My Mom’s Journey is Over

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My Mom’s Journey is Over

Postby SweetC80 » Fri Feb 09, 2018 7:22 pm

I have not been the most active member of this community, but you all have been invaluable to me during the past year. You are all so strong and brave and I’ve learned so much that has helped me navigate my mother’s illness.

I hope to stick around a bit to help in anyway that my limited knowledge of this horrible disease might provide and support those of you still battling and for your loved ones.

My mother was put into and in-patient hospice on Monday night where she went to sleep and stayed asleep until she peacefully passed Thursday morning.

Thank you all!
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

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Joined: Sun Apr 16, 2006 4:09 pm

Re: My Mom’s Journey is Over

Postby Lee » Fri Feb 09, 2018 8:23 pm

Please accept my condolences on the passing of your mom. It sounds like it was peaceful.

Yes please stick around. You might find this thread helpful.


Again I am so sorry for your loss.

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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Joined: Sat May 21, 2016 10:16 am

Re: My Mom’s Journey is Over

Postby AussieAssCancer » Fri Feb 09, 2018 9:30 pm

I’m so very sorry. Mum’s are extra special, and I miss mine every day!

Lee is right tagging the link to that thread. I hope you can find some solace in it, and the no doubt many memories you have of your dear Mum.

Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)

Blog: kickingrectalcancerintheassblog

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Re: My Mom’s Journey is Over

Postby ilovemyfrenchie » Fri Feb 09, 2018 10:03 pm

I’m so sorry...but I can tell she raised a wonderful and caring family that supported her through her journey.
Daughter to 59 yo w/ Stage 4 Mets to liver & peritoneal
10/1/17 ER trip for GI bleed found rectal tumor
10/2/17 emergency colostomy (no resection, told tumor inoperable due to Mets found)
10/30/17 started Folfiri with Avastin
1/18 CT = liver Mets shrinkage

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Facebook Username: Robin.lawthers
Location: Florida

Re: My Mom’s Journey is Over

Postby Robino1 » Sat Feb 10, 2018 8:07 am

So very sorry :(

At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217 CEA 219
FOLFOX started 6/17
CEA 202 Not genetic
8/29/17 CT excellent melting of tumor.
12/8/17 Markedly decr ant peritoneal nodularity since 8/29/17 compat w/ marked posi respns to therapy
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2 Damnit
BRAF V600e

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Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: My Mom’s Journey is Over

Postby susie0915 » Sat Feb 10, 2018 8:49 am

So sorry for the loss of your mother. Prayers for you and your family.
58 yrs old Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc feels scar tissue
7/17 no change lung nodule
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule or scarring/inflammation

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Joined: Mon May 11, 2015 9:33 pm

Re: My Mom’s Journey is Over

Postby jhocno197 » Sat Feb 10, 2018 7:23 pm

I am so sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: My Mom’s Journey is Over

Postby DarknessEmbraced » Mon Feb 12, 2018 12:14 pm

I'm so very sorry for the loss of your mother!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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Joined: Fri Mar 18, 2016 8:16 am

Re: My Mom’s Journey is Over

Postby AppleTree » Mon Feb 12, 2018 11:01 pm

I am sorry for your great loss. Never an easy thing. Hugs.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
March 14 - April 16 - 25 sessions
Tumor shrunk just over 50% Lymph nodes 0/13
Operation to remove rectum with temp Ileo June 17
Reversal July 20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

June 16, MRI shadow in lung
Pet scan - 6.6mm Met in Upper right lobe
July 30 VAT surgery Mass General/Boston
August 24 port installed
August 30 Folfox

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