Early Age Onset CRC Summit: UPDATED for 2019

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heiders33
Posts: 328
Joined: Sat Nov 04, 2017 11:08 am

Early Age Onset CRC Summit: UPDATED for 2019

Postby heiders33 » Sun Mar 04, 2018 2:42 pm

The 4th annual Early Age Onset CRC Summit is happening in NYC at the end of April: http://www.coloncancerchallenge.org/about/eao-crc/

This looks to be a very interesting summit. My surgeon is attending as well as a man in my church who works in the field of CRC screening. I unfortunately will not be able to attend as I'll be in Bermuda that week for a much-needed vacation. 8) However, the session on additional possible causes of MSS young onset colorectal cancer looks especially interesting as it applies to my situation. Anyway, if you are in the NYC area, I recommend looking into this summit! It's put on by the Colon Cancer Challenge and is taking place on April 27-28.
36 year-old female
May 2017: Dx rectal cancer T3N2M0
MSS, KRAS G12D
6/17: 28 days chemorad
9/17: LAR/loop ileostomy
10/17 - 2/18: XELOX six rounds
3/18: reversal
5/18: CT liver spot, blood counts normal
8/18: Abnormal PET, CEA 2.4
9/18: liver resection/HAI pump
10/18: Clear CT/sigmoidoscopy
10/18 - 4/19: 6MO FUDR/5FU

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O Stoma Mia
Posts: 1464
Joined: Sat Jun 22, 2013 6:29 am

Re: Early Age Onset CRC Summit

Postby O Stoma Mia » Mon Mar 05, 2018 2:41 am

heiders33 wrote:The 4th annual Early Age Onset CRC Summit is happening in NYC at the end of April: http://www.coloncancerchallenge.org/about/eao-crc/

This looks to be a very interesting summit. My surgeon is attending as well as a man in my church who works in the field of CRC screening. I unfortunately will not be able to attend as I'll be in Bermuda that week for a much-needed vacation. 8) However, the session on additional possible causes of MSS young onset colorectal cancer looks especially interesting as it applies to my situation. Anyway, if you are in the NYC area, I recommend looking into this summit! It's put on by the Colon Cancer Challenge and is taking place on April 27-28.

Thanks for posting this important information. This conference looks like a very interesting event. Also, among the speakers in the conference there will be at least three ColonClub members on the program.

For persons unable to attend the conference, a brief summary of the basic issues of EAO-CRC can be appreciated by reading the following document:

Understanding Early Age Onset CRC
http://www.coloncancerchallenge.org/wp-content/uploads/2017/10/Endoeconomics_Uderstanding_Early_Age_Onset_CRC.pdf

... There’s been an over 50% increase in CRC for people age
20-49 since 1994, and that the trend is increasing. Also,
18% of all rectal cancers take place in people under the
age of 50. Over the next 10-12 years, that is projected to
rise to 25% — a dramatic statistic. This means one-quarter
of all rectal cancers will occur in people below the age in
which we screen for rectal cancers.
Ref: http://www.coloncancerchallenge.org/wp-content/uploads/2017/10/Endoeconomics_Uderstanding_Early_Age_Onset_CRC.pdf


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CRguy
Posts: 9696
Joined: Sun Feb 10, 2008 6:00 pm

Re: Early Age Onset CRC Summit

Postby CRguy » Mon Mar 05, 2018 1:01 pm

We will make this a sticky for a while so everyone has a chance to see it

Thanks for posting !

Cheers
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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O Stoma Mia
Posts: 1464
Joined: Sat Jun 22, 2013 6:29 am

Twitter Chat session #EAOCRC18

Postby O Stoma Mia » Wed Mar 07, 2018 8:47 am

Twitter Chat session #EAOCRC18

Discussion Topic: Early Age Onset Colorectal Cancer -- Rise in colorectal cancer in young adults
Tuesday, March 27, 1pm ET

Co-hosted by Colon Cancer Coalition, http://www.coloncancerchallenge.org/about/eao-crc
Last edited by O Stoma Mia on Wed Mar 28, 2018 12:51 am, edited 1 time in total.

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O Stoma Mia
Posts: 1464
Joined: Sat Jun 22, 2013 6:29 am

Early Age Onset CRC Summit

Postby O Stoma Mia » Mon Mar 26, 2018 11:04 pm

BUMP

heiders33 wrote:The 4th annual Early Age Onset CRC Summit is happening in NYC at the end of April: http://www.coloncancerchallenge.org/about/eao-crc/

This looks to be a very interesting summit. My surgeon is attending as well as a man in my church who works in the field of CRC screening. I unfortunately will not be able to attend as I'll be in Bermuda that week for a much-needed vacation. 8) However, the session on additional possible causes of MSS young onset colorectal cancer looks especially interesting as it applies to my situation. Anyway, if you are in the NYC area, I recommend looking into this summit! It's put on by the Colon Cancer Challenge and is taking place on April 27-28.

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O Stoma Mia
Posts: 1464
Joined: Sat Jun 22, 2013 6:29 am

EAO-CRC presentation by ColonClub member

Postby O Stoma Mia » Sun May 13, 2018 8:39 pm

Special presentation by Stacy Hurt (2018 "On the Rise" model)

EAO-CRC Presentation (VIDEO)

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O Stoma Mia
Posts: 1464
Joined: Sat Jun 22, 2013 6:29 am

Early Age Onset CRC Summit: UPDATE 2019

Postby O Stoma Mia » Mon Jan 07, 2019 7:28 am

EAO-CRC Summit 2019
Thursday, May 2, 2019, 7:30 am – 5:00 pm
Friday, May 3, 2019, 7:30 am – 12:00 pm
https://www.coloncancerchallenge.org/about/eao-crc/

Thursday, May 2, 2019 8:00 AM FRAMING THE CONVERSATION: STRATEGIC CHALLENGES IN CURRENT MEDICAL CARE THAT CONTRIBUTE TO YOUNG ADULT COLORECTAL CANCER (CRC) INCIDENCE AND MORTALITY.
.
  • Thursday, May 2 SESSION I: THE DIMENSIONS OF THE EAO-CRC PROBLEM: TARGET ITEM: ACCURATE, REGULAR, UP TO DATE MEASUREMENT OF KEY METRICS DESCRIBING THE EARLY AGE ONSET COLORECTAL CANCER PUBLIC HEALTH CRISIS.
  • Thursday, May 2 SESSION II: FAMILY HISTORY ASCERTAINMENT IN THE U.S. (ADDRESSING GAP 1) WHAT STEPS ARE NEEDED TO IMPROVE THE WELL DOCUMENTED LESS THAN OPTIMAL STATUS OF THIS SITUATION? WHAT IS OUR BEST INFORMATION ON THE DOCUMENTATION OF CANCER FAMILY HISTORY IN PRIMARY CARE? WHAT ARE THE KEY ELEMENTS REQUIRED FOR SUCCESS.
  • Thursday, May 2 SESSION III: EARLIEST POSSIBLE DIAGNOSIS AND TREATMENT THROUGH TIMELY RECOGNITION OF THE SYMPTOMS AND SIGNS OF YOUNG ADULT CRC (ADDRESSING GAP 2)
  • Thursday, May 2 SESSION IV: TIMELY, EFFECTIVE, QUALITY OF LIFE & FERTILITY PRESERVING STATE OF THE ART TREATMENT (ADDRESSING GAP 3)
  • Thursday, May 2 SESSION V: HOW DID THIS HAPPEN? INVESTIGATING THE CAUSES OF EARLY ONSET COLORECTAL CANCERS (EAO-CRC) (ADDRESSING GAP 4)
    .
  • Friday, May 3 SESSION VI: PALLIATIVE CARE: WHY EARLY IS BEST. (INCLUDING GUIDANCE, SUPPORT AND RESOURCES TO PATIENTS AND CAREGIVERS DURING THEIR TREATMENT JOURNEY/CONTINUUM OF CARE. (ADDRESSING GAP 5)
  • Friday, May 3 SESSION VII: EPIGENETICS AND ITS FUTURE ROLE IN THE DIAGNOSIS AND TREATMENT OF INDIVIDUALS MORE SPECIFICALLY AND ACCURATELY
  • Friday, May 3 CLOSING REMARKS INCLUDING POSTER SESSION AWARD PRESENTATION


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