doctor in Cincinnati

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Teddybear
Posts: 29
Joined: Sun Feb 11, 2018 3:23 pm

doctor in Cincinnati

Postby Teddybear » Sun Feb 11, 2018 3:32 pm

Hi All,

I was just diagnoised with a 5 cm cancer mass in the sigmoid colon. CT scan tomorrow. Totally stressed and not impressed with the doctor that did colonoscopy. Any ohio recomendations? I am in Cincinnati. Also can you tell anything about stage of cancer from mass size or symptoms. I feel totally lost and panicked cancer will be everywhere .

thanks for all responses
DX CC Feb 2018
Feb 2018 Lap sigmoind resection
2A
T3N0M0/G2
0/14 nodes
no invasion
Margins clear
MSS
April-June 2018 Xeloda

Lee
Posts: 5678
Joined: Sun Apr 16, 2006 4:09 pm

Re: doctor in Cincinnati

Postby Lee » Sun Feb 11, 2018 4:44 pm

Hi and welcome, sorry for the reason you are here.

Look for cancer treatment centers or major cancer hospitals. I would also recommend looking for a "board certified" colon rectal surgeon vs a general surgeon. They have the extra training for these types of surgeries.

Know that colon cancer is treatable. I am coming up on my 14 anniversary. My signature line tells my story. There has been a lot of advancement in this past decade. It is not the death sentence it once used to be.

Avoid Dr. Google, a lot of information is out dated or just plan wrong. You will find a lot of information and support here. We all understand what you are going through right now. This really is the hardest part. Once you are staged and have a plan of action, you will start to feel like you have some control again

No it is not possible to tell a stage based on tumor size. Good luck tomorrow. Let us know.



Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Teddybear
Posts: 29
Joined: Sun Feb 11, 2018 3:23 pm

Re: doctor in Cincinnati

Postby Teddybear » Sun Feb 11, 2018 5:39 pm

Thank you Lee. Your advice and encouragement are appreciated. You are correct about needing a plan. I will update when I receive the CT results.
Peace and Health,
Teddybear
DX CC Feb 2018
Feb 2018 Lap sigmoind resection
2A
T3N0M0/G2
0/14 nodes
no invasion
Margins clear
MSS
April-June 2018 Xeloda

behconsult
Posts: 228
Joined: Fri Jul 04, 2014 4:53 pm

Re: doctor in Cincinnati

Postby behconsult » Sun Feb 11, 2018 7:21 pm

Don't know about the Cincinnati. The onc colon surgeons are ranked in the top 10 nationally at the James in Columbus. Best wishes. Bob
Stage 3B Age 52
T4; 2/16; spot on perit
Resctn 6/9/2014
Folfox strt 7/2014. 6 of 12 tx
Chemo induced DM2
Pet 4 mets to lung (1 cm, 6 mm) Xeloda/Avastin 9/16 to present.
Cryo-ablation to three spots- Collapsed lung/chest tube 5/17. One more spot to go.

NHMike
Posts: 1723
Joined: Fri Jul 21, 2017 3:43 am

Re: doctor in Cincinnati

Postby NHMike » Sun Feb 11, 2018 9:26 pm

Teddybear wrote:Hi All,

I was just diagnoised with a 5 cm cancer mass in the sigmoid colon. CT scan tomorrow. Totally stressed and not impressed with the doctor that did colonoscopy. Any ohio recomendations? I am in Cincinnati. Also can you tell anything about stage of cancer from mass size or symptoms. I feel totally lost and panicked cancer will be everywhere .

thanks for all responses


Sorry you have to go through this. I was diagnosed last June. It looks like the nearest top hospital is the Cleveland Clinic which is 4.5 hours away. Others are Barnes-Jewish Hospital/Washington University, St Louis and Northwestern Memorial Hospital, Chicago. Those are all quite some distance away.

I had a slightly larger tumor in my rectum and was staged at 3B. The size would imply that it's likely at least 3. The letter is more of a function of lymph node involvement (localized spread). The staging for me was done by MRI. We know how you feel as we've been through it and there's a lot of advice and experience on this board once they get the staging and other testing done.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

User avatar
O Stoma Mia
Posts: 1450
Joined: Sat Jun 22, 2013 6:29 am

Re: doctor in Cincinnati

Postby O Stoma Mia » Sun Feb 11, 2018 10:51 pm

You can look for Board Certified doctors in your area by following the instructions in this link

How to Find a Board Certified Doctor
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52349&p=410280#p410280

rockhound
Posts: 109
Joined: Fri Jul 14, 2017 5:00 pm

Re: doctor in Cincinnati

Postby rockhound » Sun Feb 11, 2018 11:56 pm

I lived in the greater cinci area for ~12 yrs. Had a friend that was diagnosed with early stage colon cancer in his 20's (~18 yrs ago- he's fine!) and he went to UC medical center; same with another close friend of mine who had throat cancer (again, 15+ yrs ago). Both had great experiences.. UC is a teaching hospital/center and their doctors should all be up on everything new. I personally would stick with them over anyone else/other group in the Cinci area- but see what your primary care doctor thinks and perhaps your GI doctor, even if you have reservations about them.

If I was in your position I would go to UC first and probably also have a second opinion at Ohio state (or even Cleveland clinic) - OSU is not too far really (my surgery was 2 hrs away) and it is a great cancer center. You really want the best surgeon (board certified colorectal surgeon as mentioned) you can find and also be comfortable with and the team approach at the major centers like OSU/UC is great. I suspect UC should be fine though, but if you did go to OSU for surgery, etc. you could still get things like radiation therapy, if needed, locally.
42 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - CT, NED
1/18 - 5mm polyp removed during colonoscopy
5/18 - CT, NED

Teddybear
Posts: 29
Joined: Sun Feb 11, 2018 3:23 pm

Re: doctor in Cincinnati

Postby Teddybear » Mon Feb 12, 2018 9:47 am

Thank you for all the advise. I made an appointment with Board Cert. colorectal surgeon at UC. I received the pathology report this morning and really dont understand much. It states sigmoid colon mass -invasive, moderately differentiated adenocarcinoma with ulceration. Measuring 0.4 x 0.7 x0.2 cm. Can anyone can explain this report ?

Wishing everyone a great day
DX CC Feb 2018
Feb 2018 Lap sigmoind resection
2A
T3N0M0/G2
0/14 nodes
no invasion
Margins clear
MSS
April-June 2018 Xeloda

DarknessEmbraced
Posts: 3126
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: doctor in Cincinnati

Postby DarknessEmbraced » Mon Feb 12, 2018 11:44 am

Welcome to the board and sorry you're going through this!*hugs* I hope your ct scan goes well and you get more answers soon!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

Rikimaroo
Posts: 137
Joined: Tue Dec 20, 2016 8:48 pm

Re: doctor in Cincinnati

Postby Rikimaroo » Mon Feb 12, 2018 11:49 am

I highly recommend Cleveland Clinic there like top 2 in the US I think. They have a great Colorectal Cancer Team. I am actually going to Cleveland Clinic in Weston, FL who has a top Colerectal team and great Cancer oncologists.
Diagnosed at 38 y/o male, 3 kids 7,9,14 - Now 39.
RC T3N1M0
Chemo Rad, CCR - W&W 5/2017
Local Recurrence, discuss options 11/26/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/15/2017, folfox/oxapalatin + avastin starts on the 12/20/2017
Blood Clot in Neck 1/16/2018, stop avastin, continue FolFox
TME/Liver Resect 4/3/2018
Biopsy Results 0/8 Lymph nodes clear, margins not clear, CEA now .8,
Chemo Finish 8/15/2018
Reversal October 17th 2018

NHMike
Posts: 1723
Joined: Fri Jul 21, 2017 3:43 am

Re: doctor in Cincinnati

Postby NHMike » Mon Feb 12, 2018 12:23 pm

This is some basic stuff on staging. It doesn't cover the "differentiated" stuff though.

https://cancerstaging.org/references-to ... Medium.pdf

Your tumor is a lot smaller than your original post and that's probably a good thing.

Also, https://www.cancer.org/treatment/unders ... colon.html
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

TeamRosie
Posts: 1
Joined: Fri Jan 15, 2016 10:42 pm

Re: doctor in Cincinnati

Postby TeamRosie » Mon Feb 19, 2018 10:07 pm

I’m so sorry to hear about your diagnosis. We are in Cincinnati and have been supporting a close family member in her stage IV CRC journey for several years. One oncologist you may want to consider is Dr. Lemming with Christ. I also strongly recommend that you seek a second opinion with an expert at an NCI-accredited cancer center. There are none in Cincinnati, but close options are OSU James Cancer Center and Cleveland Clinic. If you have the means to travel further for a second opinion, consider MSKCC, Dana Farber, Johns Hopkins or Georgetown. There are many others, but these are some options within a reasonable distance. Best of luck, I will be thinking of you.
-kct

User avatar
Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: doctor in Cincinnati

Postby Bev G » Tue Feb 20, 2018 9:46 pm

NHMike wrote:
Teddybear wrote:Hi All,

I was just diagnoised with a 5 cm cancer mass in the sigmoid colon. CT scan tomorrow. Totally stressed and not impressed with the doctor that did colonoscopy. Any ohio recomendations? I am in Cincinnati. Also can you tell anything about stage of cancer from mass size or symptoms. I feel totally lost and panicked cancer will be everywhere .

thanks for all responses


Sorry you have to go through this. I was diagnosed last June. It looks like the nearest top hospital is the Cleveland Clinic which is 4.5 hours away. Others are Barnes-Jewish Hospital/Washington University, St Louis and Northwestern Memorial Hospital, Chicago. Those are all quite some distance away.

I had a slightly larger tumor in my rectum and was staged at 3B. The size would imply that it's likely at least 3. The letter is more of a function of lymph node involvement (localized spread). The staging for me was done by MRI. We know how you feel as we've been through it and there's a lot of advice and experience on this board once they get the staging and other testing done.




Tumor size DOES NOT CORRELATE with stage of cancer.
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now


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