CLean scan- about 23 months remission

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mymom
Posts: 1299
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

CLean scan- about 23 months remission

Postby mymom » Tue Feb 27, 2018 10:57 pm

I want to start by saying my heart breaks for those lost. I don’t come here much - mainly to give hope to others. As the old timers know mom was diagnosed at stage 4 May 2011. After several remissions and reoccurrences she reached her longest current remission of 23 months. Her most recent scan was last week. She also continues to be in remission for stage 1 breast cancer diagnosed may 2012. She is happy and living life. I know I am so very lucky to have my mom. I never thought that we would be here almost 7 years later. We are thankful for each day we are given.

Lisa
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: CLean scan- about 23 months remission

Postby NHMike » Wed Feb 28, 2018 5:49 pm

mymom wrote:I want to start by saying my heart breaks for those lost. I don’t come here much - mainly to give hope to others. As the old timers know mom was diagnosed at stage 4 May 2011. After several remissions and reoccurrences she reached her longest current remission of 23 months. Her most recent scan was last week. She also continues to be in remission for stage 1 breast cancer diagnosed may 2012. She is happy and living life. I know I am so very lucky to have my mom. I never thought that we would be here almost 7 years later. We are thankful for each day we are given.

Lisa


Very happy to hear it. It's a place we all want to be at.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: CLean scan- about 23 months remission

Postby juliej » Wed Feb 28, 2018 5:59 pm

Always good to hear from you, Lisa! I'm so happy your mom continues to do well! Twenty-three months is a real milestone. As I'm sure you know, every week, every month, every year she stays in the clear means increased odds of her staying that way permanently. And that's what I want for her most of all! Go, Lisa's mom, go!!! :D :D :D

I keep hoping we'll meet at 53rd one day.

Hugs to both of you!
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

mymom
Posts: 1299
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: CLean scan- about 23 months remission

Postby mymom » Mon Mar 12, 2018 3:42 pm

Thank you for your kind words.

Yes Julie- I can't believe we haven't met! do you want to message me your number and i will text you next time we will be there. I am thinking sometime in May.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023

User avatar
Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: CLean scan- about 23 months remission

Postby Shana » Tue Mar 13, 2018 1:04 am

Wishing your mom continued remission and NED forever!

Thank you for sharing good news and bringing hope to the forum! :)
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: CLean scan- about 23 months remission

Postby mariane » Tue Mar 13, 2018 1:55 pm

Congratulations! I am so happy for your mom and you:)
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

AppleTree
Posts: 267
Joined: Fri Mar 18, 2016 8:16 am

Re: CLean scan- about 23 months remission

Postby AppleTree » Tue Mar 13, 2018 6:31 pm

Remission for any 1 of us, gives the whole hope. Very happy for you and your family. Wonderful milestone!
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper R lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July/Oct PETs...CLEAR!

Caat55
Posts: 694
Joined: Sat Dec 23, 2017 6:01 pm

Re: CLean scan- about 23 months remission

Postby Caat55 » Tue Mar 13, 2018 11:57 pm

AppleTree wrote:Remission for any 1 of us, gives the whole hope. Very happy for you and your family. Wonderful milestone!


DITTO!!!
Do at 55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19, 5/20


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