My Mom’s Journey is Over

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SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

My Mom’s Journey is Over

Postby SweetC80 » Fri Feb 09, 2018 7:22 pm

I have not been the most active member of this community, but you all have been invaluable to me during the past year. You are all so strong and brave and I’ve learned so much that has helped me navigate my mother’s illness.

I hope to stick around a bit to help in anyway that my limited knowledge of this horrible disease might provide and support those of you still battling and for your loved ones.

My mother was put into and in-patient hospice on Monday night where she went to sleep and stayed asleep until she peacefully passed Thursday morning.

Thank you all!
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

Lee
Posts: 5619
Joined: Sun Apr 16, 2006 4:09 pm

Re: My Mom’s Journey is Over

Postby Lee » Fri Feb 09, 2018 8:23 pm

Please accept my condolences on the passing of your mom. It sounds like it was peaceful.

Yes please stick around. You might find this thread helpful.

viewtopic.php?f=1&t=46183&hilit=those+left+behind

Again I am so sorry for your loss.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

AussieAssCancer
Posts: 248
Joined: Sat May 21, 2016 10:16 am

Re: My Mom’s Journey is Over

Postby AussieAssCancer » Fri Feb 09, 2018 9:30 pm

I’m so very sorry. Mum’s are extra special, and I miss mine every day!

Lee is right tagging the link to that thread. I hope you can find some solace in it, and the no doubt many memories you have of your dear Mum.

Geoff
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)
Feb ‘18: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

ilovemyfrenchie
Posts: 14
Joined: Fri Nov 03, 2017 9:20 pm

Re: My Mom’s Journey is Over

Postby ilovemyfrenchie » Fri Feb 09, 2018 10:03 pm

I’m so sorry...but I can tell she raised a wonderful and caring family that supported her through her journey.
Daughter to 59 yo w/ Stage 4 Mets to liver & peritoneal
10/1/17 ER trip for GI bleed found rectal tumor (CEA 71)
10/2/17 emergency colostomy (no resection, told tumor inoperable due to Mets found)
10/17 started Folfiri with Avastin (CEA 171)
8/18 CT = liver Mets continue to shrink (CEA 4)

“Chemo for life” hoping for surgery soon

User avatar
Robino1
Posts: 462
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: My Mom’s Journey is Over

Postby Robino1 » Sat Feb 10, 2018 8:07 am

So very sorry :(

{{{hugs}}}
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

User avatar
susie0915
Posts: 818
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: My Mom’s Journey is Over

Postby susie0915 » Sat Feb 10, 2018 8:49 am

So sorry for the loss of your mother. Prayers for you and your family.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: My Mom’s Journey is Over

Postby jhocno197 » Sat Feb 10, 2018 7:23 pm

I am so sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

DarknessEmbraced
Posts: 3078
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: My Mom’s Journey is Over

Postby DarknessEmbraced » Mon Feb 12, 2018 12:14 pm

I'm so very sorry for the loss of your mother!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

AppleTree
Posts: 186
Joined: Fri Mar 18, 2016 8:16 am

Re: My Mom’s Journey is Over

Postby AppleTree » Mon Feb 12, 2018 11:01 pm

I am sorry for your great loss. Never an easy thing. Hugs.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper right lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July PET...CLEAR!

User avatar
Shana
Posts: 394
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: My Mom’s Journey is Over

Postby Shana » Thu Feb 22, 2018 10:46 pm

So very sorry for your loss. May memories of your mom comfort you during these difficult days.

Thank you for your ongoing support of our community here

Hugs and prayers for you and your family
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

Bitochen
Posts: 2
Joined: Fri Feb 23, 2018 4:17 am
Location: https://bitgid.com

Re: My Mom’s Journey is Over

Postby Bitochen » Fri Feb 23, 2018 4:49 am

So very sorry for your loss. :(
45 yrs old Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc feels scar tissue
7/17 no change lung nodule
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule or scarring/inflammation


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