CRC and rectal cancer treatment, research, and quality of life

Postby NHMike » Mon Mar 26, 2018 4:09 pm

Please join our Facebook Live event on March 29 at 2:00 p.m. ET to discuss rectal cancer treatment, research, and quality of life for patients with this disease. Our experts will answer questions during the event: http://bit.ly/2qNtpmi

Unfortunately I don't have a Facebook account and really don't want one given how they treat their customers. I hope that they put out a YouTube or other video with the contents.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: NCI Facebook Live for CRC and rectal cancer treatment, research, and quality of life

Postby Shana » Wed Mar 28, 2018 12:30 pm

Facebook already has my information and I'm not going to sweat it now since Stage IV CC is a bigger fish to fry these days!
I will try to watch tomorrow and find out if they plan on releasing it on Youtube.

Thanks for the link, Mike! I hope you're having a good week

Best,
Shana
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: NCI Facebook Live for CRC and rectal cancer treatment, research, and quality of life

Postby NHMike » Wed Mar 28, 2018 1:17 pm

Shana wrote:Facebook already has my information and I'm not going to sweat it now since Stage IV CC is a bigger fish to fry these days!
I will try to watch tomorrow and find out if they plan on releasing it on Youtube.

Thanks for the link, Mike! I hope you're having a good week

Best,
Shana


They are going to release it on their YouTube channel at https://www.youtube.com/user/NCIgov
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: NCI Facebook Live for CRC and rectal cancer treatment, research, and quality of life

Postby Shana » Wed Mar 28, 2018 1:52 pm

Awesome! Glad you'll be able to access it easily and I can watch it at my convenience
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: NCI Facebook Live for CRC and rectal cancer treatment, research, and quality of life

Postby NHMike » Thu Mar 29, 2018 1:17 pm

This is going on right now and you don't need a Facebook account to watch it. There was just a great explanation on treatment. I think that most here know this stuff but I don't mind the review.

My link to the FB live: https://www.facebook.com/cancer.gov/vid ... =3&theater

I'll post a link to the Youtube after it's uploaded.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 32 guests