Caat55 wrote:... I am going NYC on the 29th, would like to have some quality time with our kids.
Caat55 wrote:Our county legalized medical growing with a permit. New board banned it two years later for the reasons you state. Since the THC levels are next to nothing, I am not going to worry. I prefer chocolate to alcohol and drugs. On the positive side, I was able to get in10000 steps today, eat normal meal and not get sick.
O Stoma Mia wrote:Caat55 wrote:... I am going NYC on the 29th, would like to have some quality time with our kids.
If you are going to be traveling by air to NYC, I think it would be a good idea to get a letter from your doctor stating that you have a medical condition that may require special attention during your trip.
You can use the letter to show security at the airport if they have any questions about your belly-wrap or stoma bag, and you can use it during the flight to show the airline cabin staff if you need to go to the toilet when the "Fasten Seatbelt" sign is on.
If you can't get a letter from your doctor right now, you can print a generic letter or card from one of the support sites on the Internet, e.g.:
NOTE: While in the plane, try to avoid foods and beverages known to produce gas. This is to avoid having a stoma-bag blow-out at 30,000 ft.
Eleda wrote:I take CBD/THC to sleep and as an anti carcinogenic from the beginning of my cancer story,,,it's home made with about 70%thc in a 5ml syringe, made by a friend of mine in the UK and posted ( illigally) to me, I take about the size of a grain of rice into an empty tablet capsule ( AMAZON) and it's lights out for me for 14 hours,,,
Have to watch the munchies, lol I'm fat enough lol
So I take it when I've no kids n the house in bed or an hour or 2 before
Glad u found something to help
margiej wrote:This is my first time posting..I have been lurking on the site for the last couple of months and have learned so much. When I was diagnosed over two years ago, I was too overwhelmed to research what I was going through. I was just on autopilot and putting my faith in my surgeon and oncologist. Probably not the best approach but it has turned out well for me so far, fingers crossed and knock on wood. I might have had an easier time if I would have read all the experiences others have gone through and all the warm advice and best wishes. My experiences with Oxaliplatin and Xeloda were very similar to what others have been posting. I resisted a port and my first Oxy infusion was in the vein on the top of my hand. My hand and my arm were so, so painful, I had a hard time sleeping the first two nights. The rest of my infusions were inserted higher up on my arm and it was much less painful. Oxy causes the extreme sensitivity to cold and it's not a joke. My daughter-in-law got me a cold bottle of water partway through my first infusion and it was a big mistake..the prickling and pain in my mouth and throat--yowza. After that I always drank warm beverages during my infusions. I was also extremely nauseous. I don't know if it was from the Oxy or Xeloda or both. The compazin didn't help at all. I got Zofran about 3 days in and it helped a lot. Also, Emend was added as part of my infusion after the first time and I always felt pretty good for about three days after my infusions after that. The cold sensitivity was pretty bad for about a week after the Oxy infusion---brushed teeth with warm water, drank everything at room temperature or warmer. I wore oven mitts to take things out of the refrigerator. You just learn what you can and can't do. My throat really bothered me ...the first night I thought I had swallowed a chicken bone or something...didn't realize that it was a chemo side effect!
In conclusion...chemo sucks but you just get through as much as you can as best you can.
Hugs and peace to all.
Eleda wrote:Susan ur doing great so far, so don't knock itself, as I said, new proticol is only 3months as apose to 6 so anything after. 3 is a bonus I would think without the permanent side effects
Diffiniatly bring it with u on holiday,,,, u need to enjoy the break
Shana wrote:... For anyone who has future travel plans I would also recommend applying for TSA precheck. The cost is reasonable and valid for 5 years, my credit card reimbursed the cost to me. It made security a breeze, no scanner... no additional questions or screening... just the metal detector walk through and much shorter lines.
Caat55 wrote:...he instead cancelled my appt for a week. This doesn't work as we are going to be gone....
Caat55 wrote:The oncologist offered an 80% dose so when I called today to say yes, that's what I wanted as the oxi side effects had not gone away between doses this time , he instead cancelled my appt for a week. This doesn't work as we are going to be gone. WhenI asked to be back on schedule tomorrow, they had already given away my slot. I had hoped to be done with this by Independence Day but now it won't happen. I was looking forward to a little summer break before I have to go back to school. Really bummed. I guess we just enjoy the trip to New York without chemo.
Good news , bad news who knows?