no more cat scans

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no more cat scans

Postby helen098 » Fri Mar 02, 2018 4:11 pm

well i have reached another level of NED

my onc say i no longer need to have a yearly CAT scan.
for the past 3 or 4 years the insurance hasn't wanted to pay but i had some other weird condition (the lump after breast reduction surgery, breaking 2 toes on the same foot within 5 months) which after my onc wrote a strong letter they approved.

This time lucky no other major issues so the insurance won't approve it and the onc says it it not necessary.
I am happy and also a little scared to losing the safety net, i have to keep reminding myself that "normal" people don't get a scan every year. Some never get one :shock:

I will still see him every 6 months and the colorectal doc once a year. Last colonoscopy was 2016 and i had allready moved up to the next step (every 3 years) so i won't have another one will 2019

as my onc said "yes we have to live with uncertainties
but the risk of getting a recurrence after so many years is very remote"

another level completed in the crappy cancer game :D
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09

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Location: Florida

Re: no more cat scans

Postby Robino1 » Fri Mar 02, 2018 4:40 pm

Outstanding milestone!!!! Congratulations!! :D
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: no more cat scans

Postby Shana » Fri Mar 02, 2018 6:59 pm

Congratulations! What a remarkable milestone this is! :)
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

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Re: no more cat scans

Postby henry123 » Tue Mar 13, 2018 12:04 pm

It is inspiring. .

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Location: San Francisco, California

Re: no more cat scans

Postby lemonzinger » Tue Mar 13, 2018 1:44 pm

Congratulations! That is a wonderful milestone.
I understand how you feel about it being like letting go of a safety net.

To your health!
Rectal, dx 2013 (age 38)
Stage 3b T3N1M0
5 wks radiation w/ 5FU
LAR & temp ileo 1/2014 - 0 of 20 nodes
8 cycles FOLFOX - finished 6/2014
Ileo reversal 8/2014
slightly enlarged lymph nodes in original tumor area - stable since 2015
NED - clear scans 3/2018

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