Mop up chemo experiences

Please feel free to read, share your thoughts, your stories and connect with others!
NHMike
Posts: 1557
Joined: Fri Jul 21, 2017 3:43 am

Re: Mop up chemo experiences

Postby NHMike » Wed Aug 01, 2018 11:31 pm

Caat55 wrote:So I ended up with a trip to the hospital yesterday, woke up okay but as I was leaving for work didn't feel right, achy and stomach sore. Sat down on sofa for a while and woke up a half hour later burning up. Fever was 100.5 and quickly up to 102. Oncologist sent me to get blood work, UA and Chest xray. WBC was up but that's about it, as a precaution they put me on antibiotics. Fever hit 103 last night, now it is normal. My abdomen is still tender but otherwise I am okay.
If it's not one thing it's another.

Susan


I think that it’s better to be safe than sorry when it comes to chemo.
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18

User avatar
susie0915
Posts: 818
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Mop up chemo experiences

Postby susie0915 » Thu Aug 02, 2018 7:53 am

It's scary because since cancer we are so in tuned with our bodies, and every twinge makes us worry. Before cancer, those twinges would be noticed and brushed aside unless it got worse. I'm glad you went to the hospital and got checked and everything is okay. I am over 2 years from finishing treatment and still worry about the little things. Hoping it will get better as time goes by.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

Caat55
Posts: 483
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Thu Aug 02, 2018 10:01 am

susie0915 wrote:It's scary because since cancer we are so in tuned with our bodies, and every twinge makes us worry. Before cancer, those twinges would be noticed and brushed aside unless it got worse. I'm glad you went to the hospital and got checked and everything is okay. I am over 2 years from finishing treatment and still worry about the little things. Hoping it will get better as time goes by.

That is the truth. My belly was sore so I started to worry about a blockage, almost PM you to ask about symptoms. Health is never taken for granted anymore. My fever came back yesterday afternoon, by evening it was back to menopausal hot flashes, this am I feel fine.
Crazy, thanks Susie and Mike.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

User avatar
Shana
Posts: 397
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Mop up chemo experiences

Postby Shana » Sun Aug 05, 2018 12:10 pm

Glad to hear that you're feeling better. I react to anything unusual now too, things that I would ignore before get scrutinized and researched. If output is a lot I worry about dehydration, if it's too little I worry about blockage... it's enough to drive one bonkers!

Take care and keep on feeling better. It's good that you got checked out just to be safe!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

Caat55
Posts: 483
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Mon Aug 06, 2018 6:19 pm

First CEA after chemo. It is .5. Yippee
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

User avatar
Shana
Posts: 397
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Mop up chemo experiences

Postby Shana » Wed Aug 08, 2018 12:42 am

Caat55 wrote:First CEA after chemo. It is .5. Yippee


Congrats! That's awesome and so low!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

Caat55
Posts: 483
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Wed Aug 08, 2018 9:53 am

Shana wrote:
Caat55 wrote:First CEA after chemo. It is .5. Yippee


Congrats! That's awesome and so low!


It is but I was rereading medical summaries and found a comment that my CEA was negative. Don't know what that means? Is my tumor not show CEA markers?

I saw surgeon yesterday about possible rectal prolapse that my ob/gym noted. He said it was a partial musousal fold prolapse. This is new sense radiation, surgery. He said tissue are too fragile right now for any surgery, recommended putting off barium enema for at least two months to heal skin. Nice guy, direct and clear. He basically told me what I knew myself but needed medical reassurance.
S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

User avatar
Shana
Posts: 397
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Mop up chemo experiences

Postby Shana » Wed Aug 08, 2018 6:08 pm

Caat55 wrote:
Shana wrote:
Caat55 wrote:First CEA after chemo. It is .5. Yippee


Congrats! That's awesome and so low!


It is but I was rereading medical summaries and found a comment that my CEA was negative. Don't know what that means? Is my tumor not show CEA markers?

I saw surgeon yesterday about possible rectal prolapse that my ob/gym noted. He said it was a partial musousal fold prolapse. This is new sense radiation, surgery. He said tissue are too fragile right now for any surgery, recommended putting off barium enema for at least two months to heal skin. Nice guy, direct and clear. He basically told me what I knew myself but needed medical reassurance.
S


Glad you got some clear answers on your fragile tissues. I have such empathy for you when I try to even imagine how it must feel! I though .5 was ideal, maybe CEA negative means that it's normal, as in negative for concern? Can you message your doctor and ask for clarification?

By the way, I have switched to Stanford, are you still being seen there?
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Yahoo [Bot] and 42 guests