Finally....some really great news!!!

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
Shana
Posts: 397
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Finally....some really great news!!!

Postby Shana » Mon Feb 26, 2018 7:44 pm

Great news! Very happy for both of you!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

fumaros
Posts: 231
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Finally....some really great news!!!

Postby fumaros » Tue Feb 27, 2018 10:20 am

That's amazing. I am very happy for you. It's great to come back from this.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

User avatar
LeonW
Posts: 345
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: Finally....some really great news!!!

Postby LeonW » Wed Feb 28, 2018 5:37 am

mpbser wrote:. . . not worried about leftover cancer that could turn into mets . . Super happy!


That's the way to do it !!
That normal life may return quickly
Congrats Leon
Dec 2012 - 7 cm mass MM @65yrs, 2 unresect liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen, 2/26 nodes, IVa T3N1bM1a, MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2x failed Portal Vein embolization
Oct 2013 - R liver resect 28 hosp days (delirium, liver failure, emboli, encephalopathy) pCR - cancer gone
2014/15 - recovery/benign polyp
2016 - new town, new life
clean CTs and (1.3-1.4) CEAs: 4x2014, 6x2015-17, 1x2018
June 2018 - 2 polyps, 5yr survivor

mpbser
Posts: 430
Joined: Wed Apr 19, 2017 11:52 am

Re: Finally....some really great news!!!

Postby mpbser » Sat Mar 03, 2018 1:21 pm

Just finally getting back to this forum. It's been a hell of a week in my professional life!

jep -- the oncologist originally thought he would need 2 months chemo - liver surgery - then 4 months "mop up" chemo. But, that was when we thought that the spot on segement 5 could be cancerous and we also did not know how well he would respond to those 2 initial months of CAPEOX. Now, post-surgery, his oncologist does not recommend any more chemo.

They consider him "cured" for now. NED.

It's funny because I originally was sooooo anti-chemo and now I am left wondering -- are we sure this is the route to take???? My husband is following his doctor's recommendation and I'm counting my blessings, which these days are few and far between.
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18
5/18 NED

mpbser
Posts: 430
Joined: Wed Apr 19, 2017 11:52 am

Re: Finally....some really great news!!!

Postby mpbser » Mon May 14, 2018 11:56 am

I have a few threads that I started on this forum and I chose this one to update (in the hope that I will be posting continued great news as time goes on). Husband goes to Mass General Hospital next week for his first scan (CT) since his liver surgery which was 2/28/18. I can't believe that was less than three months ago. It feels like ages. So much has happened in our lives over the past year or so that time is now becoming a blur.

Fingers crossed next week goes well. I don't think I can handle bad news at this time in my life.
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18
5/18 NED

NHMike
Posts: 1549
Joined: Fri Jul 21, 2017 3:43 am

Re: Finally....some really great news!!!

Postby NHMike » Mon May 14, 2018 12:16 pm

mpbser wrote:I have a few threads that I started on this forum and I chose this one to update (in the hope that I will be posting continued great news as time goes on). Husband goes to Mass General Hospital next week for his first scan (CT) since his liver surgery which was 2/28/18. I can't believe that was less than three months ago. It feels like ages. So much has happened in our lives over the past year or so that time is now becoming a blur.

Fingers crossed next week goes well. I don't think I can handle bad news at this time in my life.


Hoping for the best for your husband. I hope life is back to normal for you guys these days.
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18

tater
Posts: 62
Joined: Wed Jul 19, 2017 5:53 pm

Re: Finally....some really great news!!!

Postby tater » Mon May 14, 2018 10:28 pm

First let me say great news sorry I’m just now reading your post.
Good luck on your CT scan I hope it goes well.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 LAR, Hysterectomy & External Nodes Removed W/ileostomy
CEA 1.5 12/30/17, 2.1 2/5/18
Clear CT and MRI on 2/5/2018

tater
Posts: 62
Joined: Wed Jul 19, 2017 5:53 pm

Re: Finally....some really great news!!!

Postby tater » Mon May 14, 2018 10:32 pm

mpbser wrote:Just finally getting back to this forum. It's been a hell of a week in my professional life!

jep -- the oncologist originally thought he would need 2 months chemo - liver surgery - then 4 months "mop up" chemo. But, that was when we thought that the spot on segement 5 could be cancerous and we also did not know how well he would respond to those 2 initial months of CAPEOX. Now, post-surgery, his oncologist does not recommend any more chemo.

They consider him "cured" for now. NED.

It's funny because I originally was sooooo anti-chemo and now I am left wondering -- are we sure this is the route to take???? My husband is following his doctor's recommendation and I'm counting my blessings, which these days are few and far between.



My wife had such a similar thing happen to her. We thought she would have the full 12 rounds of folfox plus avistan but after surgery she had such clear margins and only two positive nodes with great response from the radiation and first six rounds of chemo they decided that more chemo was not needed. She was happy i was nurveous. I wanted an insurance policy so to speak but I wasn’t the one being poisoned.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 LAR, Hysterectomy & External Nodes Removed W/ileostomy
CEA 1.5 12/30/17, 2.1 2/5/18
Clear CT and MRI on 2/5/2018

mpbser
Posts: 430
Joined: Wed Apr 19, 2017 11:52 am

Re: Finally....some really great news!!!

Postby mpbser » Tue May 15, 2018 5:35 am

Thanks, Mike and tater.

Tater, glad to know that my husband isn't alone in the recommendation to not do "mop up" chemo.
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18
5/18 NED

mpbser
Posts: 430
Joined: Wed Apr 19, 2017 11:52 am

Re: Finally....some really great news!!!

Postby mpbser » Tue May 22, 2018 5:30 pm

Scan results in. ALL CLEAR! Doctors want him to come back in six months for next scan. Husband wants to have port removed. Very happy day.
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18
5/18 NED

Lee
Posts: 5621
Joined: Sun Apr 16, 2006 4:09 pm

Re: Finally....some really great news!!!

Postby Lee » Tue May 22, 2018 6:58 pm

Congratulations on your DH residing in NEDville.

I hope your professional life is going better.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

NHMike
Posts: 1549
Joined: Fri Jul 21, 2017 3:43 am

Re: Finally....some really great news!!!

Postby NHMike » Wed May 23, 2018 6:42 am

mpbser wrote:Scan results in. ALL CLEAR! Doctors want him to come back in six months for next scan. Husband wants to have port removed. Very happy day.


That is great news. I remember a good chunk of your ordeal and can empathize as you're in my neck of the woods and use MGH. The port removal will be a big psychological milestone. Both of you can get back to almost normal (with the surveillance stuff - but not very often).
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18

mpbser
Posts: 430
Joined: Wed Apr 19, 2017 11:52 am

Re: Finally....some really great news!!!

Postby mpbser » Wed May 23, 2018 9:26 am

Thanks, Lee and NHMike. Now I just anxiously wait a month to discuss my own test results with my doctor. Getting old really bites!
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
Liver left hepatectomy seg 4 1/31/18
5/18 NED

NHMike
Posts: 1549
Joined: Fri Jul 21, 2017 3:43 am

Re: Finally....some really great news!!!

Postby NHMike » Wed May 23, 2018 9:35 am

mpbser wrote:Thanks, Lee and NHMike. Now I just anxiously wait a month to discuss my own test results with my doctor. Getting old really bites!


I recall that you had some medical stuff to deal with but I don't think that it was cancer. Still, there are a lot of other things that can happen that are problems too.

BTW, I recommend tree nuts (everything but peanuts) to help reduce the chances of recurrence for your husband.
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18

User avatar
LPL
Posts: 410
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Finally....some really great news!!!

Postby LPL » Thu May 24, 2018 3:26 am

mpbser,
So good to hear your ’clean scan’ news :D
Big congratulations !!!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: betsydoglover, Foreveryoung, JP654321, Yahoo [Bot] and 43 guests