Scanxiety

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Basil
Posts: 243
Joined: Thu Mar 16, 2017 12:33 pm

Re: Scanxiety

Postby Basil » Sat Mar 03, 2018 8:39 pm

Shana wrote:
Basil wrote:Before cancer (2017 dx) I had never taken an anti anxiety med before. For scanxiety or other random cancer issues, I lean on Xanax. It works, at least for me. Only issue is it makes me really tired about three hours later.


I have Ativan left over from all the anti nausea drugs I got last year. I never liked taking it at home but I did ask for it in the hospital because it helped me sleep. Sometimes I'd just like to have a couple of margaritas and get silly but I've avoided alcohol except for a few sips of champagne at my daughter's wedding :) What have you heard about occasional very moderate alcoholic drinking?


I drank liberally through treatment and had a complete response to six rounds of folfox. Probably not a good idea to go crazy but it wasn’t an issue for me.
40 y/o male, kids 6&9
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear

User avatar
Shana
Posts: 371
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Scanxiety

Postby Shana » Sat Mar 03, 2018 10:05 pm

Basil,

I would have drank more beforehand if I had any idea what I was going to experience last year! I had two bouts of severe colitis, couldn't even drink water and was on IV nutrition for about 6 weeks, then ended up with colitis induced blockage and a colostomy as my souveneir.

I think maybe it's finally time to indulge a bit, might help with that anxiety too :)

Cheers!

Shana
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

DarknessEmbraced
Posts: 3016
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scanxiety

Postby DarknessEmbraced » Sat Mar 10, 2018 2:53 pm

I hope you get good scans!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

User avatar
Shana
Posts: 371
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Scanxiety

Postby Shana » Sat Mar 10, 2018 6:03 pm

DarknessEmbraced wrote:I hope you get good scans!*hugs*



Thank you! Last scan showed more shrinkage but it's slow going. CEA slightly up but holding steady according to oncologist, she said not to stress over a small change. Next scan in June, I should have used "Livin' Scan to Scan" as my user name! :lol:

Hugs back attacha!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

benben
Posts: 259
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: Scanxiety

Postby benben » Sun Mar 11, 2018 4:17 pm

Shana wrote:
DarknessEmbraced wrote:I hope you get good scans!*hugs*



Thank you! Last scan showed more shrinkage but it's slow going. CEA slightly up but holding steady according to oncologist, she said not to stress over a small change. Next scan in June, I should have used "Livin' Scan to Scan" as my user name! :lol:

Hugs back attacha!


Tis good news on the shrinkage front Shana!
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
Granix given, Now Zarxio treatments every session.
Treatment 7 reduced to 75% OXI
Treatment 8-12 - NO OXI, just Luke and 5FU
Current - 12 treatments done, CBC good, CEA decreasing.
10/20/17 CT-SCAN - CLEAR! - NED


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