My 35 year old wife got diagnosed with Stage IV colon cancer with peritoneal mets

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NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: My 35 year old wife got diagnosed with Stage IV colon cancer with peritoneal mets

Postby NHMike » Wed Feb 28, 2018 5:49 pm

I had my 4th infusion today of Oxaliplatin and it's rough stuff. Folfox or CapeOx is difficult for most people. I would look at the TIL trial mentioned before (with Celine) and maybe genomic tumor testing to see what gene mutation she is dealing with. The vast majority here are fighters in these kinds of situations but doing it long-term is difficult.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

karaj
Posts: 49
Joined: Mon Aug 18, 2014 10:17 pm
Location: Boston
Contact:

Re: My 35 year old wife got diagnosed with Stage IV colon cancer with peritoneal mets

Postby karaj » Wed Feb 28, 2018 11:57 pm

I'm very sorry that you and your wife are now a part of our little club.

I was diagnosed Stage III at 32 yrs old and Stage IV at 34 yrs old because of retroperitoneal mets. I went through FOLFOX (acupuncture and medical marijuana were the best complimentary treatments) and FOLFIRI. It is hard but it was worth it for me. My last chemo was over a year and a half ago and I'm just being watched now, my port even came out last week. I know it is likely to come back again, but I wouldn't change having fought to get to this NED place.

Keep your heads up, scream a bit, throw something, laugh when you can. No doctor can tell you what will definitely happen because we are all different. Sending you and yours love and light tonight.

Kara
36 y/o female, dx at 32
8/14 dx Stage IIIC, 10/30 lymph nodes
8/14-9/14: sigmoidoscopy, fertility preservation, port-a-cath
9/14 - 3/15: FOLFOX (allergic to oxaliplatin, underwent desensitization)
4/15: NED
1/16: dx Stage IV, recurrence in three lymph nodes behind abdomen
2/16: FOLFIRI
8/16: NED
8/17: NED, currently under no treatment, scans every 3 months
http://www.karaincancerland.com


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