Mr Ziggy has passed away

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Zig2017
Posts: 139
Joined: Tue Sep 26, 2017 12:26 pm

Mr Ziggy has passed away

Postby Zig2017 » Sat Feb 17, 2018 8:57 am

Please add Mr Ziggy. He was my wonderful husband and friend and loved by so many people. He went home to his Lord yesterday 2/16/18 at 1:10 pm at home. He had been in the hospital but waited until he got home to pass. I will miss him so much!
Hubby stage 3C June 2017
MSS BRAF Mutation
18 LN positive
Adenosquamous CC
12 FOLFOX
Right Hemicolectomy
11/08/17 numerous nodules and lymph nodes throughout chest and abdomen. Stage IV.
11/2017 moved care to Sloan clinical trial for BRAF mutation
1/30/18 off clinical trial
2/2/18 one dose of Irinotecan
2/5/18 Hospitalization and hospice
2/16/18 came home from hospital and went home to his Lord at 1:10 pm

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Mr Ziggy has passed away

Postby Robino1 » Sat Feb 17, 2018 2:05 pm

Reposting

Mrs. Ziggy,

Your husband passing has hit me harder than any of the others for some reason. That was so fast! My heart hurts for you. I can't seem to stop crying.

May you be blessed with the knowledge that he deeply loves you.

Oh GOD I hate this disease.

All my love to you.

PS: my darling husband has passed along his condolences also. He is my rock just as you were Mr. Ziggy's rock.
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

Lee
Posts: 6086
Joined: Sun Apr 16, 2006 4:09 pm

Re: Mr Ziggy has passed away

Postby Lee » Sat Feb 17, 2018 6:11 pm

(((Mrs. Ziggy)))

Please accept my condolences on the passing of your husband. My thoughts and prays are with you and your family.

There is a thread "New Thread For Loved Ones Left Behind Ongoing" You might want to check it out.

viewtopic.php?f=1&t=46183&hilit=those+left+behind

Again I am so sorry for your loss.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: Mr Ziggy has passed away

Postby SweetC80 » Sat Feb 17, 2018 9:54 pm

I’m so sorry for your loss. My thoughts and prayers are with you.
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

DebZ
Posts: 83
Joined: Fri Nov 14, 2014 9:01 pm
Facebook Username: Bulc

Re: Mr Ziggy has passed away

Postby DebZ » Sat Feb 17, 2018 10:54 pm

I'm so very sorry for your loss. We all mourn with you as yet another member is taken from us. Please know you're in my thoughts.
48 @ diagnosis Sept 2014
MSS; Kras mutant G12D
Oct 2014: right hemicolectomy
Dec 2014-May 2015: Folfox
June 2015: clean scans
Sept 2015: scans reveal ovarian mass and liver met; Folfiri
Jan 2016: liver wedge resection and hysterectomy
April 2016: multiple lung mets; Folfiri+Avastin
June 2017: lung mets growing; switch to Folfox+Avastin
Jan-April 2018: dropped oxali; CEA rising
May 2018: back on Folfox+Avastin, add pulse steroid treatment to get platelet count up (continuously in 50s)

Zig2017
Posts: 139
Joined: Tue Sep 26, 2017 12:26 pm

Re: Mr Ziggy has passed away

Postby Zig2017 » Sat Feb 17, 2018 11:21 pm

I wasn’t shocked but sorrowful because I’ll miss the faces he used to make. He cracked me up! His last coherent words to me a couple of days before was “ I adore you”. He was a thoughtful man who always tried to help people. The kick in the ass is his wake is on my birthday. But he has started a new life in Heaven and I’ll see him again. It’s not goodbye, it’s I’ll see you later.
Hubby stage 3C June 2017
MSS BRAF Mutation
18 LN positive
Adenosquamous CC
12 FOLFOX
Right Hemicolectomy
11/08/17 numerous nodules and lymph nodes throughout chest and abdomen. Stage IV.
11/2017 moved care to Sloan clinical trial for BRAF mutation
1/30/18 off clinical trial
2/2/18 one dose of Irinotecan
2/5/18 Hospitalization and hospice
2/16/18 came home from hospital and went home to his Lord at 1:10 pm

hawkowl
Posts: 129
Joined: Sun Dec 14, 2014 5:29 am
Location: MN/FL

Re: Mr Ziggy has passed away

Postby hawkowl » Sun Feb 18, 2018 2:30 am

I'm so very sorry for your loss :-(
Dx 12/2014 T3N2MX (distant LPLN) low rectal
12/2014-4/2015: FOLFOX (8 cycles)
4/2015-6/2015: 28 cycles of chemoradiation with xeloda, SBRT
8/2015: Robotic APR with iliac node dissection; path showed ypT0,ypN0 (complete pathological response).
11/2015 scans clear, CEA 2.1
11/2015 parastomal hernia repair
3/2016 CEA 1.7, scans stable...
6/2020 5 years of normal CEA and stable scans
Now dealing with pyoderma gangrenosum.
Totally disabled due to oxaliplatin induced neuropathy and dysautonomia

NHMike
Posts: 2478
Joined: Fri Jul 21, 2017 3:43 am

Re: Mr Ziggy has passed away

Postby NHMike » Sun Feb 18, 2018 7:34 am

I'm crushed to hear this as I know how hard you worked to get him better and how much he went through in the process. I hope that you can heal and recover through this trial.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

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susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Mr Ziggy has passed away

Postby susie0915 » Sun Feb 18, 2018 4:44 pm

I am so sorry to hear this. Prayers for you and your family.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

rachel2017
Posts: 33
Joined: Tue Oct 17, 2017 9:17 pm

Re: Mr Ziggy has passed away

Postby rachel2017 » Sun Feb 18, 2018 5:59 pm

Mrs Ziggy, I am very sorry for your loss! Sending my love to you and your family! RIP :cry:
DM 63. 11/16 colonoscopy (high dysplasia)
1/17 laparoscopic,6.5X4X3cm. Stage II. No chemo.
6/17 abdo pain. CEA 52. CT paracolic nodule 1.4X1.9cm
7/17 pet CT. Ascending colon 1.4X1.1cm SUV 2.4; midline scar 0.9cm SUV3.1
KRAS G12D
8/16/-9/26/17 Folfox 4 rounds
10/6/17 CT numorous perio seedings. ascending one 7cm; midline one 5.7cm.
10/16-1/5/2018 Folfox/avastin; 1/12/18 CT reviewed Slight progression
Stop chemo

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henry123
Posts: 212
Joined: Sun Oct 08, 2017 3:25 am

Re: Mr Ziggy has passed away

Postby henry123 » Sun Feb 18, 2018 8:39 pm

Mrs Ziggy
Deepest Condolences.
May God give you and your family strength to accept what is God's will.
46yo M msi-high Lynch +ve
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes ,onset of multi nodules in liver
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver norm
1/18 3.6
4/18 2
Aspirin start
6/18 1.5 CT clear
12/18 1.1 NED
6/19 .9 CT clear
1/20 NED Opdivo stop

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ocstacy
Posts: 264
Joined: Mon Jun 19, 2017 11:29 pm
Facebook Username: stacy

Re: Mr Ziggy has passed away

Postby ocstacy » Mon Feb 19, 2018 3:47 am

I am very sorry for your loss. May he rest in peace. Hugs and love-
Caregiver/daughter to dear mother age 78, dx 5/09/17 because of me!! :wink:
Rectal CA Stage 3 low-grade adenocarcinoma- 6 cm
Neoadjuvant start 7/10/17 ended 08/16/17
3D Lap. surgery @ Keck USC, Dr. Sang Lee 10/17/17 temp ileostomy
11/1 hospitalized abscess/hernia - home 11/06/17 antibiotics
NO LYMPHS INVOLVED! NEAR PATHOLOGICAL RESPONSE! YAY! :shock:
Took her last chemo med 05/10/18! Ileo reversal 07/24/18
1st BM after reversal 07/25/18 Anal Fissure 8/15/18
Me:1st Colonoscopy age 38. 08/17 Benign polp.

orlar
Posts: 65
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: Mr Ziggy has passed away

Postby orlar » Mon Feb 19, 2018 6:42 pm

Mrs. Ziggy, my heart goes out to you. My prayers to you, family and friends.
56yo male DX 5/17, Right Hemi colectomy 6/17
Stage 3c 12 of 21 LN
7/17-12/17 Folfox(no Oxi round 9-12)
12/17 liver/lung mets-Stage 4 MSS KRAS G13D
2/18 liver doubled to 8.5cm+new met, lung mets to 1.4cm, multi peri/omen
2/18-7/18 Folfiri+Avastin(no 5FU after C2)
4/18 mets shrinking
7/18 liver/lung mets growing, Folfiri stopped
10/18 In Clinical Trial
CEA 5/17-16.2, 12/17-16.1, 02/18-43.0, 3/18-16.9, 4/18-9.0, 5/18-5.5, 6/18-6.9, 7/18-7.8, 9/18-56

fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Mr Ziggy has passed away

Postby fumaros » Tue Feb 20, 2018 9:06 am

It is tragic what happened to you and your husband. I am really sorry for your loss.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

Zig2017
Posts: 139
Joined: Tue Sep 26, 2017 12:26 pm

Re: Mr Ziggy has passed away

Postby Zig2017 » Tue Feb 20, 2018 9:50 am

Fumaros I agree! But it was a fast moving cancer with some unusual characteristics to it. Hard to get on top of this thing. I definitely feel it’s tragic that so many people die of cancer in 2018. I wish there was a way to keep people from getting it in the first place. A vaccine or something would be nice. Maybe someday...
Hubby stage 3C June 2017
MSS BRAF Mutation
18 LN positive
Adenosquamous CC
12 FOLFOX
Right Hemicolectomy
11/08/17 numerous nodules and lymph nodes throughout chest and abdomen. Stage IV.
11/2017 moved care to Sloan clinical trial for BRAF mutation
1/30/18 off clinical trial
2/2/18 one dose of Irinotecan
2/5/18 Hospitalization and hospice
2/16/18 came home from hospital and went home to his Lord at 1:10 pm


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