Finally....some really great news!!!

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Shana
Posts: 333
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Finally....some really great news!!!

Postby Shana » Mon Feb 26, 2018 7:44 pm

Great news! Very happy for both of you!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh)
CT-Scan 9/17, 12/17, 3/18 Shrinkage of liver mets continues, no blockage
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA
CT scheduled for 5/11/18

fumaros
Posts: 231
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Finally....some really great news!!!

Postby fumaros » Tue Feb 27, 2018 10:20 am

That's amazing. I am very happy for you. It's great to come back from this.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

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LeonW
Posts: 335
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: Finally....some really great news!!!

Postby LeonW » Wed Feb 28, 2018 5:37 am

mpbser wrote:. . . not worried about leftover cancer that could turn into mets . . Super happy!


That's the way to do it !!
That normal life may return quickly
Congrats Leon
Dec 2012 - Colon Cancer MM 65yrs, 2 unresectable liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen 2/26 nodes (IVa T3N1bM1a) MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2x failed Portal Vein embolization
Oct 2013 - R liver resect 28 hosp days (liver failure, delirium, emboli, encephalopathy) pCR- all cancer gone
2014/15 - recovery; benign polyp
Apr 2016 - new town, new life
clean CTs and low (1.3/1.4) CEAs: 4x2014, 6x2015-17
next June 2018 w scopy
5yr mark in sight

mpbser
Posts: 375
Joined: Wed Apr 19, 2017 11:52 am

Re: Finally....some really great news!!!

Postby mpbser » Sat Mar 03, 2018 1:21 pm

Just finally getting back to this forum. It's been a hell of a week in my professional life!

jep -- the oncologist originally thought he would need 2 months chemo - liver surgery - then 4 months "mop up" chemo. But, that was when we thought that the spot on segement 5 could be cancerous and we also did not know how well he would respond to those 2 initial months of CAPEOX. Now, post-surgery, his oncologist does not recommend any more chemo.

They consider him "cured" for now. NED.

It's funny because I originally was sooooo anti-chemo and now I am left wondering -- are we sure this is the route to take???? My husband is following his doctor's recommendation and I'm counting my blessings, which these days are few and far between.
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18

mpbser
Posts: 375
Joined: Wed Apr 19, 2017 11:52 am

Re: Finally....some really great news!!!

Postby mpbser » Mon May 14, 2018 11:56 am

I have a few threads that I started on this forum and I chose this one to update (in the hope that I will be posting continued great news as time goes on). Husband goes to Mass General Hospital next week for his first scan (CT) since his liver surgery which was 2/28/18. I can't believe that was less than three months ago. It feels like ages. So much has happened in our lives over the past year or so that time is now becoming a blur.

Fingers crossed next week goes well. I don't think I can handle bad news at this time in my life.
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18

NHMike
Posts: 1201
Joined: Fri Jul 21, 2017 3:43 am

Re: Finally....some really great news!!!

Postby NHMike » Mon May 14, 2018 12:16 pm

mpbser wrote:I have a few threads that I started on this forum and I chose this one to update (in the hope that I will be posting continued great news as time goes on). Husband goes to Mass General Hospital next week for his first scan (CT) since his liver surgery which was 2/28/18. I can't believe that was less than three months ago. It feels like ages. So much has happened in our lives over the past year or so that time is now becoming a blur.

Fingers crossed next week goes well. I don't think I can handle bad news at this time in my life.


Hoping for the best for your husband. I hope life is back to normal for you guys these days.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

tater
Posts: 46
Joined: Wed Jul 19, 2017 5:53 pm

Re: Finally....some really great news!!!

Postby tater » Mon May 14, 2018 10:28 pm

First let me say great news sorry I’m just now reading your post.
Good luck on your CT scan I hope it goes well.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 LAR, Hysterectomy & External Nodes Removed W/ileostomy
CEA 1.5 12/30/17, 2.1 2/5/18
Clear CT and MRI on 2/5/2018

tater
Posts: 46
Joined: Wed Jul 19, 2017 5:53 pm

Re: Finally....some really great news!!!

Postby tater » Mon May 14, 2018 10:32 pm

mpbser wrote:Just finally getting back to this forum. It's been a hell of a week in my professional life!

jep -- the oncologist originally thought he would need 2 months chemo - liver surgery - then 4 months "mop up" chemo. But, that was when we thought that the spot on segement 5 could be cancerous and we also did not know how well he would respond to those 2 initial months of CAPEOX. Now, post-surgery, his oncologist does not recommend any more chemo.

They consider him "cured" for now. NED.

It's funny because I originally was sooooo anti-chemo and now I am left wondering -- are we sure this is the route to take???? My husband is following his doctor's recommendation and I'm counting my blessings, which these days are few and far between.



My wife had such a similar thing happen to her. We thought she would have the full 12 rounds of folfox plus avistan but after surgery she had such clear margins and only two positive nodes with great response from the radiation and first six rounds of chemo they decided that more chemo was not needed. She was happy i was nurveous. I wanted an insurance policy so to speak but I wasn’t the one being poisoned.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 LAR, Hysterectomy & External Nodes Removed W/ileostomy
CEA 1.5 12/30/17, 2.1 2/5/18
Clear CT and MRI on 2/5/2018

mpbser
Posts: 375
Joined: Wed Apr 19, 2017 11:52 am

Re: Finally....some really great news!!!

Postby mpbser » Tue May 15, 2018 5:35 am

Thanks, Mike and tater.

Tater, glad to know that my husband isn't alone in the recommendation to not do "mop up" chemo.
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18


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