OTC Suggestions for Nausea from Oxaliplatin

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Caat55
Posts: 475
Joined: Sat Dec 23, 2017 6:01 pm

Re: OTC Suggestions for Nausea from Oxaliplatin

Postby Caat55 » Tue Feb 13, 2018 1:56 pm

Mike,

To the person that suggested Hypafix - I opened the box and it wasn't what I was expecting. I was expecting some kind of plasticy tape and what I found is a material that's like wafer tape. I put a three-inch piece on the top of the wafer to see how well it does. The 5 cm width is perfect - half on your skin and half on the wafer tape. I imagine that this stuff could be used for other things that need to be covered, perhaps with non-stick gauze. I will try this on three sides on my next bag change.

The stoma nurse from home health was here yesterday. She is a minimalist and gave me some great tips for my bag, improving fit and staying on for activity. There are some tabs that insurance covers to help adhesive stay but she recommended this tape which isn't paid for but she finds is great. Its called Hy-Tape pink tape. I swim, kayak and love my hot tub, she said it will extend bag time, prevent bag from losing seal.

https://www.edgepark.com/wound-care/adh ... p/hy120blf

S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

NHMike
Posts: 1536
Joined: Fri Jul 21, 2017 3:43 am

Re: OTC Suggestions for Nausea from Oxaliplatin

Postby NHMike » Tue Feb 13, 2018 2:07 pm

Caat55 wrote:Mike,

To the person that suggested Hypafix - I opened the box and it wasn't what I was expecting. I was expecting some kind of plasticy tape and what I found is a material that's like wafer tape. I put a three-inch piece on the top of the wafer to see how well it does. The 5 cm width is perfect - half on your skin and half on the wafer tape. I imagine that this stuff could be used for other things that need to be covered, perhaps with non-stick gauze. I will try this on three sides on my next bag change.

The stoma nurse from home health was here yesterday. She is a minimalist and gave me some great tips for my bag, improving fit and staying on for activity. There are some tabs that insurance covers to help adhesive stay but she recommended this tape which isn't paid for but she finds is great. Its called Hy-Tape pink tape. I swim, kayak and love my hot tub, she said it will extend bag time, prevent bag from losing seal.

https://www.edgepark.com/wound-care/adh ... p/hy120blf

S


I actually have a roll of that somewhere. I asked my surgeon for some tape when I was in the post-op visit to help secure it and she looked around and found this product and told me not to tell anyone as it's apparently expensive. The roll that she gave me was only 1/2 inch wide, though, so I couldn't really assess how well it would work if wider. I put on a few strips and wasn't really impressed with it but the width was a factor. The stuff that I got today is a lot thinner and lighter and less stiff than Hytape and may make for a better solution (and it costs half as much).
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18

NHMike
Posts: 1536
Joined: Fri Jul 21, 2017 3:43 am

Re: OTC Suggestions for Nausea from Oxaliplatin

Postby NHMike » Tue Feb 13, 2018 8:11 pm

Picked up a bottle of Knudson Apple Ginger juice and added hot water to it. The ginger is noticeable but not overly strong. I find that hot apple juice or cider is a drink that I like when I have the cold sensitivity.
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: OTC Suggestions for Nausea from Oxaliplatin

Postby TXLiz » Wed Feb 14, 2018 12:36 pm

Sucking on lemon drops-ugh- helped me a bit.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

NHMike
Posts: 1536
Joined: Fri Jul 21, 2017 3:43 am

Re: OTC Suggestions for Nausea from Oxaliplatin

Postby NHMike » Wed Feb 14, 2018 1:45 pm

TXLiz wrote:Sucking on lemon drops-ugh- helped me a bit.


I recall doing that after the first infusion. Something with lemon and menthol. It didn’t mess up my throat either.
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18

User avatar
chrisca
Posts: 233
Joined: Wed Dec 07, 2011 10:35 pm
Location: Portland, Oregon

Re: OTC Suggestions for Nausea from Oxaliplatin

Postby chrisca » Thu Feb 15, 2018 12:18 am

CBD oil can be helpful. You can also look at Marinol (prescription THC from cannabis) which comes in pill form. Unlike CBD, it can produce a high at larger doses. Tincture of cannabis is also helpful if it's legal in your state or available through friends. For Marinol and tincture, you'll fail a drug test so be careful about that if your job requires it. For Marinol, you may be able to get an exemption if it's prescribed by a doctor.
Male, false negative colonoscopy age 48
DX: 12/2010 rectal cancer age 51
Stage T3N0M0 2 cm from anal verge
neoadjuvant rad/chemo Xeloda
Rectal resection (open surgery) straight anastomosis
Xeloda round 2
ileostomy reversal 11/2011
Successful adhesion X-lap 8/2013
Ongoing LAR syndrome but NED 6 years

cbsmith
Posts: 63
Joined: Sat Nov 28, 2015 11:45 am
Location: New Brunswick, Canada

Re: OTC Suggestions for Nausea from Oxaliplatin

Postby cbsmith » Thu Feb 15, 2018 5:47 am

CBD and/or THC will get rid of it for sure. Depending on what you do for work you would fail a drug test and also if your employer prohibits working while on narcotics you would violate that as well.

I stopped working when I was diagnosed and went on our work disability plan so issues with work and CBD/THC didn’t impact me.
06/14-DX with FAP as 36yo Male
07/14-total colectomy, rectum removal, permanent ileostomy
08/14-DX Stage IIIC colon cancer KRAS mutant, MSS
09/14-12 rounds of FOLFOX
04/15-ended FOLFOX
07/15-CT showed one para-aortic lymph node, onc thought inflammation and said wait 3 mths
10/15-DX Stage IV, CT showed lymph node tripled in size and 1 small lung met
11/15-FOLFIRI + Avastin
06/16-lymph node is stable, now have a 2nd lung met
01/16-lymph node is stable, lung mets grown 2mm. Still on FOLFIRI + Avastin

Eleda
Posts: 127
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: OTC Suggestions for Nausea from Oxaliplatin

Postby Eleda » Fri Feb 16, 2018 4:32 am

Hi mike,
My neighbors in remission 10 years with Dukes category C, and I asked her about nausea and she said hight quality manuka honey ( big spoon first thing) washed down with fresh warm lemon and water
Have you any Px anti nausea meds?????
I took valoid and seemed to work.
Then again it was only 1650 mg XELODA 2x day
Hope this help and ur getting on top of things
Adele
SWF, 47
Mom to 3 sons 6/8/12
Dec4th colo for intermittent rectal bleeding over the Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV
JAN 3RD started 1650mg Zelda 2xday, concurrent with 28 radiation

AppleTree
Posts: 186
Joined: Fri Mar 18, 2016 8:16 am

Re: OTC Suggestions for Nausea from Oxaliplatin

Postby AppleTree » Fri Feb 16, 2018 10:20 am

Real grated ginger root into your tea with honey. Let it steep and then drain the root out.

My naseua has increased some with treatment. I eat very lightly before and after. Yesterday an apple scone before and snack pack applesauce after. Milk seems to make everything worse.

I go for hydration 4 x after chemo. Dr just ordered IV antinaseua in the IV. I think worth a shot...I have gone from 150 to 119 pounds. I just did #9 of 12 so not much longer to go, but I think I need help with this final boost.

Good luck!
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper right lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July PET...CLEAR!

NHMike
Posts: 1536
Joined: Fri Jul 21, 2017 3:43 am

Re: OTC Suggestions for Nausea from Oxaliplatin

Postby NHMike » Sun Feb 18, 2018 8:09 am

The Nausea has gone for this cycle but I will stop by Trader Joes and look for Manuka Honey and see if we can pick up a bag of lemons at Costco. I will ask my daughter to grate the ginger root that we have.

I had a Halls Menthol Honey Lemon drop after my first infusion (my wife had a bag of these near her workstation) and it felt great. There was one left a few days ago and I had it and it felt great again so I should probably get a bag of those. I think that the Menthol heat helps with to keep the throat closing issue away. There's nothing like a good warm drink though. Thanks for your recommendations.
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18

NHMike
Posts: 1536
Joined: Fri Jul 21, 2017 3:43 am

Re: OTC Suggestions for Nausea from Oxaliplatin

Postby NHMike » Sun Feb 18, 2018 8:11 am

AppleTree wrote:Real grated ginger root into your tea with honey. Let it steep and then drain the root out.

My naseua has increased some with treatment. I eat very lightly before and after. Yesterday an apple scone before and snack pack applesauce after. Milk seems to make everything worse.

I go for hydration 4 x after chemo. Dr just ordered IV antinaseua in the IV. I think worth a shot...I have gone from 150 to 119 pounds. I just did #9 of 12 so not much longer to go, but I think I need help with this final boost.

Good luck!


That weight loss is very scary. I actually have the opposite problem - I'm around 188 and would prefer to be about 178. My weight has been like a yoyo on treatment. I have another friend that quite chemo after four rounds as he dropped from the 150s to the 120s. He was stage 2, and he did a careful analysis of the research to gauge the additional risk against the quality of remaining life.
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18


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