Liver question

Please feel free to read, share your thoughts, your stories and connect with others!
Lydia666
Posts: 672
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Liver question

Postby Lydia666 » Wed Feb 14, 2018 7:48 pm

Hello,
I was wondering if those who had liver cancer or liver mets had any symptoms before diagnosis or you just found out at scanning.

Thanks!!
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
July 2016- ileo reversal
August 2016- DCIS
Feb 24,2017- prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Mom to 4 & 7 yrs kids (6 mo. & 3.5 yrs at diagnosis in June 2015)

Joannerogers
Posts: 259
Joined: Tue Jun 16, 2015 4:50 pm

Re: Liver question

Postby Joannerogers » Wed Feb 14, 2018 8:11 pm

I only had a few non specific symptoms:
Itchy skin, slight annoying pain under my right rib cage if I laid on my left side, and the skin on was chest was always red like a sunburn but didn't hurt. I had actually asked about the discoloration and my doc said it was probably sun damage.
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

User avatar
LeonW
Posts: 347
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: Liver question

Postby LeonW » Thu Feb 15, 2018 6:04 am

Hi Lydia

I had no symptoms whatsoever, when a some blood drops in stool set of colonoscopy.
For the rest see my signature - it all landed well.

Why do you ask? Are you worried there's something in you liver?
L
Dec 2012 CC (7 cm mass), 2 unresect liver mets, CEA 41.8 (MM @65yrs)
Jan 2013 colectomy @ spleen, 2/26 nodes IVa T3N1bM1a MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2x failed PV embolization
Oct 2013 - R liver resect 28 hosp days (delirium, liver failure, emboli, encephalopathy) pCR - no cancer cells
2014/15 - recovery; scopy finds polyp
2016 - new town, new life
June 2018 - 5 yr mark, 2 polyps
clean CTs and (1.3-1.4) CEAs: 4x2014, 6x2015-17, 1x2018; next June 2019

SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: Liver question

Postby SweetC80 » Thu Feb 15, 2018 9:57 am

My mother never had symptoms of the cancer in her liver until the very end when she had serious clotting issues. But even with most of her liver cancerous she didn't have pain or jaundice and most of her liver levels were in, or close to, normal range. Her doctors were shocked that she wasn't in pain but she said she never felt anything. Her Onco only moved up her scan because her CEA jumped and found a 9xmX9cm tumor in her right lobe of her liver.
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

Lydia666
Posts: 672
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Liver question

Postby Lydia666 » Thu Feb 15, 2018 9:40 pm

Thank you all. Occasionally i worry that something is wrong, wherever i happen to feel something different. Maybe it's just stress. I have scan soon, we'll see what's up. Hopefully nothing.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
July 2016- ileo reversal
August 2016- DCIS
Feb 24,2017- prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Mom to 4 & 7 yrs kids (6 mo. & 3.5 yrs at diagnosis in June 2015)

kandj
Posts: 212
Joined: Sun Sep 27, 2015 11:29 am

Re: Liver question

Postby kandj » Fri Feb 16, 2018 9:23 am

DH had numerous liver mets at diagnosis. His initial symptoms were some right upper quadrant pain. They were thinking referred pain from appendicitis or pneumonia. Turns out it was neither. His symptoms showed up about 3 days before diagnosis. And obviously those mets were there for a while, not just 3 days.
wife to DH, dx 8/15 stage IV @36
Told unresectable liver Mets
Primary resection and HAI pump placed Dec 2015 at MSKCC, FUDR started Dec 2015
Liver resection 5/19/2016 15-20 mets removed (surgeon lost count, but it hopeful he got it all!)
Recurrence 7/2017 4 Liver mets and one possible lung met
Radiation on liver Mets 12/17
Lung met 10/18
46 rounds of chemo 8/15-5/18

User avatar
LeonW
Posts: 347
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: Liver question

Postby LeonW » Fri Feb 16, 2018 7:52 pm

Lydia666 wrote:. . . Occasionally i worry that something is wrong, wherever i happen to feel something different . . .

Welcome to the club!
It'll take quite a while, if ever, to regain the level of trust that you were used to. My advice: take any opportunity to celebrate successes and find a single expert that you trust and with whom you can discuss developments and worries.

Best wishes, L
Dec 2012 CC (7 cm mass), 2 unresect liver mets, CEA 41.8 (MM @65yrs)
Jan 2013 colectomy @ spleen, 2/26 nodes IVa T3N1bM1a MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2x failed PV embolization
Oct 2013 - R liver resect 28 hosp days (delirium, liver failure, emboli, encephalopathy) pCR - no cancer cells
2014/15 - recovery; scopy finds polyp
2016 - new town, new life
June 2018 - 5 yr mark, 2 polyps
clean CTs and (1.3-1.4) CEAs: 4x2014, 6x2015-17, 1x2018; next June 2019

User avatar
CRguy
Posts: 9612
Joined: Sun Feb 10, 2008 6:00 pm

Re: Liver question

Postby CRguy » Sat Feb 17, 2018 2:46 am

LeonW wrote:
Lydia666 wrote:. . . Occasionally i worry that something is wrong, wherever i happen to feel something different . . .

Welcome to the club!
It'll take quite a while, if ever, to regain the level of trust that you were used to.
My advice: take any opportunity to celebrate successes and find a single expert that you trust and with whom you can discuss developments and worries.
Best wishes, L

Hey Lydia666 and LeonW ... THAT is WORD !

I now have a GP who works with me and talks with me ... not AT me = WIN
We get tests done as per our discussions and so far .... so good = WIN
I've had a liver scare and a Lung Thang surgery/chemo and I still " keep on ticking " = WIN
I bring my concerns and issues Here and always get great feedback = WIN
After all my years here I will take my WINS where I can get them !!!!

Don't borrow trouble ..... BUTT
be pro-active and get on top of anything which concerns you
and get the answers which YOU are Ok with
= my WORD !!!!

Cheers and best wishes
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Punky44, Yahoo [Bot] and 55 guests