I was Dx with Stage IV (with significant liver mets affecting all lobes) sigmoid colon cancer in Mar 2017 and have just finished my treatments in early Dec 2017. My CEA was at 2.5 in Jun 2017 before liver resection (x2 times, one for each lobe) and after that it went further down to 1.5 and stayed that way until now. My last PET scan was done in Jan 2018 and I was NED with 2 stable nodules in my lung suspected to be granuloma (please see my signature for details). The doctor who did my liver resection told me I have 60% chance of having a recurrence and reminded me not to freak out because a lot of people just needed VATs or RFA or something to remove small mets if their locations are not bad. My oncologists are keeping watchful eyes on my bloodwork and reminded me to stay positive.
I have been on this forum since diagnosis and have seen quite a lot of people's signatures said they are Stage IV and currently NED. I would love to hear from you especially on the several questions here:
1. Anybody who has had a recurrence (or more) but didn't need chemo? Just surgical removal of the mets?
2. Anybody who has had no
recurrence at all, or anybody you know had no recurrence? The doctor kept telling me I have 40% chance of having no recurrence but I don't see that many cases here, may be they just don't bother report back?
3. I saw a few of you shared here the chance of recurrence or a complete cure depends on a few factors (like age, any chronic disease, clear margin from surgeries, lifestyle etc.). My doctors don't really agree with this kind of "formula" of estimating chance of any direction this disease takes
, what's your view on this?
4. I saw a lot of you have HAI pump done, how's the feeling of having chemo pumped to your liver? Are the side effects as bad as FOLFOX? (I was very blessed to have gone through 13 rounds of FOLFOX without any major neuropathy problems, now almost all gone
5. Those at NEDville already, is there a special diet or advice you can share to increase chance of staying in NEDville for longer? I heard baby aspirin, curcumin, no meat, antioxidants, anything else?
I know I have to live life as if recurrence isn't even a topic, but I am afraid the happier I am now, the harder I will fall if (knock on wood) it comes back, so I want to be prepared mentally.
Thank you so much for your help!!!