Finally....some really great news!!!

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mpbser
Posts: 414
Joined: Wed Apr 19, 2017 11:52 am

Re: Finally....some really great news!!!

Postby mpbser » Thu May 24, 2018 5:20 am

My husband and I touched base in person yesterday about his appointment (I didn't see him all day on Tuesday when he went to Mass General in Boston). He said that his doctors told him how much they love him as a patient because he is always so upbeat and positive. Even when he got the bad news when the liver surgeon said he would need open surgery, he took it in stride. I remember how his oncologist had stressed in our very first meeting with him that a positive attitude has a big influence. They are extremely pleased with his NED status. Their encouraging, upbeat attitude sure does help. There is power in positive thinking!
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18

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Shana
Posts: 383
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Finally....some really great news!!!

Postby Shana » Thu May 24, 2018 3:18 pm

Congratulations on your wonderful news!

Power of positive thinking sounds like a great motto. I hope you both have a wonderful summer and celebrate and cherish every day onward! :D
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

Daniellabella
Posts: 35
Joined: Wed May 23, 2018 10:32 pm

Re: Finally....some really great news!!!

Postby Daniellabella » Thu May 24, 2018 3:57 pm

CONGRATS!!!

mpbser
Posts: 414
Joined: Wed Apr 19, 2017 11:52 am

Re: Finally....some really great news!!!

Postby mpbser » Mon Jun 04, 2018 4:10 am

My husband has decided to leave his port in. While he's positive that he "beat this" he is realistic. He doesn't want to have to go under again and have another one put in if he has to do chemo again. I want him to meet with his local oncologist to talk about the pros and cons of leaving a port in for a while. He also needs a routine flush, so I will call to schedule those back-to-back. I don't think that this is a decision he should make without talking to a doctor.
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18

MissMolly
Posts: 526
Joined: Wed Jun 03, 2015 4:33 pm
Location: Portland, Ore

Re: Finally....some really great news!!!

Postby MissMolly » Mon Jun 04, 2018 12:36 pm

mpbser:
I have had a port for close to 5 years (a double lumen power port) with no concerning repercussions. The original port was replaced due to a fibrin plug that did not resolve with clot-busting medication. I am not a cancer patient but rather a person with generally frail health due to broad endocrine failure. My port sits patiently in a use-as-needed mode. When my health takes a downturn, my port is accessed to provide needed IV medications. The port frees me from multiple needle sticks and infiltrated IV sites.

Any number of people with chronic conditions have long-standing ports. Treatments for auto-immune illnesses (Chron's and rheumatoid arthritis, as examples) often benefit from long-term ports.

I have my port flushed every 6 weeks, a simple process. I am petite/thin and do find that my port site can still be tender from time to time. But other than that, it causes me no distress. As the port is internally placed, there is no heightened risk of infection as would be the case with an external PICC line. I suspect that I will have a port for the remainder of my life.

I just want you to know keeping a port for a longer time frame after your husband’s active treatment does have a legitimate role.
Dear friend to Bella Piazza, former Colon Club member (NWGirl).
I have a permanent ileostomy and offer advice on living with an ostomy - in loving remembrance of Bella
I am on Palliative Care for broad endocrine failure + Addison's disease + osteonecrosis of both hips/jaw + immunosuppression. I live a simple life due to frail health.

mpbser
Posts: 414
Joined: Wed Apr 19, 2017 11:52 am

Re: Finally....some really great news!!!

Postby mpbser » Tue Jun 05, 2018 9:21 am

Thanks for the input. I checked this forum shortly before scheduling his port flush this morning. He and I hadn't talked yet about my concerns and now I see that I may as well not be concerned. Always a nice thing, to take a concern away :)
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18

Allen
Posts: 5
Joined: Fri Jun 01, 2018 2:29 pm
Facebook Username: Allen

Re: Finally....some really great news!!!

Postby Allen » Wed Jun 06, 2018 2:11 pm

Congrats and God Bless! I think it's encouraging for everyone to hear positive news.


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