Emergency Room Trip

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mhf1986
Posts: 124
Joined: Sat Mar 11, 2017 8:30 pm
Location: near DC

Emergency Room Trip

Postby mhf1986 » Tue Mar 13, 2018 8:44 pm

Well that was fun...DH was complaining about shortness of breath Sunday evening. He also seemed warm. Temp showed 101.3 at 8:45 p.m. Up to 101.7 at 9:15...call dr. He says get to the emergency room and prepare to stay overnight. He called ahead and they saw us almost immediately. Temp over 102. Blood work, EKG, flu swab, chest xray...4 hours later and they don't have a cause. Gave him Tylenol and an antibiotic prescription and sent us home! I guess they never find the reason for the fever in some of these cases. Temp has never gone above 100 since. Given the sepsis and collapsed lungs during surgery in 2016, I am trying to be very mindful of anything "off."

Good news is all blood counts are much better than 10 days ago so oncologist wants to do treatment Thursday. It's been 4 weeks since the last one, it was 7 weeks before that because of high bilirubin. I don't like to think what's growing in between these sporadic infusions.

Thanks for listening,
M
Caregiver to DH, dx age 50, mets to liver/lungs, MSS, quad wild
10/16: left hemicolectomy w/perm. colostomy, CEA 114
11/16: port in, FOLFOX + Avastin; CEA down to 11 by 4/17
6/17: CEA 15, OX discontinued for now due to neuropathy
11/17: CEA 38, changed to CAPOX+A; CEA down to 29 in 12/17
1/18: CAPOX caused bilirubin of 4.5/bad hfs, back to FOLFOX+A
5/18: growth + ascites; 6.4 bilirubin too high for irinitican, start Vectibex
6/18: biliubin down to 1.6, ascites mostly gone

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Shana
Posts: 373
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Emergency Room Trip

Postby Shana » Tue Mar 13, 2018 10:23 pm

How scary! Glad to hear that his temp is down and hope everything is back to "normal" soon.

Take care of both of you!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

Caat55
Posts: 393
Joined: Sat Dec 23, 2017 6:01 pm

Re: Emergency Room Trip

Postby Caat55 » Tue Mar 13, 2018 11:55 pm

That must have been so frightening for you both. Home is so much better than a hospital, glad you didn't have to stay overnight.
S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18

mhf1986
Posts: 124
Joined: Sat Mar 11, 2017 8:30 pm
Location: near DC

Re: Emergency Room Trip

Postby mhf1986 » Thu Mar 15, 2018 5:56 pm

Infusion went fine today. Dr. ordered a CA 19-9 test today, first time for it. He normally just orders a CEA every month.
Caregiver to DH, dx age 50, mets to liver/lungs, MSS, quad wild
10/16: left hemicolectomy w/perm. colostomy, CEA 114
11/16: port in, FOLFOX + Avastin; CEA down to 11 by 4/17
6/17: CEA 15, OX discontinued for now due to neuropathy
11/17: CEA 38, changed to CAPOX+A; CEA down to 29 in 12/17
1/18: CAPOX caused bilirubin of 4.5/bad hfs, back to FOLFOX+A
5/18: growth + ascites; 6.4 bilirubin too high for irinitican, start Vectibex
6/18: biliubin down to 1.6, ascites mostly gone

NHMike
Posts: 1364
Joined: Fri Jul 21, 2017 3:43 am

Re: Emergency Room Trip

Postby NHMike » Fri Mar 16, 2018 10:32 am

Cold and flu season has been really rough - there's a lot of stuff out there and a lot of people have died of the flu this year. So no problem being careful when immuno-compromised on chemo. Glad things worked out.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

DarknessEmbraced
Posts: 3016
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Emergency Room Trip

Postby DarknessEmbraced » Tue Mar 20, 2018 5:50 pm

I'm sorry you and your husband went through that but I'm glad he's able to get his chemo!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


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