Mop up chemo experiences

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Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Tue Sep 04, 2018 10:24 pm

Thanks soccermom for the feedback, Susie and Mike too. I do go barefoot in the house, in the grass when I take my dog out to play on the soccer fields and at the beach. The scrunched up sock things is a great description. I also find it is worse in late afternoon evening. I am experimenting with keeping my feet up a little while every hour to see if that might help, like maybe a little edema, not enough to see but enough to cause the tingles.
It isn't so bad that when I am engaged in something like bocce ball game tonight it bothered me enough to stop but it was an issue when my husband and I were dancing at a B-day party.

S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

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O Stoma Mia
Posts: 1450
Joined: Sat Jun 22, 2013 6:29 am

.

Postby O Stoma Mia » Wed Sep 05, 2018 12:40 am

Soccermom2boys wrote:... Miss Molly is the best, she knows her medical stuff! :D

I agree. Totally.

And there are other people here who have noticed this, too:

MissMolly's Insightful Posts
https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=58013&p=456986&p=456986#p456986

Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Sun Sep 09, 2018 5:03 pm

I am a little more than six weeks out from last Oxil, infusion round. I have a CT scan coming up on Tuesday. Picked up the lovely barium smoothy which I drink Monday night and an our before scan. They are doing chest, abdomen and pelvis. Trying not to get anxious. It's going to be a long wait until I see the oncologist the following week. I wonder if the results will be posted up my portal, the MRI was, before I see doctor? Will I wait to read it or jump into it solo.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

NHMike
Posts: 1788
Joined: Fri Jul 21, 2017 3:43 am

Re: Mop up chemo experiences

Postby NHMike » Sun Sep 09, 2018 5:18 pm

Caat55 wrote:I am a little more than six weeks out from last Oxil, infusion round. I have a CT scan coming up on Tuesday. Picked up the lovely barium smoothy which I drink Monday night and an our before scan. They are doing chest, abdomen and pelvis. Trying not to get anxious. It's going to be a long wait until I see the oncologist the following week. I wonder if the results will be posted up my portal, the MRI was, before I see doctor? Will I wait to read it or jump into it solo.


My CT results were posted the same day (early morning CT). It was basically a very long pathology report on the portal which I read from start to finish as you'd expect. It may be that the pathology department wasn't very busy that day.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

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O Stoma Mia
Posts: 1450
Joined: Sat Jun 22, 2013 6:29 am

Re: Mop up chemo experiences

Postby O Stoma Mia » Mon Sep 10, 2018 3:23 pm

NHMike wrote:... My CT results were posted the same day (early morning CT). It was basically a very long pathology report on the portal which I read from start to finish as you'd expect. It may be that the pathology department wasn't very busy that day.

I don't understand what you are saying at all. A CT report is ordinarily only done by a radiologist and is based on an assessment of a CT scan image, but a pathology report is ordinarily done only by a pathologist and is based on the examination of a biopsy or biological specimen. What are you referring to here when you are talking about "My CT results" ? It's not clear to me at all. How can a Radiation Technologist issue a "very long pathology report"?

NHMike
Posts: 1788
Joined: Fri Jul 21, 2017 3:43 am

Re: Mop up chemo experiences

Postby NHMike » Mon Sep 10, 2018 5:30 pm

O Stoma Mia wrote:
NHMike wrote:... My CT results were posted the same day (early morning CT). It was basically a very long pathology report on the portal which I read from start to finish as you'd expect. It may be that the pathology department wasn't very busy that day.

I don't understand what you are saying at all. A CT report is ordinarily only done by a radiologist and is based on an assessment of a CT scan image, but a pathology report is ordinarily done only by a pathologist and is based on the examination of a biopsy or biological specimen. What are you referring to here when you are talking about "My CT results" ? It's not clear to me at all. How can a Radiation Technologist issue a "very long pathology report"?


Sorry, I should have said Radiologist.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Tue Sep 11, 2018 12:22 am

Enjoying a Berry Smoothie with barium sulfate. Delicious. Want this done and see results asap.
Praying for NED.
S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Mon Sep 17, 2018 7:19 pm

Just home from the oncologist. He walks in and tells I am no longer anemic. My answer, "well what about the cancer, what did the scan find?" He just looks at me an says "nothing." " So the cancer is gone?" Yes, he says and lets keep it that way. Just read his dication, according to the radiologist "there is no evidence of neoplasm" That's NED!!!!

Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

heiders33
Posts: 306
Joined: Sat Nov 04, 2017 11:08 am

Re: Mop up chemo experiences

Postby heiders33 » Mon Sep 17, 2018 7:32 pm

Congrats!
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, KRAS G12A
June-July 2017: 28 days of XEL/radiation
Sep 2017: laparoscopic LAR/loop ileostomy
Oct 2017 - February 2018: XELOX six rounds
Mar 2018: reversal
Apr 2018: CEA 2.1, normal blood counts
May 2018: CT liver spot
Aug 2018: Abnormal PET, CEA 2.4
Sep 2018: robotic and laparoscopic liver resection with HAI pump
Oct 2018: Clear CT and colonoscopy, CEA 1.7, begin six months FUDR and FOLFIRI

NHMike
Posts: 1788
Joined: Fri Jul 21, 2017 3:43 am

Re: Mop up chemo experiences

Postby NHMike » Mon Sep 17, 2018 8:24 pm

It’s the best of news.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Tue Sep 18, 2018 12:27 am

NED. Just got to read radiologist report. One down, more huddles ahead but savoring this a while.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

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Atoq
Posts: 318
Joined: Wed Oct 25, 2017 9:31 am

Re: Mop up chemo experiences

Postby Atoq » Tue Sep 18, 2018 1:07 am

That’s really good news! Congratulations!!

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: Mop up chemo experiences

Postby Caat55 » Tue Sep 18, 2018 9:49 pm

I think I have read the oncologist note a half a dozen times, radiology report is best read in a year. My mom and sister are so relieved,
we lost my dad and brother to cancer. S0 glad I had enough fight and certainly better care than my brother who died of colon cancer at 30.

S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018


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