Looking into HIPEC

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Robino1
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Location: Florida

Looking into HIPEC

Postby Robino1 » Wed Feb 28, 2018 8:47 am

I tried to look up Skifletcher as that name was mentioned as to going through it and being successful. I can't find him in the search function. Would love to know who did his.

I'm trying to find the best surgeon to do HIPEC so I can consult to see if I am a candidate. Google search is not helping me much. I must be doing something wrong. I had tabs open to save them then my computer decided to update. On one of the updates, it lost all my tabs. I know, I should have saved them in favorites. Live (God I'm trying) and learn.

I'm in the USA so out of country is not an option. I am willing to travel within the US. I've come to the conclusion that oncologists don't necessarily like to transfer their patients to surgeons. Yeah, I'm a bit jaded right now.

I feel as if I'm at a crossroad and have no clue how to read the map.

Cleveland Clinic? I could stay with my kids in the Detroit area, they are about 2 hours from Cleveland.

So very lost in this maze...
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

KimT
Posts: 587
Joined: Sat Feb 20, 2010 8:53 pm

Re: Looking into HIPEC

Postby KimT » Wed Feb 28, 2018 9:55 am

Skifletch is no longer active in the board and hasn’t been for several years. However you can search him in the board. It may not have shown up if you searched skifletcher which is what you posted here. I don’t know anyone else that has had it done recently.
2/10 dx colon cancer
right hemicolectomy 3/19/10
Stage 2a 0/43 nodes
Lynch syndrome
3/14/10 colon resection/ removal of metal clips
Nov 11 dx ovarian cancer

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Robino1
Posts: 462
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Facebook Username: Robin.lawthers
Location: Florida

Re: Looking into HIPEC

Postby Robino1 » Wed Feb 28, 2018 10:00 am

KimT wrote:Skifletch is no longer active in the board and hasn’t been for several years. However you can search him in the board. It may not have shown up if you searched skifletcher which is what you posted here. I don’t know anyone else that has had it done recently.


Skifletch doesn't turn up any results either. Just an Error message.

Thank you anyway. :)
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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peanut_8
Posts: 2266
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: Looking into HIPEC

Postby peanut_8 » Wed Feb 28, 2018 10:20 am

Robino1,

Lois (bitchslapped) has a friend with cancer of the appendix, who had HIPEC late last year, somewhere in Southern California. If you contact her (BS), I'd bet she would be happy to share details with you.

Best Wishes,
peanut
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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Robino1
Posts: 462
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Facebook Username: Robin.lawthers
Location: Florida

Re: Looking into HIPEC

Postby Robino1 » Wed Feb 28, 2018 10:27 am

peanut_8 wrote:Robino1,

Lois (bitchslapped) has a friend with cancer of the appendix, who had HIPEC late last year, somewhere in Southern California. If you contact her (BS), I'd bet she would be happy to share details with you.

Best Wishes,
peanut


Thank you. :)

I do remember her friend and what she is going through. I was hoping for something closer to the Eastern part of the US. Will discuss California with hubby.
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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Robino1
Posts: 462
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Looking into HIPEC

Postby Robino1 » Wed Feb 28, 2018 10:29 am

Figured out why I couldn't find anything <insert facepalm here>. I was in the thread searching instead of out in the forum. :|

<double facepalm>
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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peanut_8
Posts: 2266
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: Looking into HIPEC

Postby peanut_8 » Wed Feb 28, 2018 10:42 am

There's Dr. Sugerbaker in WA, who does HIPEC. If I recall correctly (not always the case) he was one of the first to start doing the procedure. Not sure why BS's friend decided to go to SoCa, since they were closer to WA. I did a quick Google search and found HIPEC is available at Johns Hopkins. https://www.hopkinsmedicine.org/surgery ... hipec.html

Maybe that location would work better for you?

Best Wishes,
peanut
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

User avatar
Robino1
Posts: 462
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Looking into HIPEC

Postby Robino1 » Wed Feb 28, 2018 6:58 pm

Definitely closer!

Thank you again :)
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

jens22
Posts: 997
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: Looking into HIPEC

Postby jens22 » Wed Feb 28, 2018 11:12 pm

I remember him well and I know he did well and was cancer free at 6 years or more. It was Rosewell Park in Buffalo if I remember correctly. I know MKS ( Sloane) doesn't do it for colon ca.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 7 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 54 Mom of 3 boys.

jens22
Posts: 997
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: Looking into HIPEC

Postby jens22 » Wed Feb 28, 2018 11:17 pm

Found it....Dr kane at Roswell park Buffalo. Skifletch is a major success story.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 7 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 54 Mom of 3 boys.

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Robino1
Posts: 462
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Looking into HIPEC

Postby Robino1 » Thu Mar 01, 2018 6:50 am

jens22 wrote:Found it....Dr kane at Roswell park Buffalo. Skifletch is a major success story.



Thank you so much!!

Looks like you are too! :D
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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chrissyrice
Posts: 1170
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Looking into HIPEC

Postby chrissyrice » Thu Mar 01, 2018 3:08 pm

Emory Winship Cancer Institute in Atlanta GA does HIPEC
The surgeon is Dr. Charles Staley ... excellent doctor and hospital does over 100+ of these operations per year.
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

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Robino1
Posts: 462
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Facebook Username: Robin.lawthers
Location: Florida

Re: Looking into HIPEC

Postby Robino1 » Thu Mar 01, 2018 3:37 pm

chrissyrice wrote:Emory Winship Cancer Institute in Atlanta GA does HIPEC
The surgeon is Dr. Charles Staley ... excellent doctor and hospital does over 100+ of these operations per year.


Another Good lead! Thanks!!! :D
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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CRguy
Posts: 9593
Joined: Sun Feb 10, 2008 6:00 pm

Re: Looking into HIPEC

Postby CRguy » Thu Mar 01, 2018 6:53 pm

Robino1 wrote:Figured out why I couldn't find anything <insert facepalm here>. I was in the thread searching instead of out in the forum. :|

<double facepalm>

Don't you just hate it when that happens :shock: :oops: :mrgreen:

anyway in case you want to track more of Fletch
author=Skifletch, keyword= + HIPEC

I think these will contain all his personal posts and comments about HIPEC for you

Cheers and best wishes
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

debb
Posts: 161
Joined: Sun Dec 21, 2008 9:03 pm
Location: NJ

Re: Looking into HIPEC

Postby debb » Thu Mar 01, 2018 8:37 pm

Skifletch had hipec at Roswell...upstate NY? I had mine done at Mt Sinai in NYC with Dr Daniel Labow, an amazing surgeon and a compassionate and kind man.
Stage 3C, Dx at 42, mom of 4
Colon resection 7/08
Folfox 9/08-2/09
Met to right ovary, both ovaries removed 7/10
HIPEC 8/10
VATS 7/12, 2 nodes, right lung
10/14 3 lung nodes, Stivarga clinical trial
3/15-7/15 Folfiri & avastin for lung things
Break! One year of freedom
8/16 Folfiri & avastin..lung things again
Break! 10 months of freedom
1/18 rib mets, radiation, folfiri & avastin


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