Caat55 wrote:What I learned this time around:
Change bag day of infusion- hands don't work well to do day after.
Symptoms come on quicker and apparently stronger each round.
A fisted hand isn't this best way to do any work. Hard to type with a left hand and right index finger. I am good the with to text, teach students and patients but never expected to need myself.
Wear a scarf to cover nose and mouth, helps prevent breathing problems. Even a light pretty scarf does the trick and doesn't look bad.
Get a pot of hot water and add to cup as water cools down, room temperature just is too cold.
Okay... got to do try to drive. Thank goodness I have the Prius and not the manual transmission car today. I don't think my right hand could shift.
heiders33 wrote:I always changed my bag the morning of because I knew my hands couldn’t do it afterward. And the side effects did come on quicker and stronger each round. I’m so sorry you’re having a hard time. Keep a pair of gloves around and stay warm. Also it helped me to drink a lot of electrolytes the day before infusion, it helped with cramping. I know it’s cold comfort to say it’s only temporary. When I was in the middle of it I thought it would never end. But it did.
Caat55 wrote:... I forgot to eat today, so busy and a little overwhelmed...
O Stoma Mia wrote:Caat55 wrote:... I forgot to eat today, so busy and a little overwhelmed...
Remember ... the instructions for taking Xeloda are to take the pills 30 minutes after the morning meal and 30 minutes after the evening meal. Did you also forget to take the pills?
I think Xeloda needs food in the stomach in order to metabolize properly and to convert itself to 5FU-equivalent.
Caat55 wrote:...The nurse who did my chemo teaching gave me a pamphlet and Folic acid was contraindicated. I will check to see what else is mentioned. 1cup water, salt and baking soda gargle for mouth sores twice a day.
O Stoma Mia wrote:Caat55 wrote:...The nurse who did my chemo teaching gave me a pamphlet and Folic acid was contraindicated. I will check to see what else is mentioned. 1cup water, salt and baking soda gargle for mouth sores twice a day.
Caat55 wrote:I haven't forgotten the Xeloda yet. Quite a problem though, they only gave my husband the extra pills on Thursday. I didn't check, felt two containers and assumed it was both prescriptions but it was to different 150 prescriptions(different manufacturers). Now I am trying to get a refill as I won't have enough for tomorrow's morning dose.
I was part of a bike ride and had to be at the start at 6:15, even with two pairs of gloves fingers were unusable. Went home took a warm shower, dressed in leggings, a skirt, a heavy shirt and a second shirt under a coat and scarf and had pins and needles. Fortunately the Hamm Radio operator at the rest stop was great and helped me set up. My spot was in the sunshine, usually a problem but not this time. A layered up with sunscreen, wore a hat and felt good.
I made it all day, needed a nap when home.
The hardest thing continues to be the pebbles in my throat from the cool air.
Caat55 wrote: ... I see the oncologist on either Monday or Tuesday after infusion...
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