rp1954 wrote:If you are going to the European dose of Xeloda, be sure to ruthlessly weed out folic acid in your diet (regular bread, fortified grains, etc) and old style multivitamins. European Xeloda patients didn't have folic acid fortified foods. The extra toxicity is to you, rather than a cancer benefit. Folinic acid (leucovorin) or natural folates are useful. About 50% of patients have a lot worse toxicity due to folic acid combined with 5FU drugs. This is discussed more in the archives.
We actually built up a B multivitamin formula without any folic acid and added liver or liver spread for the natural folate and vitamins content for long term oral 5FU treatment. Liver helped "our" blood work a lot.
retiredteacher wrote:Susan - what is your Xeloda dose right now?
rp1954 wrote:2 TSB of liver (fresh, pate, or canned liverwurst) is the only iron and folate supplement we've used since dumping the commercial iron pills, after a month or two of immunochemo. Of course we use more vitamin C too, which also helps absorb iron from food.
We use(d) more detailed, high potency vitamin and nutraceutical mixes made from scratch at home rather than just a multivitamin. This way we can dump inferior or interfering parts and focus on good components at therapeutic doses.
Caat55 wrote:Mucousy diarrhea? This is my second, one last week too. Reading other posts this is normal. Freaky. Good news is I felt urge, could walk not run to toilet.
Caat55 wrote:This was not in my ileostomt but my butt. I felt like I needed to have a BM, and did.
I have read it happens but not how regularly. Any help out there?
Caat55 wrote:So you experienced it too? At least I know I can still feel it and control urge. I worry about that after reversal as tumor was pretty far down
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