2yrs NED

Please feel free to read, share your thoughts, your stories and connect with others!
AussieAssCancer
Posts: 248
Joined: Sat May 21, 2016 10:16 am

2yrs NED

Postby AussieAssCancer » Sun Mar 18, 2018 10:20 pm

2 years ago I woke up to the news that my ass-Cancer was successfully removed and I met my temporary stoma, Steve.

Unfortunately, later that day I would also OD on morphine, requiring Narcan/Naloxone later that day but that’s another story.

A few days later I would get my pathology results that I had had a complete response.

It sure has been one hell of a ride, and I can’t thank you lovely folks for being part of it and all your help.

That magical 5 year date is a little bit closer and far easier to see.

Big love,

AAC
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)
Feb ‘18: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

Swirdfish
Posts: 282
Joined: Sun Jun 19, 2016 3:57 am

Re: 2yrs NED

Postby Swirdfish » Sun Mar 18, 2018 11:11 pm

Well done... I'm approaching my first yearly scan.

How's the weather downunder.. Nice hey :)
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

User avatar
Robino1
Posts: 461
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: 2yrs NED

Postby Robino1 » Mon Mar 19, 2018 6:47 am

Wonderful! Here's to getting to that 5 year mark!! :mrgreen:
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

User avatar
CRguy
Posts: 9537
Joined: Sun Feb 10, 2008 6:00 pm

Re: 2yrs NED

Postby CRguy » Mon Mar 19, 2018 10:09 am

Hey buddy
congrats on the "deuce"
keep one foot ahead of the other
and keep headin' for the "fiver"

WORD !

Cheers
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

fumaros
Posts: 231
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: 2yrs NED

Postby fumaros » Mon Mar 19, 2018 2:03 pm

Congratulations. Every step matters, and every year brings you closer to that amazing word "Cured"
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

DarknessEmbraced
Posts: 3051
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 2yrs NED

Postby DarknessEmbraced » Tue Mar 20, 2018 5:47 pm

Congratulations!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Snoop, Yahoo [Bot] and 37 guests