Mop up chemo experiences

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Caat55
Posts: 590
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Tue Jan 29, 2019 11:17 pm

One more step today, removal of the port. I get sick every time I go anesthesia so when the vascular surgeon offer to do it with a local I bit. It is scary for sure and it hurts now but it would have anyway. I drove myself to and home again afterwards.
So good to have it gone, feel better in a few days I am sure.

Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

Caat55
Posts: 590
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Thu Mar 14, 2019 11:49 pm

I had my first colonoscopy and Ileostomy yesterday. Everything clean but I was diagnosed with radiation proctitis. What now. He did an argon gas caterazation but still filling weird. How does this impact my upcoming reversal? Anyone else ever experience anything like this? Help!
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

Eleda
Posts: 245
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Mop up chemo experiences

Postby Eleda » Fri Mar 15, 2019 10:02 am

Not sure what illeostomy proceedure u had done Susan????
I've tightening of the rectum where it was stitched and from radiation,,,, the plan is to stretch it during reversal :cry: :cry: :cry:
That should be fun with the new anslaght of dioreah after the reversal!!!!
Why not remove port at reversal???
I've asked for mine to b done then
ADELE
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Caat55
Posts: 590
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Sat Mar 16, 2019 9:49 pm

Hi Adele,
I had my first colonoscopy and an ileioscopy, tube through stone to check out what can’t be seen from below. I have two things, how lucky for me. Diversion colistic and radiation always proctitis, both irritations due to the treatments. The diversion colititus will go away after reversal, the protitus is more complicated but I got an argon gas cathetization will I was under. I am still uncomfortable, not sure if it was the procedure or the proctitis. Either way I had a busy day in our little town of Murphys, one of the biggest St. Patrick's Day celebrations in California. We have 2000 people in town and from one day grows by about 15000 to 20000. Started at 6:30 baking scones for volunteers and spent till noon doing odds and end, street closure, poring beer before heading into our winery. What a day. Not letting cancer, pain or anything mess up my days. Last year I struggled with giving change, managing the money due to chemo fingers, today back to normal. So grateful to keep moving forward.
How goes it with you? What is next?
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

Eleda
Posts: 245
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Mop up chemo experiences

Postby Eleda » Sun Mar 17, 2019 3:55 am

Jesus Susan, I think Uve nearly had every symptom possible on Ur journey!!! :evil:
Everyone's after care seems to be so different
I had a sigmoid after my radiation and
Endorectal rectal ultrasound.
A few DREs , Scan and had the anastomosis leek test
( gastrografin enema, )done.
Presurgical clinic was last Tues so Im. Good to go this Thursday,,,,
I have apparently ( tightening at anastomosis site which he will stretch during surgery ( not looking forward to that ) I was very uncomfortable after surgery "nerve pain" in my ass fir a long time after ( about 2 months) I had 2.5 to 3 cm only AV so I'm dreading this now along with trying to get points out there also ,,, but has to b done so not a choice......
I'm suffering with a kidney infection ATM and what I think is sicatia or another complication because of the shingles I a few months ago :evil: :evil: :evil: :evil:

Lower Back Pain with Sciatic Disorder Following L5 Dermatome ...

I'll look into it after my op because I don't want to delay it any further,,,,

That said it stops me doing nothing ( NSAIDS LOL)
WORK KIDS ETC

And like any true Irish woman will be out celebrating our patron saint today :D :D :D :D :D

Happy at Patrick day to u all from CORK

ADELE X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th


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