Postby karaj » Wed Feb 28, 2018 11:57 pm
I'm very sorry that you and your wife are now a part of our little club.
I was diagnosed Stage III at 32 yrs old and Stage IV at 34 yrs old because of retroperitoneal mets. I went through FOLFOX (acupuncture and medical marijuana were the best complimentary treatments) and FOLFIRI. It is hard but it was worth it for me. My last chemo was over a year and a half ago and I'm just being watched now, my port even came out last week. I know it is likely to come back again, but I wouldn't change having fought to get to this NED place.
Keep your heads up, scream a bit, throw something, laugh when you can. No doctor can tell you what will definitely happen because we are all different. Sending you and yours love and light tonight.
Kara
36 y/o female, dx at 32
8/14 dx Stage IIIC, 10/30 lymph nodes
8/14-9/14: sigmoidoscopy, fertility preservation, port-a-cath
9/14 - 3/15: FOLFOX (allergic to oxaliplatin, underwent desensitization)
4/15: NED
1/16: dx Stage IV, recurrence in three lymph nodes behind abdomen
2/16: FOLFIRI
8/16: NED
8/17: NED, currently under no treatment, scans every 3 months
http://www.karaincancerland.com