DebZ wrote:You're not alone! After a colon resection and six months Folfox, I thought I was done. At three-month checkup my CEA was up and I had mets on ovary and liver. More chemo, big operation, and waited another couple months. Another CEA jump and it was in both lungs. I've been stable for a while with lots of chemo (more than 50 rounds now), but CEA is climbing again. I'm glad to hear you've been NED! There are a few of us here that had mets to ovaries, although I was told not common at all.
Dh13 wrote:DebZ wrote:You're not alone! After a colon resection and six months Folfox, I thought I was done. At three-month checkup my CEA was up and I had mets on ovary and liver. More chemo, big operation, and waited another couple months. Another CEA jump and it was in both lungs. I've been stable for a while with lots of chemo (more than 50 rounds now), but CEA is climbing again. I'm glad to hear you've been NED! There are a few of us here that had mets to ovaries, although I was told not common at all.
I was posting because I could not find anyone who had only one met to one ovary. So, while I know metastasis to an ovary and other places is not uncommon, it appears uncommon to have only one detectable met to an ovary. I was not able to find any information from anyone who had one metastasis to one ovary.
nynessie wrote:New to all this. Diagnosed in late May with large masses on rectum and left ovary. Sigmoidoscopy showed almost completely filled sigmoid with cancer cells, and so was diagnosed with colon cancer. Put on FOLFOX for 12 weeks. Told there was not a cure, and the goal was to decrease the size of the masses and prevent further growth. Also told 1 in 5 people lived five years. I did not see the ONC for the first 4 treatments, and at the 4th asked the PA what would happen. He said if the rescan looked good surgeons might consider de-bulking surgery. Hmm.
It was not a fun time for me, and was completely depressed and upset for the first 4 treatments. My oncologist left the hospital, and I am assigned a new one - who tells me that he is not convinced this is a colon w/mets to ovary, and that it might be two cancers - ovarian and colon. Both, he says, very well might be curable. He has reached out to another hospital (larger) for second opinions, and I am to be referred to doctors there. I believe this will happen after the 6th chemo, and the re-scans are done.
I had my 5th treatment the next day and felt the fog lift. For the first time since May I was hopeful.
nynessie wrote:Update - Tuesday saw ONC and he said my case was going to be discussed at the interdisciplinary meeting. This would be with the doctors giving a 2nd opinion on if this is colon cancer with mets, or colon cancer and ovarian cancer. I asked if they would be waiting for the scan I would be having after the next chemo treatment (which was next day), and he said he thought so. He also said he was going to check with the doctor there again. Not a lot of information.
That afternoon I receive a call telling my "infection fighters" - yes, they used that term - were low and my treatment was being postponed until the next week. I asked if that also meant my scan would be postponed, and was told "believe so."
What really got me though, on Tuesday, was that I was to continue with the treatment (FOLFOX) until it "no longer was working." I had not heard that before, and said so. His response was that there isn't a cure for this, and that when FOLFOX no longer worked, then we'd change meds. To add to all that, he made it sound like surgery is not an option unless this is actually two different cancer.
I was devastated when I came home, and am quite angry today. This is not new information, but I was not told by the first ONC that surgery was totally not an option, only that we needed to see how well the FOLFOX worked. I feel like I've been given a life-sentence of chemo, and if the cancer doesn't kill, then the chemo will. I can't get my hopes up over something uncommon like getting two cancers at the same time. My husband tells me to banish these negative thoughts, and think positive, but he's not the one with this sentence hanging over his head.
Thanks for being here. It's going to be a long haul, and he's eventually going to come to terms with this, but in the meantime, it's a bit tough to remember not to talk about all of this with him.
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