Eleda wrote:Hi guys, while im delighted to see u all come through this alive and kicking,,, I on the other hand am n the horrors
I'm post 1st FOLFOX chemo 5 days,,, while I thought I would choak to death day after disconnect, Thursday
Today Sunday I feel kinda" normal"
As per New European protocol, I'll do 4 months but, and a big BUTT, it looks as u guys across the pond do evey 3 weeks where as I do 2 week cycles so effectively the same thing ( 8 rounds)
My question is will it continue like this where I get a break from the torture in-between???? Or is this a false sense of security????
This I think I can cope with if it doesn't get any worse!!!
I can't drink on my bad 3 days so going to ask for a bag of fluids on disconnect day( base ball in troath) like u Sharon.....
They already add magnesium to the chemo on infusion day, so t least I'm not concerned about elecroites and take a slow release sodium tablet belong to my son
Hot regular tea seems to be my only thing to drink but can't get n 2lt of that
Any help would be great
I haven't seen you post in a while, glad to hear you made it through first round.
I also had, have the rock in my throat which doesn't go away, a fan or cool temps make it worse. My tongue and roof of mouth feel funny as well. I can only tolerate warm liquids. My feet and hands are intolerant of cold, I wear garden gloves, New of course, to hold veggies, eggs when preparing meals? Sadly, each infusion is a little more challenging. I went Thursday, pooped out Saturday and Monday back to work. This final time, sick immediately and for about 7 days.
Started an strengthening program for pelvic work, abs and glutes yesterday. A 12 week course to prepare for reversal. I have to schedule a barium enema according to surgeon.
I can't wait to be able to tolerate cool, want to go kayaking and enjoy some time camping. I notice I don't heal well if nicked, bumped or mosquito bit.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19