OTC Suggestions for Nausea from Oxaliplatin

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NHMike
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OTC Suggestions for Nausea from Oxaliplatin

Postby NHMike » Sun Feb 11, 2018 10:45 pm

Had a very rough day today with Nausea after the infusion drugs wore off. I see that you can get Emetrol at CVS and several other things. Any recommendations for stuff that's safe and effective?
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

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O Stoma Mia
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Re: OTC Suggestions for Nausea from Oxaliplatin

Postby O Stoma Mia » Sun Feb 11, 2018 10:58 pm

O Stoma Mia wrote:
testing765 wrote:I just want to find something that will take the feeling of nausea away.

If you don't yet have insurance approval for the meds you want to take, maybe you could look over the lists of home remedies for nausea/vomiting to see if there is anything there that might be of help:

Understanding Nausea and Vomiting -- Home Treatment

http://www.webmd.com/digestive-disorders/understanding-nausea-vomiting-treatment?print=true
http://health.howstuffworks.com/wellness/natural-medicine/home-remedies/home-remedies-for-nausea-and-vomiting1.htm/printable
http://www.top10homeremedies.com/home-remedies/home-remedies-for-vomiting.html

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CRguy
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Re: OTC Suggestions for Nausea from Oxaliplatin

Postby CRguy » Mon Feb 12, 2018 12:02 am

NHMike wrote:Had a very rough day today with Nausea after the infusion drugs wore off. I see that you can get Emetrol at CVS and several other things. Any recommendations for stuff that's safe and effective?

Glad OSM chimed in with some references ... I am busy blowing myself up rewiring a renovation house :twisted: :mrgreen:

OTC :
pure, real ginger foods or drinks, ginger ales or ginger beers ... BUTT with REAL ginger, fresh brewed ginger root tea
I believe Gravol® has a "ginger" tablet OTC
or Gravol® itself (Dimenhydrinate) or generics
BrownBagger's standby = mixed CBD/THC cannabis = OTC depending upon where you are :shock:
Acupressure/puncture : PC6 / Nei Guan

PLEASE DO NOT needle yourself at home :twisted:
the "pressure" method is also effective and is the basis of the "sea sickness bracelets" which stimulate this point.
PM me if you need specifics my friend

I never had real issues with nausea BUTT had scripts in hand for all the big guns if needed ( Emmend, Zofran, Kytril )
.... BECAUSE I learned from folks on forum here what worked for them.
Also always had some level of dexamethasone prior to infusions and variable amounts after.

Hope this helps and if it works for you ... please let us know how you are doing

Cheers and Harmony
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Aqx99
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Re: OTC Suggestions for Nausea from Oxaliplatin

Postby Aqx99 » Mon Feb 12, 2018 8:34 am

Do they not have you continuing steroids after your infusion? My oncologist had me take steroids for the three days after each infusion to continue what the steroids they give as premeds were doing to prevent nausea. I only had to take my antinausea meds once during chemo, and I think that may have had nothing to do with the chemo at all.

My grandmother swore by flat ginger ale to help with nausea. Crytallized ginger helps too. I'm not familiar with any OTC meds.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Diagnosis, Age 39
2/21/17 CEA 0.9 ng/mL
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Diagnosed w/ovarian cancer
9/6/17 CA 125 11.1 U/mL
11/27/17 CEA 2.6 ng/mL
12/5/17 CT showed NED
12/13/17 CEA 2.9 ng/mL
1/11/18 CA 125 8.6 U/mL
1/23/18 Reversal

NHMike
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Re: OTC Suggestions for Nausea from Oxaliplatin

Postby NHMike » Mon Feb 12, 2018 9:38 am

Aqx99 wrote:Do they not have you continuing steroids after your infusion? My oncologist had me take steroids for the three days after each infusion to continue what the steroids they give as premeds were doing to prevent nausea. I only had to take my antinausea meds once during chemo, and I think that may have had nothing to do with the chemo at all.

My grandmother swore by flat ginger ale to help with nausea. Crytallized ginger helps too. I'm not familiar with any OTC meds.


They gave me steroids before the infusion and that was it. I suspect that I could ask.

I asked my daugter to cut up a few pieces of ginger for me and I have them in a little plastic container that I'll take to work. I plan to steep it in hot water for a bit, maybe with tea, for a hot drink. I also have crystallized ginger but I hate the amount of sugar in it. And I do sometimes drink warm ginger ale in the office. It's just hit me particularly hard this time around and it's a crummy cycle. I was hoping that it would be gone by now. It sometimes comes and goes. I'm not able to taste things that well right now either.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

SC77
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Re: OTC Suggestions for Nausea from Oxaliplatin

Postby SC77 » Mon Feb 12, 2018 11:06 am

I don't have an OTC suggestion, but Zofran is working for me. I have also tried Phenegren, and it helps but it makes me very tired, like Benadryl.
40/ F
Diag. Stage IIIc rectal 7/27/11
11/13 nodes positive
Lynch Negative, MSI stable
Started Xeloda and radiation 8/22/17
Finished 30 treatments on 10/10/17
Surgery LAR 11/9/17
Loop illostomy
FOLFOX started 12/28
Infection, positive blood cultures, hospital stay 12/31 to 1/4/18
2nd chemo delayed one week due to low WBC
Round 2 FOLFOX
Round 3 on 2/1

benben
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Location: Washington State

Re: OTC Suggestions for Nausea from Oxaliplatin

Postby benben » Mon Feb 12, 2018 11:07 am

CBD

I found an edible form that combined Ginger with CBD in a mint.
I found 2 of these daily around the first few days after infusion kept my nausea close to nonexistent.
Also worked wonders for pain. I had 12 rounds of chemo - 7 involving Oxaliplatin. I only reached for prescribed medication twice.
One week I decided to drop the CBD and needed Zofran, but found it didn't help nearly as much as the CBD. Once I needed oxycodone for bone pain after my first Granix shot.
Otherwise I took no prescription medicines during my 12 weeks of treatment (other than chemo and steroids given during treatment - obviously).
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
Granix given, Now Zarxio treatments every session.
Treatment 7 reduced to 75% OXI
Treatment 8-12 - NO OXI, just Luke and 5FU
Current - 12 treatments done, CBC good, CEA decreasing.
10/20/17 CT-SCAN - CLEAR! - NED

AppleTree
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Re: OTC Suggestions for Nausea from Oxaliplatin

Postby AppleTree » Mon Feb 12, 2018 11:25 pm

Zofran and ativan (ativan 1 hour before bed and I can sleep). Ativan can act against nausea. And the pills I get are safe to cut in 1/2, so sometimes I try a 1/2 and see how I feel...and then take the 2nd half if needed.

I have hydration on day of disconnect and the following 3 days. Zofran is added to my IV. I hope makes a world of difference. I did not need it in the beginning, but I am on my last 4 and treatments and DR just added it. Last time I got nasious as soon as they started. So, fingers crossed that works for me.

I will say that I do feel better if I take the time to go in for hydration. Now...if I could just keep my boy from drinking so much of my Gatoraid (he is 14)!

At disconnect I get the Neulasta shot. That really hurts, hurts my jaws, teeth, bones. That always seems to be a good time to take ativan and sleep, although I have an RX for Oxicontin. I do need to be awake and not sleep all the time! But lately, I am tired.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
March 14 - April 16 - 25 sessions
Tumor shrunk just over 50% Lymph nodes 0/13
Operation to remove rectum with temp Ileo June 17
Reversal July 20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
June 16, MRI shadow in lung
Pet scan - 6.6mm Met in Upper right lobe
July 30 VAT surgery Mass General/Boston
August 24 port installed
August 30 Folfox

NHMike
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Re: OTC Suggestions for Nausea from Oxaliplatin

Postby NHMike » Tue Feb 13, 2018 1:42 am

The Nausea dropped today. Might have been the ginger: did crystalized, ginger ale and dropped the raw ginger in hot water. But it might have been time too.

Dropping it in water isn't that effective. I think that it needs to be chopped up or ground.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

NHMike
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Joined: Fri Jul 21, 2017 3:43 am

Re: OTC Suggestions for Nausea from Oxaliplatin

Postby NHMike » Tue Feb 13, 2018 6:21 am

I’m still reluctant to use drugs but may go with them the next cycle unless I can get the ginger down better. I need some more experimentation with the root form.

I’ll ask about Zoltan.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

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Robino1
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Re: OTC Suggestions for Nausea from Oxaliplatin

Postby Robino1 » Tue Feb 13, 2018 8:17 am

Before they dropped the Oxaliplatin, I needed just one pill the day my pump was disconnected. I took it in the afternoon. That's all I needed.

Now that the Oxaliplatin is dropped, they don't give me the anti nausea med in IV. I've started feeling not quite nauseous but off after treatment. I think I'm going to take one pill after I get home this next treatment and see how that goes.

I hate taking meds too and can emphasize with you but there are times when they are needed to help you. If you don't eat, you can't stay strong to fight. You don't have to take them every day, just until you don't need them. Experiment to find the least that is needed to get you through the worst.

You may only need one like I did. Remember, lack of food will cause nausea also. Not being able to eat can compound the nausea.

Our bodies are so freaking complicated yet so simplistic. Such a conundrum :?
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217 CEA 219
FOLFOX started 6/17
CEA 202 Not genetic
8/29/17 CT excellent melting of tumor.
12/8/17 Markedly decr ant peritoneal nodularity since 8/29/17 compat w/ marked posi respns to therapy
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2 Damnit
BRAF V600e

Deb m
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Re: OTC Suggestions for Nausea from Oxaliplatin

Postby Deb m » Tue Feb 13, 2018 8:50 am

Ginger and peppermint tea helped in conjunction with nausea meds. Start doing all this before you start getting nauseated. I't works best if you stay ahead of it.

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susie0915
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Re: OTC Suggestions for Nausea from Oxaliplatin

Postby susie0915 » Tue Feb 13, 2018 9:03 am

I didn't really have issues with nausea, but my oncologist gave me zofran and compazine to have on hand.
58 yrs old Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc feels scar tissue
7/17 no change lung nodule
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule or scarring/inflammation

NHMike
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Re: OTC Suggestions for Nausea from Oxaliplatin

Postby NHMike » Tue Feb 13, 2018 11:04 am

I'm back to being able to eat without the Nausea so suggestions queued for the next round. I still have metal-mouth taste so I can taste about 30% of normal. I find Trader Joes Spiced Apple Cider hot to be a nice drink (diluted 3 to 1 of course).

To the person that suggested Hypafix - I opened the box and it wasn't what I was expecting. I was expecting some kind of plasticy tape and what I found is a material that's like wafer tape. I put a three-inch piece on the top of the wafer to see how well it does. The 5 cm width is perfect - half on your skin and half on the wafer tape. I imagine that this stuff could be used for other things that need to be covered, perhaps with non-stick gauze. I will try this on three sides on my next bag change.

Big thanks - it may be helpful for running.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

rockhound
Posts: 95
Joined: Fri Jul 14, 2017 5:00 pm

Re: OTC Suggestions for Nausea from Oxaliplatin

Postby rockhound » Tue Feb 13, 2018 11:06 am

susie0915 wrote:I didn't really have issues with nausea, but my oncologist gave me zofran and compazine to have on hand.


same here, used the compazine once but it was nice to have them both around in case I needed them
42 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - Clear CT
1/18 - 5mm polyp removed during colonoscopy


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