Mop up chemo experiences

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Caat55
Posts: 649
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Tue Jan 29, 2019 11:17 pm

One more step today, removal of the port. I get sick every time I go anesthesia so when the vascular surgeon offer to do it with a local I bit. It is scary for sure and it hurts now but it would have anyway. I drove myself to and home again afterwards.
So good to have it gone, feel better in a few days I am sure.

Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

Caat55
Posts: 649
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Thu Mar 14, 2019 11:49 pm

I had my first colonoscopy and Ileostomy yesterday. Everything clean but I was diagnosed with radiation proctitis. What now. He did an argon gas caterazation but still filling weird. How does this impact my upcoming reversal? Anyone else ever experience anything like this? Help!
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

Eleda
Posts: 288
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Mop up chemo experiences

Postby Eleda » Fri Mar 15, 2019 10:02 am

Not sure what illeostomy proceedure u had done Susan????
I've tightening of the rectum where it was stitched and from radiation,,,, the plan is to stretch it during reversal :cry: :cry: :cry:
That should be fun with the new anslaght of dioreah after the reversal!!!!
Why not remove port at reversal???
I've asked for mine to b done then
ADELE
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Caat55
Posts: 649
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Sat Mar 16, 2019 9:49 pm

Hi Adele,
I had my first colonoscopy and an ileioscopy, tube through stone to check out what can’t be seen from below. I have two things, how lucky for me. Diversion colistic and radiation always proctitis, both irritations due to the treatments. The diversion colititus will go away after reversal, the protitus is more complicated but I got an argon gas cathetization will I was under. I am still uncomfortable, not sure if it was the procedure or the proctitis. Either way I had a busy day in our little town of Murphys, one of the biggest St. Patrick's Day celebrations in California. We have 2000 people in town and from one day grows by about 15000 to 20000. Started at 6:30 baking scones for volunteers and spent till noon doing odds and end, street closure, poring beer before heading into our winery. What a day. Not letting cancer, pain or anything mess up my days. Last year I struggled with giving change, managing the money due to chemo fingers, today back to normal. So grateful to keep moving forward.
How goes it with you? What is next?
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

Eleda
Posts: 288
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Mop up chemo experiences

Postby Eleda » Sun Mar 17, 2019 3:55 am

Jesus Susan, I think Uve nearly had every symptom possible on Ur journey!!! :evil:
Everyone's after care seems to be so different
I had a sigmoid after my radiation and
Endorectal rectal ultrasound.
A few DREs , Scan and had the anastomosis leek test
( gastrografin enema, )done.
Presurgical clinic was last Tues so Im. Good to go this Thursday,,,,
I have apparently ( tightening at anastomosis site which he will stretch during surgery ( not looking forward to that ) I was very uncomfortable after surgery "nerve pain" in my ass fir a long time after ( about 2 months) I had 2.5 to 3 cm only AV so I'm dreading this now along with trying to get points out there also ,,, but has to b done so not a choice......
I'm suffering with a kidney infection ATM and what I think is sicatia or another complication because of the shingles I a few months ago :evil: :evil: :evil: :evil:

Lower Back Pain with Sciatic Disorder Following L5 Dermatome ...

I'll look into it after my op because I don't want to delay it any further,,,,

That said it stops me doing nothing ( NSAIDS LOL)
WORK KIDS ETC

And like any true Irish woman will be out celebrating our patron saint today :D :D :D :D :D

Happy at Patrick day to u all from CORK

ADELE X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

lakeswim
Posts: 209
Joined: Sat Mar 31, 2018 9:37 am

Re: Mop up chemo experiences

Postby lakeswim » Sun Apr 07, 2019 12:18 pm

Caat55 wrote:Hi Adele,
I had my first colonoscopy and an ileioscopy, tube through stone to check out what can’t be seen from below. I have two things, how lucky for me. Diversion colistic and radiation always proctitis, both irritations due to the treatments. The diversion colititus will go away after reversal, the protitus is more complicated but I got an argon gas cathetization will I was under. I am still uncomfortable, not sure if it was the procedure or the proctitis. Either way I had a busy day in our little town of Murphys, one of the biggest St. Patrick's Day celebrations in California. We have 2000 people in town and from one day grows by about 15000 to 20000. Started at 6:30 baking scones for volunteers and spent till noon doing odds and end, street closure, poring beer before heading into our winery. What a day. Not letting cancer, pain or anything mess up my days. Last year I struggled with giving change, managing the money due to chemo fingers, today back to normal. So grateful to keep moving forward.
How goes it with you? What is next?
Susan


Hi.
What did your proctitis feel like? What were your symptoms? Thanks.
50 - F - Mom
RC - dgns 3/18 at age 49
Adenocarcinoma
10-11 cm frm anal verge ("large")
Stage 3a - T4N0M0
FOLFOX May -Sept '18
Capecetabine + Radiation - 28 sessions - Oct - Nov 2018
Jan 19 - MRI & flex sig show tumor gone
Mid-Feb 19 - MRI & flex sig show tumor gone
W&W

Caat55
Posts: 649
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Sun Apr 07, 2019 3:55 pm

It feels like you have to use toilet, Kind of wiggly, like there something going on but of course nothing is! After colonoscopy it was very painful, whatever he did seems to have helped.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

Caat55
Posts: 649
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Tue Apr 16, 2019 10:30 pm

Reversal on Thursday. Heading down to Stanford tomorrow, scheduled for 7 am surgery butt that can change. The waiting and wondering is tough, but the whole process sucks.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

User avatar
O Stoma Mia
Posts: 1600
Joined: Sat Jun 22, 2013 6:29 am

Re: Mop up chemo experiences

Postby O Stoma Mia » Tue Apr 16, 2019 11:40 pm

Caat55 wrote:Reversal on Thursday. Heading down to Stanford tomorrow, scheduled for 7 am surgery butt that can change. The waiting and wondering is tough, but the whole process sucks. Susan

Good luck on your reversal on Thursday, and best wishes for a speedy recovery!

retiredteacher
Posts: 101
Joined: Sat Oct 21, 2017 1:34 pm

Re: Mop up chemo experiences

Postby retiredteacher » Wed Apr 17, 2019 9:17 am

Good luck on your reversal - best wishes ---
Terri from Linden
RC, F, 63 at diagnosis, Sept. 2017
Adeno 6.3 - 7 cm tumor (PET) MSS, G2,
Est. T3N0M0 PET
2500 Cap/RT Oct/Nov18; 25 treatments
"Near complete metabolic response" PET Jan 2018
CEA 0.5 Oct. 2017, Jan. 2018, 0.6 Oct. 2018
MRI Feb. 2018 Presurg yT2 N0 12 cm from AV 3 cm
LAR Feb 20 yT1N0M0 0/21 G1 0.3 cm
CAPEOX March 2018, oxi and cap reduced to 80% at cycle 3
Completed 4 cycles CAPEOX; stopped due to gut issues, liver enzymes
Clear CT and colonoscopy November 2018. NED. :-)

Caat55
Posts: 649
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Wed Apr 17, 2019 10:15 am

Thanks to you both. Doing last minute things at home, some shopping for adult briefs, stocking up on easy to cook and bland foods per dietitian suggestion. Moved all my business stuff to online accounts so I can take my laptop whereever I am spending my time to get my work done. Going to spend as much of this fabulous spring day outside in garden, with my dog as I can because I am seriously concerned I won't be able to do it for a time afterwards.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

Eleda
Posts: 288
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Mop up chemo experiences

Postby Eleda » Wed Apr 17, 2019 2:03 pm

Have a nice diner and I hope if a glass of wine last night :D :D :D
Just think of the summer hopefully we will b fighting fit by then.
I'm going to London June weekend
And Spain n July
So if I'm not optimistic :D :D :D
So we will keep one another going
What time is Ur op???
I'll b thinking of you and sending positive vibes
Welcome to the new you
ADELE X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Caat55
Posts: 649
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Wed Apr 17, 2019 5:02 pm

Eleda wrote:Have a nice diner and I hope if a glass of wine last night :D :D :D
Just think of the summer hopefully we will b fighting fit by then.
I'm going to London June weekend
And Spain n July
So if I'm not optimistic :D :D :D
So we will keep one another going
What time is Ur op???
I'll b thinking of you and sending positive vibes
Welcome to the new you
ADELE X


A glass of wine sounds lovely as does a trip to London and Spain. Thanks for the words of encouragement, looking forward to whatever is coming with mixture of dread and excitement. Just to remind me of how much fun the bag is, it tried to pop off last night, I guess I must have been squirmy :? . Another adventure awaits. My husband said last night, "can't believe we've been married almost a year and a half" I can't believe all but a month of that has been all about cancer. Enough I say. He has been amazing and can't wait for some new normall
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

Caat55
Posts: 649
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Thu Apr 18, 2019 10:05 pm

Made through surgery. Eating post op diet. Burps, but no poop. I keep walking, hoping something will move.
S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

User avatar
ginabeewell
Posts: 183
Joined: Wed Oct 24, 2018 10:30 am

Re: Mop up chemo experiences

Postby ginabeewell » Thu Apr 18, 2019 10:18 pm

Caat55 wrote:Made through surgery. Eating post op diet. Burps, but no poop. I keep walking, hoping something will move.
S


After my recent colon resection, I went a few days without pooping until the day one of the PAs recommended prune juice, warmed slightly. Bam! I pooped minutes later - and that was after trying a bunch of other laxatives that yielded nada. Good luck!
45 year old mom of twins (7) and lucky stepmom of 13 and 15 year olds
9/11/18 colonoscopy
9/17/18 DX stage 4 CRC with inoperable liver metastasis (largest 11 cm)
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 Routine scan picked up typhlitis - hospital stay for 7 days - but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6!
1/14/18 Resume chemo (rounds 6-8)
3/27/19 Surgery: HAI pump placement / colon resection; liver resection to follow
CEA 2.6!!


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