Postby orlar » Wed Mar 14, 2018 8:15 pm
Hi All, I needed a little boost today as it was my 3rd round FOLFIRI + Avastin and will be scheduling a scan after the 4th round to see if it made a difference. I know it won't be NED, but maybe, just maybe, a first step in that direction. I asked my ONC before starting the current regiment about the good, bad and ugly on timelines. I don't know if most patients ask or not. I wanted to know so I could make the best decisions when the I get that news in a few weeks (good or ugly). Thus far my cancer is being described as aggressive, unresponsive and not typical. As I have not had good news from a scan yet, I too think about what options remain, such as clinical trials. It's so good to know though that a KRAS MSS patient can get to long term NED. I'm a glass half full kind, so hopefully we all will get to/remain NED. Thanks for letting me tag in and get a needed pep talk!
Larry
56yo male DX 5/17, Right Hemi colectomy 6/17
Stage 3c 12 of 21 LN
7/17-12/17 Folfox(no Oxi round 9-12)
12/17 liver/lung mets-Stage 4 MSS KRAS G13D
2/18 liver doubled to 8.5cm+new met, lung mets to 1.4cm, multi peri/omen
2/18-7/18 Folfiri+Avastin(no 5FU after C2)
4/18 mets shrinking
7/18 liver/lung mets growing, Folfiri stopped
10/18 In Clinical Trial
CEA 5/17-16.2, 12/17-16.1, 02/18-43.0, 3/18-16.9, 4/18-9.0, 5/18-5.5, 6/18-6.9, 7/18-7.8, 9/18-56