Mop up chemo experiences

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Caat55
Posts: 572
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Tue Sep 04, 2018 10:24 pm

Thanks soccermom for the feedback, Susie and Mike too. I do go barefoot in the house, in the grass when I take my dog out to play on the soccer fields and at the beach. The scrunched up sock things is a great description. I also find it is worse in late afternoon evening. I am experimenting with keeping my feet up a little while every hour to see if that might help, like maybe a little edema, not enough to see but enough to cause the tingles.
It isn't so bad that when I am engaged in something like bocce ball game tonight it bothered me enough to stop but it was an issue when my husband and I were dancing at a B-day party.

S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

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O Stoma Mia
Posts: 1518
Joined: Sat Jun 22, 2013 6:29 am

.

Postby O Stoma Mia » Wed Sep 05, 2018 12:40 am

Soccermom2boys wrote:... Miss Molly is the best, she knows her medical stuff! :D

I agree. Totally.

And there are other people here who have noticed this, too:

MissMolly's Insightful Posts
https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=58013&p=456986&p=456986#p456986

Caat55
Posts: 572
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Sun Sep 09, 2018 5:03 pm

I am a little more than six weeks out from last Oxil, infusion round. I have a CT scan coming up on Tuesday. Picked up the lovely barium smoothy which I drink Monday night and an our before scan. They are doing chest, abdomen and pelvis. Trying not to get anxious. It's going to be a long wait until I see the oncologist the following week. I wonder if the results will be posted up my portal, the MRI was, before I see doctor? Will I wait to read it or jump into it solo.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

NHMike
Posts: 1875
Joined: Fri Jul 21, 2017 3:43 am

Re: Mop up chemo experiences

Postby NHMike » Sun Sep 09, 2018 5:18 pm

Caat55 wrote:I am a little more than six weeks out from last Oxil, infusion round. I have a CT scan coming up on Tuesday. Picked up the lovely barium smoothy which I drink Monday night and an our before scan. They are doing chest, abdomen and pelvis. Trying not to get anxious. It's going to be a long wait until I see the oncologist the following week. I wonder if the results will be posted up my portal, the MRI was, before I see doctor? Will I wait to read it or jump into it solo.


My CT results were posted the same day (early morning CT). It was basically a very long pathology report on the portal which I read from start to finish as you'd expect. It may be that the pathology department wasn't very busy that day.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

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O Stoma Mia
Posts: 1518
Joined: Sat Jun 22, 2013 6:29 am

Re: Mop up chemo experiences

Postby O Stoma Mia » Mon Sep 10, 2018 3:23 pm

NHMike wrote:... My CT results were posted the same day (early morning CT). It was basically a very long pathology report on the portal which I read from start to finish as you'd expect. It may be that the pathology department wasn't very busy that day.

I don't understand what you are saying at all. A CT report is ordinarily only done by a radiologist and is based on an assessment of a CT scan image, but a pathology report is ordinarily done only by a pathologist and is based on the examination of a biopsy or biological specimen. What are you referring to here when you are talking about "My CT results" ? It's not clear to me at all. How can a Radiation Technologist issue a "very long pathology report"?

NHMike
Posts: 1875
Joined: Fri Jul 21, 2017 3:43 am

Re: Mop up chemo experiences

Postby NHMike » Mon Sep 10, 2018 5:30 pm

O Stoma Mia wrote:
NHMike wrote:... My CT results were posted the same day (early morning CT). It was basically a very long pathology report on the portal which I read from start to finish as you'd expect. It may be that the pathology department wasn't very busy that day.

I don't understand what you are saying at all. A CT report is ordinarily only done by a radiologist and is based on an assessment of a CT scan image, but a pathology report is ordinarily done only by a pathologist and is based on the examination of a biopsy or biological specimen. What are you referring to here when you are talking about "My CT results" ? It's not clear to me at all. How can a Radiation Technologist issue a "very long pathology report"?


Sorry, I should have said Radiologist.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

Caat55
Posts: 572
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Tue Sep 11, 2018 12:22 am

Enjoying a Berry Smoothie with barium sulfate. Delicious. Want this done and see results asap.
Praying for NED.
S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

Caat55
Posts: 572
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Mon Sep 17, 2018 7:19 pm

Just home from the oncologist. He walks in and tells I am no longer anemic. My answer, "well what about the cancer, what did the scan find?" He just looks at me an says "nothing." " So the cancer is gone?" Yes, he says and lets keep it that way. Just read his dication, according to the radiologist "there is no evidence of neoplasm" That's NED!!!!

Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

heiders33
Posts: 335
Joined: Sat Nov 04, 2017 11:08 am

Re: Mop up chemo experiences

Postby heiders33 » Mon Sep 17, 2018 7:32 pm

Congrats!
36 year-old female
May 2017: Dx rectal cancer T3N2M0
MSS, KRAS G12D
6/17: 28 days chemorad
9/17: LAR/loop ileostomy
10/17 - 2/18: XELOX six rounds
3/18: reversal
5/18: CT liver spot, blood counts normal
8/18: Abnormal PET, CEA 2.4
9/18: liver resection/HAI pump
10/18: Clear CT/sigmoidoscopy
10/18 - 4/19: 6MO FUDR/5FU

NHMike
Posts: 1875
Joined: Fri Jul 21, 2017 3:43 am

Re: Mop up chemo experiences

Postby NHMike » Mon Sep 17, 2018 8:24 pm

It’s the best of news.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

Caat55
Posts: 572
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Tue Sep 18, 2018 12:27 am

NED. Just got to read radiologist report. One down, more huddles ahead but savoring this a while.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

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Atoq
Posts: 329
Joined: Wed Oct 25, 2017 9:31 am

Re: Mop up chemo experiences

Postby Atoq » Tue Sep 18, 2018 1:07 am

That’s really good news! Congratulations!!

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan, ok
12.09.18, 06.02.19 scope, ok. CEA 1.6
19.11.18 clear coloscopy

Caat55
Posts: 572
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Tue Sep 18, 2018 9:49 pm

I think I have read the oncologist note a half a dozen times, radiology report is best read in a year. My mom and sister are so relieved,
we lost my dad and brother to cancer. S0 glad I had enough fight and certainly better care than my brother who died of colon cancer at 30.

S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

Caat55
Posts: 572
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Mon Dec 10, 2018 10:23 pm

I have seen two surgeons locally to see what's going on with my skin in prep for reversal. Apparently I have a rectal prolapse so back to Stanford to see my surgeon and get his opinion. Just the barium enema and using the toilet for that made my skin sore, bled so I can't imagination what normal bms would do.
I am scheduled for a PET scan on Friday, probably not necessary but I will feel better with another clean pictures. This is such a shock, insult it is really hard to believe when they say you are cancer free, I want more proof.
Also working with original GI folks on my first colonoscopy. There isn't any prep as I don't have anything down there to clean up with the ileo, one perk. Getting as much taken care of as I can this year, what a year. It was a year ago today I finished radiation.
S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

Caat55
Posts: 572
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Fri Jan 04, 2019 1:12 pm

Two clean scans and a surgery appointment. Got a plan for reversal in April. The surgeon wanted to do it sooner but I have work I want to get done and a conference to attend so I put it off. In the meantime Stanford has a Prehab study, diet and exercise to get in shape prior to surgery. It is a Mediterranean Diet with strength and endurance activities. I walk easily between 6 and 10000 steps a day so now I have to get to 10000 daily and add core stuff, pelvic tilts and planks. The diet is easy and I had a dietary consult who also helped me better understand post op diet. I had lost a bunch of diet on chemo but put on 10 pounds since July enjoying eating again. Good time to get back on track, husband needs it too.
Questions: When did folks have port removed? How much of a wound was there? What about the reversal wound? Did you continue to wear the ab support post op?

Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018


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