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Call on Congress 2018 - Inspiring and Uplifting Experience!

Posted: Mon Mar 26, 2018 2:22 pm
by Shana
I feel extremely lucky today because I have so many warm memories from last week. It was such an awesome experience for me to participate in ConC 2018! Thank you O Stoma Mia for encouraging me to attend!

The stories shared by my fellow advocates were heartfelt and inspiring. I felt an immediate connection to survivors and their families who have walked this walk. I was shocked and saddened by how young people are being diagnosed.... college students, new moms, athletes... people from all walks of life. I can't make any sense of why this disease is hitting the under 50 crowd so hard!

We walked the halls of congress and senate last Tuesday and met with our representatives and their aides to inform and educate about CRC. We asked them for their support and they came through in a BIG way! This paves the way for more research and will lead to new treatments to help us all with continued survival and an eventual cure!

To quote my fellow advocate, Stacy Hurt: "President Trump announced that he has signed the $1.3 trillion spending bill that passed Congress last night. In addition, the omnibus bill passed by the Senate and House earmarks $300 million for the Cancer Moonshot initiative. This is an increase in funding for the National Institutes of Health (NIH), with significant increases to several federal health agencies in FY18. The passing of this bill means we have the funds to support researchers and ultimately accelerate medical progress, public health, and scientific innovation
GREAT JOB ADVOCATES! We applaud our partners like ACS CAN, OVAC, Research!America, and so many groups that rallied to support research funding!"

I hope other forum members will consider joining us next year. It lifted my spirits considerably being with these amazing people who have become friends. I have learned "NO ONE FIGHTS ALONE" Colon Club forum has helped me so much and I hope to give back with continued advocacy fighting this monster disease.

Call on Congress advocates are passionate, intelligent, funny and really know how to party! Living life to the fullest in spite of everything! :D

A special thank you to four special women who I met. They are strong and passionate fighters! Trish Lannon, Leighann Sturgin, Diana Sloan and Maia Walker.

Re: Call on Congress 2018 - Inspiring and Uplifting Experience!

Posted: Mon Mar 26, 2018 4:06 pm
by CRguy
Shana wrote:A special thank you to four special women who I met. They are strong and passionate fighters! Trish Lannon, Leighann Sturgin, Diana Sloan and Maia Walker.

That is almost an understatement there Shana !!!!!
along with you my friend ... the CTalk forum was VERY WELL represented by
FIVE special, strong and passionate fighters !!!!

WORD

Cheers
CRguy

Re: Call on Congress 2018 - Inspiring and Uplifting Experience!

Posted: Mon Mar 26, 2018 8:32 pm
by Shana
CRguy wrote:
Shana wrote:A special thank you to four special women who I met. They are strong and passionate fighters! Trish Lannon, Leighann Sturgin, Diana Sloan and Maia Walker.

That is almost an understatement there Shana !!!!!
along with you my friend ... the CTalk forum was VERY WELL represented by
FIVE special, strong and passionate fighters !!!!

WORD

Cheers
CRguy


Thank you so much CRguy! I really appreciate your kind words.

This fight is still so new for me that I am in awe by what others have already gone through. I plan to continue to fight for myself and for everyone else with this crappy disease!

Re: Call on Congress 2018 - Inspiring and Uplifting Experience!

Posted: Mon Mar 26, 2018 9:01 pm
by Robino1
Shana, YOU are awesome! You and the others that were there with you, totally ROCK!

You got the power :D

Re: Call on Congress 2018 - Inspiring and Uplifting Experience!

Posted: Wed Mar 28, 2018 12:14 pm
by Shana
Robino1 wrote:Shana, YOU are awesome! You and the others that were there with you, totally ROCK!

You got the power :D


Thanks Robin!

I hope you consider attending next year! I think it would really be a great experience and you'll be amazed at the energy from all of the survivors! I told someone that I didn't consider myself a survivor because I am not NED and I was still under treatment and he said "so am I" and added that everyday we are alive means we are survivors!

I definitely prefer the term Survivor vs Victim!! :)