Page 9 of 15

Re: Mop up chemo experiences

Posted: Thu Jun 14, 2018 9:56 am
by Caat55
Bag changed. I made healthy folate free muffins and yogurt and fresh fruit for breakfast as I wont be enjoying them for a while. Leftover.dinner ready for tonight in frig, first xeloda on board with lump on chest as proof. Friend coming at 10 to take me. Going to park with pup for a romp and ball toss to work off some steam. It is supposed to cool ofc to 80s this weekend so wont have the heat verse AC to contend with as well.
Tongue is numb, anyone else feel anything like that?

Re: Mop up chemo experiences Cycle 5

Posted: Thu Jun 14, 2018 9:59 pm
by Shana
Caat55 wrote:
O Stoma Mia wrote:
    XELOX (CAPEOX) Treatment Schedule

    Cycle 1 Infusion: March 22, 2018- Day 01
    Cycle 2 Infusion: April 12, 2018 - Day 22
    Cycle 3 Infusion: May 3, 2018 - Day 43
    Cycle 4 Infusion: May 24, 2018 - Day 64 (Note: Oxaliplatin infusion skipped on Cycle 4)
    Cycle 5 Infusion: June 14, 2018 - Day 85◄◄◄
    Last Xeloda pill: June 28, 2018 - Day 98
    End of TX cycle: July 5, 2018 - Day 105

According to oncologist, i will have kast cycle of infusion now on July 5th. He still wants me to try 5 for a total of 24 weeks of chemo, 120 days.
How do ypu keep track of us all? Thank you.
Susan


OSM is a wonder! Looks like your last infusion will be right after fireworks, a good day to celebrate! :)

Re: Mop up chemo experiences

Posted: Fri Jun 15, 2018 1:20 am
by Caat55
Thanx Shana. It will be celebration of independence. My birthay a few days later. My husband suggested we claim the whole month.
S

Re: Mop up chemo experiences

Posted: Fri Jun 15, 2018 10:11 am
by Caat55
Slept so solidly last night didn't wake up when my bag started to balloon, it bursts off the flange and a little mess. My husband is so great he remembered to get me slippers to run around and get things like a new bag and get it reattached while he stripped the bed and took care of all the stuff for me.
If it's not one thing it's another. A new day more Adventures. Did manage to get in 7,000 steps just by spending 5 hours in a chair. Going to see if I can get to 10,000 today maybe that'll flush this stuff out of my body quicker.
Happy Friday.

Re: Mop up chemo experiences

Posted: Fri Jun 15, 2018 4:36 pm
by heiders33
“If it’s not one thing, it’s another” was my mantra during treatment. I would recover from my infusion, and then my bag would blow out. Etc, etc.

Great job on all the steps!

Re: Mop up chemo experiences

Posted: Fri Jun 15, 2018 4:49 pm
by Caat55
heiders33 wrote:“If it’s not one thing, it’s another” was my mantra during treatment. I would recover from my infusion, and then my bag would blow out. Etc, etc.

Great job on all the steps!


Thanks for letting me know I am not alone with the bag blow out. Slept so heavy from drugs I am sure. My husband said I was talking craziness in my sleep too.

S

Re: Mop up chemo experiences

Posted: Fri Jun 15, 2018 5:01 pm
by Shana
Caat55 wrote:Slept so solidly last night didn't wake up when my bag started to balloon, it bursts off the flange and a little mess. My husband is so great he remembered to get me slippers to run around and get things like a new bag and get it reattached while he stripped the bed and took care of all the stuff for me.
If it's not one thing it's another. A new day more Adventures. Did manage to get in 7,000 steps just by spending 5 hours in a chair. Going to see if I can get to 10,000 today maybe that'll flush this stuff out of my body quicker.
Happy Friday.


Well that sucks but so glad that you have an understanding and helpful husband :) At least you got some good rest.

Just curious, does walking help the body flush chemo out faster? I know they tell me to drink water and stay hydrated but I thought we wanted to keep it in our system to do it's job... honestly I don't know enough about how chemo works to know how much time is required to get the total benefit before it leaves our body.

Re: Mop up chemo experiences

Posted: Sat Jun 16, 2018 5:31 pm
by Caat55
Yes, it sucks. The drugs have worn of and awful set in. Sleeping is the best option today,
I think anything to get rid of the stuff is worth a try.
S

Re: Mop up chemo experiences

Posted: Sat Jun 16, 2018 7:23 pm
by Shana
Caat55 wrote:Yes, it sucks. The drugs have worn of and awful set in. Sleeping is the best option today,
I think anything to get rid of the stuff is worth a try.
S


Hang in there! I know we keep saying that but you're almost there.

Sleep and soup and whatever else helps, hope tomorrow is better for you xoxo

Re: Mop up chemo experiences

Posted: Tue Jun 19, 2018 11:29 am
by retiredteacher
Hang in there - it gets better from this point forward!
t.

Re: Mop up chemo experiences

Posted: Tue Jun 19, 2018 7:01 pm
by Caat55
retiredteacher wrote:Hang in there - it gets better from this point forward!
t.

I think I can't do one more but know I have too. Giving myself and my family every chance for a long life together. Having lost a brother at 30 to colon cancer, I can't let it happen again.

I am so happy for you. Please let me know how you are feeling, are the abdominal pains gone?
S

Re: Mop up chemo experiences

Posted: Wed Jun 20, 2018 10:18 pm
by retiredteacher
Abdominal pains, acid etc. is tailing down. Up and down. Feet are an issue - think may take a couple months to square away - quite painful off and on. Frustrating to be so weak, not have energy. Got in the pool for the first time this year and then just baked in the sun on the hot concrete. Felt great. Takes time. Susan - looks like you have gone to six cycles instead of five?

Re: Mop up chemo experiences

Posted: Thu Jun 21, 2018 12:04 am
by Caat55
retiredteacher wrote:Abdominal pains, acid etc. is tailing down. Up and down. Feet are an issue - think may take a couple months to square away - quite painful off and on. Frustrating to be so weak, not have energy. Got in the pool for the first time this year and then just baked in the sun on the hot concrete. Felt great. Takes time. Susan - looks like you have gone to six cycles instead of five?

We postponed cycle four, got to enjoy vacation with our daughter in NYC. It wasn't the plan but a miscommunication with doctor, rather than decrease dose as we discussed, he nacelles it and there wasn't an open slot. I so hate what this does to us all but it beats the alternative. I went to yoga today, being head down made nausea worse but I did the whole class. Yeah me.
S

Re: Mop up chemo experiences

Posted: Thu Jul 05, 2018 6:48 pm
by Caat55
Just finishing round five, last one. Symptoms come on so quickly now. This time already experiencing nausea and fatigue. Skin down there bleeds when I blot after peeing. Everything is so fragile.
Good news though, we ordered aTesla 3 four years ago when released, wepick up tomorrow. Something to look forward to, new car smell, long gasfree drives with husband as we explore Tesla network
Susan

Re: Mop up chemo experiences

Posted: Thu Jul 05, 2018 6:49 pm
by heiders33
Congrats! I remember that 5th cycle being an absolute whammy. So glad that you are done! Go out and celebrate!