Coming up 7 years where has time gone

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Coming up 7 years where has time gone

Postby Jimswife » Sun Mar 18, 2018 6:11 pm

Oct 2011 ..... my husband was diagnosed stage 3 colon cancer , I used to scour every online forum looking for stories of hope , I just thought when someone had cancer that was the beginning of the end .... I'm happy to report he's been cancer free ever since as far as we know according to scans ( they stopped after 5 yrs ) and regular cea testing ..... so really I just want to give back one of those stories of hope I desperately looked for almost 7 years ago , is he cured ? Who knows .... we would like to think so , I hope this helps who ever is reading in the same situation now , i know not every person and situation is the same but it can be beaten .
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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Re: Coming up 7 years where has time gone

Postby Teddybear » Sun Mar 18, 2018 6:30 pm

So happy for all of you. Thanks for the hopeful post and wishing you Ned forever :D
DX CC Feb 2018
Feb 2018 Lap sigmoind resection
0/14 nodes
no invasion
Margins clear
April 2018 Xeloda

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Joined: Sun Apr 16, 2006 4:09 pm

Re: Coming up 7 years where has time gone

Postby Lee » Sun Mar 18, 2018 6:53 pm

WOW! I remember when you were a newbie. Congratulations to your DH NED status.

Can you please update this info "For stage iii's, NED for how long now?" I believe you know the thread. It just might give hope to the next newbie looking for success stories!


Again congratulations!!!

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Posts: 246
Joined: Sat May 21, 2016 10:16 am

Re: Coming up 7 years where has time gone

Postby AussieAssCancer » Mon Mar 19, 2018 3:59 am

What a great milestone! Wonderful news indeed :D
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)
Feb ‘18: Clear CT (NED)

Blog: kickingrectalcancerintheassblog

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Re: Coming up 7 years where has time gone

Postby Robino1 » Mon Mar 19, 2018 6:50 am

Outstanding milestone! May your family continue to be blessed! :mrgreen:
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5
BRAF V600e

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Re: Coming up 7 years where has time gone

Postby CRguy » Mon Mar 19, 2018 10:12 am

Keep keepin' on homies !

Thanks for checking in with your positive update
Harmony along the way
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Posts: 157
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: Coming up 7 years where has time gone

Postby Thetoad » Mon Mar 19, 2018 1:38 pm

Thanks. Most encouraging!
Emergency extended rt hemi November 2013.
Complete blockage, small perforation.
Stage 2a.
22 Lymph nodes clear.
No bag.

Now on yearly appts and 6 monthly CEA tests.
Large incisional hernia repair with mesh Nov. 2014.
CEA 1.4 on 28/7/17
51months since surgery! (Nov.13, 2013.)
27/5/17. Gallbladder removed, open surgery.
Pleasing consultation Feb. 2017
CEA 1.7 on 16/11/17
Clear colonoscopy Jan. 2018 :)
Colorectal nurse pleased. Two more CEA tests and hopefully last appt in November, 2018.

Posts: 666
Joined: Sat Aug 17, 2013 5:46 pm

Re: Coming up 7 years where has time gone

Postby stu » Mon Mar 19, 2018 1:53 pm

Gulp .. I can’t believe that . How fantastic .
Hope your family is all well .
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

Posts: 653
Joined: Fri Feb 10, 2006 7:04 pm

Re: Coming up 7 years where has time gone

Postby Ron50 » Mon Mar 19, 2018 3:48 pm

Hugs Victoria, congratulations to you and Jim and your family , sometimes we do survive. Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

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Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Coming up 7 years where has time gone

Postby DarknessEmbraced » Tue Mar 20, 2018 5:46 pm

That's wonderful! :) Congratulations to you and your husband!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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