My questions and concerns are as follows:
- Should the Colorectal surgeon be doing the surgical procedure to remove the mass instead of the GI specialist? (I've been told that I should have a good Colorectal surgeon perform it by several people)
- If the surgeon doesnt want to do it, why would that be the case?
- Should I have a CT scan ordered now? Or after the mass is removed?
- Are there any other tests I should be doing?
I have no idea what I am doing here, so any advice/recommendations would be helpful. I guess it is possible that it is just a huge uncancerous growth?
From what you have said, it looks like you might have a 5cm pedunculated polyp, where the head of the polyp has become visibly cancerous but the cancer has not yet descended down to the stalk or to the root of the polyp. This is only a guess on my part. I am not a physician or a medical professional.
It is my guess that their strategy is to remove this large polyp by cutting it off at the base of the stalk, which they seem to think is OK, given that the biopsy of the stalk apparently didn't show any cancer. This procedure is called a "polypectomy" and it does not involve surgery to remove the section of the colon that has the polyp and the polyp root.
I am not at all sure that this would be the best strategy in these circumstances, but I can't say for certain since I have no expertise in this area. What I would be inclined to do would be to seek a second opinion at an NCI Designated Cancer Center, because they would have Board Certified colorectal surgeons who could assess the situation and determine the best way to remove the mass without dropping any cancerous tissue in the surrounding area. In the mean time, I think that they should be doing a CT scan to see if there is any obvious involvement in the nearby regional lymph nodes, or in other places like the liver or the lungs. They should also be doing a CEA tumor marker blood test before the "mass" is removed.
If you are in the Dallas area, there is an NCI Designated Cancer Center at the Harold C. Simmons Comprehensive Cancer Center at the University of Texas there:https://www.cancer.gov/research/nci-role/cancer-centers/find/utswsimmonshttp://www.utsouthwestern.edu/education/medical-school/departments/surgery/divisions/gi-endocrine/#colohttp://profiles.utsouthwestern.edu/profile/76004/craig-olson.html