CLean scan- about 23 months remission

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mymom
Posts: 1249
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

CLean scan- about 23 months remission

Postby mymom » Tue Feb 27, 2018 10:57 pm

I want to start by saying my heart breaks for those lost. I don’t come here much - mainly to give hope to others. As the old timers know mom was diagnosed at stage 4 May 2011. After several remissions and reoccurrences she reached her longest current remission of 23 months. Her most recent scan was last week. She also continues to be in remission for stage 1 breast cancer diagnosed may 2012. She is happy and living life. I know I am so very lucky to have my mom. I never thought that we would be here almost 7 years later. We are thankful for each day we are given.

Lisa
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16 NED

NHMike
Posts: 1693
Joined: Fri Jul 21, 2017 3:43 am

Re: CLean scan- about 23 months remission

Postby NHMike » Wed Feb 28, 2018 5:49 pm

mymom wrote:I want to start by saying my heart breaks for those lost. I don’t come here much - mainly to give hope to others. As the old timers know mom was diagnosed at stage 4 May 2011. After several remissions and reoccurrences she reached her longest current remission of 23 months. Her most recent scan was last week. She also continues to be in remission for stage 1 breast cancer diagnosed may 2012. She is happy and living life. I know I am so very lucky to have my mom. I never thought that we would be here almost 7 years later. We are thankful for each day we are given.

Lisa


Very happy to hear it. It's a place we all want to be at.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

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juliej
Posts: 2859
Joined: Thu Aug 05, 2010 12:59 pm

Re: CLean scan- about 23 months remission

Postby juliej » Wed Feb 28, 2018 5:59 pm

Always good to hear from you, Lisa! I'm so happy your mom continues to do well! Twenty-three months is a real milestone. As I'm sure you know, every week, every month, every year she stays in the clear means increased odds of her staying that way permanently. And that's what I want for her most of all! Go, Lisa's mom, go!!! :D :D :D

I keep hoping we'll meet at 53rd one day.

Hugs to both of you!
Juliej
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 7/13/2018, CEA<1

mymom
Posts: 1249
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: CLean scan- about 23 months remission

Postby mymom » Mon Mar 12, 2018 3:42 pm

Thank you for your kind words.

Yes Julie- I can't believe we haven't met! do you want to message me your number and i will text you next time we will be there. I am thinking sometime in May.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16 NED

User avatar
Shana
Posts: 399
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: CLean scan- about 23 months remission

Postby Shana » Tue Mar 13, 2018 1:04 am

Wishing your mom continued remission and NED forever!

Thank you for sharing good news and bringing hope to the forum! :)
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

mariane
Posts: 623
Joined: Sun Sep 13, 2015 6:16 pm

Re: CLean scan- about 23 months remission

Postby mariane » Tue Mar 13, 2018 1:55 pm

Congratulations! I am so happy for your mom and you:)
mom of now 9 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

AppleTree
Posts: 218
Joined: Fri Mar 18, 2016 8:16 am

Re: CLean scan- about 23 months remission

Postby AppleTree » Tue Mar 13, 2018 6:31 pm

Remission for any 1 of us, gives the whole hope. Very happy for you and your family. Wonderful milestone!
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper right lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July PET...CLEAR!

Caat55
Posts: 515
Joined: Sat Dec 23, 2017 6:01 pm

Re: CLean scan- about 23 months remission

Postby Caat55 » Tue Mar 13, 2018 11:57 pm

AppleTree wrote:Remission for any 1 of us, gives the whole hope. Very happy for you and your family. Wonderful milestone!


DITTO!!!
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds


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